It often doesn’t occur to people that despite me not being able to return to work, they wrongly assume I do nothing all day but sit on my butt. Ok, it might be slightly true, but people don’t know how hectic my days often look.
I’ve had some days look so hectic I’ve had deliveries being collected from my home while I’ve tried to jump in the shower and then I’ve had to make a call while in the shower so I can relieve someone else’s stress. My carer holding the phone with the shower screen door open and mopping the floor! This is not why I don’t do video chat, because sometimes everything seems time critical.
Thankfully, that particular day, the person picking up the delivery met me in my PJ’s but left thankfully after seeing me fully dressed ready to go seize the day. Ok, going to do adulting, not so much seizing the day.
So, today, best of intentions to go do things. Made some calls to make sure all the balls stay in the air and I maintain something of what I had yesterday.
Had a great day yesterday. Had an extra few hours with a carer and went out to return the hipster paper shredder I purchased just before Christmas. Not a good sign at all.
I define adulting as making decisions. I’m not even talking about good decisions versus bad decisions, but just decisions. Adulting in the other form is putting on a bra and wearing shoes ie, any day I leave the apartment.
For the people who don’t have disabilities, you take life for granted. You who have cars and jobs, family that care.
Fuck Me! You don’t know how lucky you are. Then, what? You can travel and have holidays. Shut the fuck up. We do not need to hear from you.
Reasons why Helen should not blog when she has the sads. I intended to write parts of this earlier before the cause of Sally the shit that led to the actual “Sads!”
Yesterday, I had to decide about whether to bother putting on a bra or not. This is generally half the part of Adulting, bra and shoes means I’m going out. As you well know, yesterday was a Sunday and I don’t do Adulting on Sundays, I didn’t even go out. I’m not talking about Out-Out. I just mean leave my apartment.
As you might have gathered my birthday last October set the tone for both Christmas and New Year. So, I planned a Ladies High Tea.
Lunch thing with my Real Family and that’s my carers. All my carers bring me a little something different. They bring me stories, family, friends, and treats. And I share their stories between each of them. Yet they rarely encounter each other. I share their stories as I am the water fountain in the office tearoom and I’m the holder of the peer support opportunities. So, it was finally a chance to hold a Ladies Lunch.
I even pulled out the Fine Bone China and the French Gourmet Side Plates. We started with the savoury. Homemade sausage rolls, triple cheese croquettes, arancini balls, even cheese and spinach and some other pastry things. The sweets included the ginger Christmas pudding I had yet to get to, the chocolate and orange Christmas pudding, the scones one of the ladies bought to go with the hot jam donut a friend hand delivered before Christmas, with whipped cream. Ginger kisses and the brandy snaps I didn’t get to over Christmas. (These are still uneaten in the fridge) I have been chipping away at the contents of the fridge for weeks and alas, still not getting anywhere.
One lovely lady dug around in my fridge for something, I had to direct her to the crisper. FYI. That’s the section or drawer at the bottom designed for fruits and vegetables, or in my home the containers of things that don’t fit anywhere else. Then when the girls were all departing the mother-load Brownies were still in the crisper. Guess we know what I’ll be sharing out for the next few weeks.
Finally, I should mention my carer in the morning did point out, I didn’t need to bother with the bra since they had all seen it before. Great to be roasted by people that know me the best.
I did wear a coloured T-shirt the girls wouldn’t normally see me in. I bought a few cheap T’s this early and I wouldn’t go past an aqua/teal tee that was everywhere in the men’s section of Big W. I don’t go there often, but it’s where I get my standard black summer pants.
It’s after midnight as I’m tapping this out on my iPad and not long ago, I realised some gifts remain under my tree. A particular carer had been working her other job and it had been too busy to get away. I had suggested I could call in a bomb threat, but we all know I was kidding. There are plenty of treats saved for all the others that could not make it. Note, the gingerbread house one carer delivered before Christmas She said it took five people to make it. It’s going to take more than that to eat it.
So, however you spend your time with family sometimes the people that love, respect and take the time to understand you are not the ones related to you by blood and as a few of my invited guests had not been able to attend I would say, I definitely want to make this a more regular event.
Hell onWheels/Life One Handed 