Opinion

Published March 27, 2017 by helentastic67

Opinion 2

Opinions

It’s weird how the littlest opinion can throw bad information into a fan to create a perfect storm. I once had a Carer complain to the office, my bed and changing it had given her a sore back.

My mum insisted on being at my house when a Team Leader and the OH & S person assessed my bed! They growled I was not to have the carers flip the mattress, which I insisted I would not even ask.

Bed 1

My mum keeps insisting I replace my bed. My father made it years ago, it’s mostly a sleigh bed with exception of the base being lower than the bed head. I’ve put the bed together more times single handed, than I care to remember.

And my older sister gets on-board to suggest I get a new bed. With what exactly? And then downscale all my bedding? I repeat – With What?

Bed 2

My older sister recently bought me a new walking stick with a really cool handle. It’s my early birthday present, but I think part of the reason she gave it to me is because my mum is of the opinion my walking stick has given me Carpel Tunnel Syndrome.

I don’t know, I wake up in the morning and I have pins and needles in my right hand. Just reminding you that my good hand, the only hand that works. I don’t take my walking stick to bed! Ergo! Case in point! Walking stick not to blame for Carpel Tunnel.

It’s that I do EVERYTHING WITH MY RIGHT HAND.

Opinion 3

Growing up with TBI – The Confabulation Kid

Published March 27, 2017 by helentastic67

Mmmmmmm, I’ve been accused of having this!

brokenbrilliant's avatarBroken Brain - Brilliant Mind

Looking back on my life and comparing notes with others, I realize more and more how much my experience has been impacted by the TBI’s I experienced. I was a pretty wild child — hard to handle and harder to discipline. I tried to be a good kid, for the most part, but I got turned around a lot, and it didn’t work in my favor.

I had real difficulties with keeping facts straight — I thought I had things right, but I was turned around and/or missing vital pieces of information. And in the process, I often looked like I was making things up to get attention or just plain lying.

Head injuries sometimes result in a phenomenon called Confabulation — the formation of false memories, perceptions, or beliefs about the self or the environment as a result of neurological or psychological dysfunction. When it is a matter of…

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Organised

Published March 24, 2017 by helentastic67

Organised

Organised

To some I might seem OCD/ADHD, to others anal or a control freak, however I just think I’ve developed coping mechanisms or systems to survive.

Let me give you an example;

You take a sip of your cuppa T and wonder if you put sugar in it because it tastes a little dry…. (you know that weird dry taste when you need just a sprinkle of sugar?)

Cuppa T 1

 

You stir it, taste again. If still not sure, I check the kitchen. Once I’ve finished with the sugar bowl, I put it back where it belongs, on top of the microwave.

I have limited space in my kitchen, also so that helps keep things tidy by putting thing where they ‘belong’.

But I have plenty of “systems” and when someone else comes into my home and moves things around, it’s a very careful balance.

Not helped by my eyesight or lack there-of. I often have to go into an area or room twice. And then if I have people that move things without thought, that is beyond frustration…

Organised 2

NDIS – Life Changer

Published March 22, 2017 by helentastic67

NDIS Life changer 1

The NDIS is supposed to be Life-Changing!
Right?

So, today I paid my scooter insurance because the NDIS refuse to pay any insurance.
I’ve tried every which way to have someone other than me pay it.

And I’ve been getting calls from the insurance broker. Seriously missed his calling as a debt collector.

He could change careers but I gather he is an ‘older’ gentleman.

So, to make a point of why I struggle to pay my rent? I paid my insurance. Out of my rent!

Thanks NDIS!
Life changing my ASS!

Ndis Life changer 2

Retirement

Published March 19, 2017 by helentastic67

retirement

Retirement

I had a day off yesterday! I know, right? It’s nice to imagine being retired every day, is a day off. But alas, no! I do not have that kind of retirement; my weekdays are often filled with the appointments that help keep me going. Maybe, I’ve mentioned previously, chiropractor, acupuncture, shiatzu, myotherapy, GP appointments and the list goes on. I’m not even seeing a physio or an OT at the moment.

So, as I said, yesterday I had a rare day off. I confess, I slept until 1pm, with a false start at around 9.30am when my Mepacs alarm woke me. Damn blast-it. I blame Facebook for my late night… Oh, early morning the night before.

Facebook

You know Facebook, you see a cute cat post, (yes, I’m that person) and the stupid thing won’t share it, so you spend 2 hours going through your newsfeed trying to find it again.

Case in point why I only get on once a week or so to do more then return messages and daily pokes. Yes, I’m that person trying to keep it alive, but when I finally surfaced I spent the afternoon making and returning calls, often both phones at the same time, emails.

And I still didn’t manage to put it all together to have lunch until 5.30pm.

