Chronic Pain

All posts tagged Chronic Pain

Chronic Pain

Published October 6, 2025 by helentastic67

Chronic Pain

Think I just became a poet. 

We push and pull. I think we weigh our options every day.

We push and pull.

We borrow and loan.

We do this all alone.

Look, I’m a poet.

I wrote this comment on a social media post. I thought it was too good not to share on my own platform.

Don’t think poetry is my bag. To be honest.

The Things I Missed

Published December 16, 2024 by helentastic67

The Things I Missed

After the recent radio interview, I recalled other things that add to my disability, even I just take it on the chin and get up and keep going.

Shortly after my disability, I had a little fall at the front of my home. My left foot got caught behind the supporting post of the fence to the balcony of the front veranda of the terrace house. It was a ground floor only terrace before you get too excited. and when I fell, I hit my head against the brick wall, also hitting my left shoulder. When I fell, I hurt myself so much that I let out a mauling noise my mum heard from the lounge room, coming to my aid. She called out “what have you done now?” As she walked down the hallway, I levered myself up using the gate under my tummy to get my feet under me then stood up.

Across the road the friendly neighbourhood lookout was on his chair on his balcony. He looked poised to get up and come to my rescue. I waved him away that I was ok. My mum was only down at that time because I’d been in hospital having had my disc-bulge surgery. So, my shoulder has forever been dislocated, or Sub-Luxed. But not. Are you confused? Yeah, me too.

My shoulder is out more than not. If I’d hit my right shoulder, it would have been knocked out of its socket. It would have been put back in, had surgery, strapped up. It would have gotten better. But my left shoulder? It was pushed out of the socket, but the shoulder muscles stretched to move with the shoulder and because those muscles act like an old elastic band they stretched and the muscle tone no longer exists to hold the shoulder in place, if it was put back in.

Early days I went to emergency, I went to the counter and told the nurse behind the Perspex glass why I was there, I’m good at this stuff these days. FYI: Use all the trigger words. I’ve got an ABI and I was there this time for a dislocated shoulder. She turned towards the back of the staff area calling out “dislocated shoulder!”

It was rather amusing really; I was seen to eventually. Lots of “Does it hurt?” and surprised because it doesn’t but it could be on account of my complete left sided hemi. I have limited sensation on my left. Who knew that would come in handy? Fuck all that could be done. I was given a sling that barely seemed to fit and sent on my way. Basically, mum encouraged me to go see a shoulder surgeon.

I finally got to see the inside of a beautiful building in The Avenue in Windsor and he effectively started with “Now, what’s wrong with you?” and I asked him “How long have we got?”

He told me surgery wouldn’t help as I didn’t have the muscle tone to keep my shoulder in place and surgery would give me secondary problems across my back. When I’m out I wear my left arm in a sling called a Cuff and Collar, or a Collar and cuff. Physios all look to each other when I enter a physio/rehab clinic like who is going to explain to this one why we do not prescribe to wearing those, I remind them I’m carrying around dead weight that drags and pulls on all the muscles up to my neck, adding to my migraines and the added secondary problems I think I have already across my back. Seems I got those without surgery.

So, if you haven’t got it sussed already. Problems arise all the time you seek treatment, sometimes those issues are resolved, but there is always the potential of other undiagnosed problems you don’t yet know about and you are always needing to do the Pro’s versus Con’s game to work out if you fix the thing and hope there isn’t something else around the corner? Or can I live with this and for how long?

Chronic Pain

Published March 10, 2024 by helentastic67

Chronic Pain

So, here at 51, I’m learning new things all the time about chronic pain. I have a terrible sleeping pattern. If you didn’t know? It’s terrible, I love a good afternoon kip. I try to keep it just to the weekends, but it’s not always a given. It’s not seven days a week, most people would blame my years of working in hospitality. I always thought working in clubs had its own category, but apparently, it’s lumped in with restaurants and cafes.

Then, there’s having a brain injury. Also, messes with your sleep. Then, disability, depression, taking anti-depressants, etc.  then the racy Lady Hormones. Must I go on? I mean, I hear rumours about people getting eight hours of sleep a night. I mean, who are they? They must be killed.

But the eating. I didn’t know fitting in three meals a day every day was hard for people with chronic pain. I just thought it was just me. I am not a morning person, so I sleep later.  I therefore eat breakfast later. I have a light breakfast then get out and do stuff. I don’t prioritise lunch. I’ll eat lunch late, then I’m full. I skip dinner a lot. Sometimes, I’ll have the motivation for dessert. If that’s ice cream, because that has a separate stomach, right? Like, cows have four stomachs.

So, I know my brain and my body is constantly going between I’m digesting, going into a food coma, and I’m happy, but too full and it’s all a vicious cycle that I don’t know how to change.

Did I mention, after my kip on a Saturday I have my later lunch so much later, people have been known to comment that I lived a rather bohemian lifestyle? Yeah, that happens.

Note: any suggestions of killing or murder is not an actual threat intended to harm. Do not go and kill people that sleep better than I do. Just gently nudge them and remind them they don’t know how good they have it.

Family – Part 1

Published February 18, 2019 by helentastic67

Family Part 1a

Family – Part 1

As you may well imagine, I have a network of people I know with brain injuries and the simple thing about brain injuries that there are no two alike. No diagnosis is the same, the same treatment, recovery etc. Finding? Don’t get me started on the finding. However, suffice to say I recently heard one in my network say her settlement date was looming. I’m sorry WTF?

Settlement looming

They still live at home, while my age they haven’t lived out of home and when they visited my home some years ago, she wandered around asking if each bit of furniture was mine. Everything in my home is mine. I don’t rent furnished homes.

Still living at home

So, I wasn’t sure how she could afford her own place in such a great location, however when discussing this conversation with another her reasoning was simple.

Great location

“She said, her family are assholes.”

For all sense and reason, I think she wouldn’t argue with me when I say for what she has told me, her family is the same.

Family Part 1

I know she recently told me her family and cousins all went away for a weekend of a week and didn’t invite her. Huh? What?

Family weekend

When she asked why, she had been overlooked? She was told, because of her chronic pain, they thought she wouldn’t want to come.

Chronic Pain

Now, let me just suggest, when you suffer chronic pain, it’s never ending, no matter what you do or how often you can be guaranteed it will return and be with you forever. No matter where you are.

Chronic Pain 2

So, if you swim, do yoga, take pills, sleep a lot, you will find a way to do whatever you need to, to cope and sometimes a change of location makes all the difference.

Change of Scenery

Chronic Pain

Published September 7, 2018 by helentastic67

Chronic Pain

Chronic Pain

Remember when this

Webstercare Pack

Remember when our grandparents had these and we thought it was a sign of being old?

Grandparents

OK, I’m going to be blunt

WTF happened?

WTF Happened

Since when was 40 old?

40 Years old