Late lunch

15 SIGNS AND SYMPTOMS OF A MIGRAINE

Published March 17, 2017 by helentastic67

My symptoms have changed much over the 30 years I’ve had miagraine but here’s a good description……….

Chetna Tripathi's avatarThe Life

A migraine is a headache disorder characterized by recurrent headaches that are moderate to severe. Typically, migraine affects one-half of the head in pulsating nature, and last from two to 72 hours.Associated symptoms may include nausea, vomiting, and sensitivity to light, sound, or smell.The pain is generally made worse by physical activity. symptoms differ from person to person, While some symptoms are an indication of the migraine attack in near future, some are prominent during and after the attack.

symptoms Source: http://www.migraine.com

Signs and symptoms of a migraine are:

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Depression and Stats

Published March 17, 2017 by helentastic67

Depression

Depression and Stats

Last night I was looking back over my recent posts and noticing the number of ‘Likes’ some posts have over others. I am definitely noticing that some posts strike a chord with people and that’s when they start to follow and then they seem to not stick around.

Stats

I, obviously don’t post to be popular, I just found it a little amusing, 7 complete strangers liked my post on depression. Clearly, I don’t want to talk about depression, every single post. That would be depressing…

I find the way I deal with my depression is, I vent some and I play a little loud music. Then, I hibernate. I find people don’t understand depression and they don’t realise you can be depressed and still be up and about walking around.

Loud music

Are we all meant to be at home sitting in a dark room, wearing black, looking pale?

I confess, I do wear a lot of black, a heavy grey jacket, today on account of the weather, but under that layers of black! NO, really layers.

Dressed in black

But anyway, where was I? Oh, yes…. Depression, I think writing about it, vent, but do something to move the negativity or else nothing changes.

Sometimes, maybe we just have to change our expectations and disappointment doesn’t snowball to be beyond despair.

I realise this sounds pessimistic, but I wonder if I’ll get more than 2 Likes for this post?

Pessimistic

Music on Hold

Published March 15, 2017 by helentastic67

Music on Hold 1

Music on Hold

Music! The making of serial killers. The Australian Government Agency, then manages the distribution of welfare is called Centrelink. The nickname a friend used to call it was ‘Stupidlink’ which is a much politer version that what most people call it.

What I’ve found is if you are respectful, they will help you. This is when you get to speak to someone in their call centre. I put off calling them until I absolutely have to, because there’s nothing like being on hold for an hour just to tell them nothing has changed. I’m still poor, I still have a disability and I’m still living on the edge.

And that’s all after being tortured by the ‘On hold music’. I get the fact that the classical music chosen is meant to soothe, but it’s too busy! It’s too busy, and I can imagine people with serious mental health issues would want to kill themselves.

I like to refer to it as the music that is the making of serial killers.

Music on Hold 2

Family – Part 2

Published March 13, 2017 by helentastic67

Family Pt 2

Family Part 2

I’ve been procrastinating this topic, because it’s not an easy topic to cover. I don’t know how other bloggers deal with this however, maybe I should be able to say what I like and if family can’t cope, they can start their own blog. However, what generally would happen would be that any assistance I currently have from family would quickly dry up.

We like to imagine that if someone is sick, has a disability or is dying (I’m not dying in case you’re wondering) empathy would kick in and any other ‘issues’ you have had with that person or family member, you would be the bigger person and put it aside, get over it or just move one.

I luckily, have both parents still on this plain, they are 66 and 67 which is younger than most of my friend’s parents. And they have not been together for the last twenty years.

I also have two surviving siblings. My family was rocked by severe grief when I was only 9 years old, when a younger sister died from cancer.

People don’t know how to deal with grief, so they stay away. Apparently ignoring a situation that makes people uncomfortable, makes it easier. So, our family pulled through and when I was a month shy of my 16th birthday there was another baby in the house.

There I was at 16, a full-time student, working a supermarket job, 15 hours a week (Yes! I was a checkout chick) and changing nappies and babysitting. And preparing (like there was any time) to spread my wings to move to study.

I should point out over Christmas, I had several jobs to help save for College.

This sister is now 28 and living back at home with my mum in the country.

It’s hard to bond with this sister as she has been raised by mum only from the age of 7 and while she moved out of home to study for a few years, she’s now back at home, working and saving for the things in your 20’s. Like travel.

I attempted to bond with her over GOT (Game of Thrones).

Game of Thrones

She watched the 1st season and decided she wanted to read the books, then mum decided to read the books before they would watch it together. And I’m out…

My older sister actually lives closest to me, about an hour away and I see her less than 5 times a year.

She and I lived together twice in my 20’s and to say it didn’t go well, would be an understatement. Other than I didn’t get a real job, I’m not completely sure what I did wrong to offend her, but when we are together, it’s hard…

Sisters