Hot off the Press – 31st July 2017

Published July 31, 2017 by helentastic67

Hot off the Press 3107a

And another week has passed and I’m wondering what a Normal week should look like? Monday, saw my shrink. I do love the adventure of going to the city, doing a little hunter/gather and ticking a few mental things off my list.

Mondays

Ironically Tuesday crashed and burned, did not have a good day. The flattest, saddest day I’ve had for a while. Just couldn’t do Person, let alone adult or human-being.

Crash and burn

Sick of family not doing what they have committed to, some family not helping at all and other family forgetting I live alone without so much as a cat! They dump their attitude on me! Always makes me think of when some old lady(parent) cries that her beautiful son has died by their own hand and didn’t even have the decency to leave a note to say why? Seriously, going back to bed until I’ve had enough sleep so I can better deal with the day! (as the roadwork continues outside!)

Wednesday, comes together nicely despite no Young John to tease me and scoop me up and make my life easier. I actually scootered a bit on Monday, then got around by tram, train, lots of steps on my pedometer around the city before another tram ride home.

Wednesday

Thursday, roadworks a constant out on my street, I had a much nicer massage at home from my lovely Caroline. I made sure the rest of the day was very low key.

Thursday

Friday, a newish carer took me out shopping, no pet shops this week sadly. Tried to not stress out my new carer I’ve got for the next month of Fridays. She is young and some of her giggly humour reminds me of my younger sister. She has a little fresh wit I like from my carers.

Friday 1

Have been on the serious Provo-trail this last week or so attempting to save some money, or catch up on rent. A friend advised the best way to save money is to not buy food! What the? You heard!
So, I’ve contacted the two major not for profit welfare agencies. Yield? $60 of which I think the checkout chic may have kept $20 of it, as it did not come off my groceries and I still spent some of my rent. All the bills are paid and the healthy pills restocked. So, now to catch up on rent.

Friday night I was out for dinner with my Boo. Wait! I haven’t been hiding anything. My Boo (sweetheart name) is a I lovely gay friend, and I had been unable to convince our friend Damo to come out. We went to a Greek restaurant and while the entree was ok, the main was substituted for a more expensive option. Not going back there.

Greek menu

Really want to go visit George at Helenic Republic and not just because it has my name on it!
My Boo once worked for the likes of Gordon Ramsey but now works in the Disability sector. He politely informed them what we had ordered versus what they gave us. They looked at me as if my ‘Date’ was trying to show off and that I was dating the wrong guy. Nice, right? My gay friends are the straightest looking men you will ever meet and the benefits for me is I know they like spending time with me for my stela personality.

Have ticked off 5 plus comics this last week. I started a sixth but it got dark. Sunset is around 5.30 at the moment and it snuck up on me. Looking forward to the spring blossoms outside my bedroom window just around the corner. Don’t plan on moving until then. Not that I have seriously been looking.

Forwent the single girl date night this week as I was getting into a show I couldn’t stop watching. You probably realise I watch a great deal of TV, it’s my thing. It’s how I switch off my very busy brain. It’s what entertains me and often how I mark time passing. Sounds ridiculous but…… So, I’m always behind. The distraction this week I will describe as this; Netflix, Baz Lehrmann, the Bronx, Late 70’s Disco and the Black Music scene that later became Hip Hop. Think Beastie Boys but black and all the classic 70’s clothes, cars and graffiti. And then you have a show called the Get down. Only 11 episodes, the first 90 minutes long and the rest an hour each. I know some people won’t commit to watching a show unless it’s more than a season however I understand this show was so expensive to make they couldn’t do more than a season. Baz Luhrmann does a great job though you can never say he doesn’t. I think the soundtrack would be a must have. For something very different from Helen’s normal.

Get down

The weekend has ended with a rare but welcome visit from a friend who lives hours away, but when working in this part of Melbourne for a day will come and stay over at the Chateau de Helen. Have I mentioned I’m lucky I have a spare bedroom? Single bed but….better than nothing. Phillip, I’ve known for 20 years from when he and his wife owned a toy shop in my country town that I grew up in, at a time I lived back in that area for two years in the late 90’s.  His kids were just little kids then but now are all grown up. Phillip is often my tech-support and while I barely speak Apple he has a PC brain. There is lots of disrespect for Apple and lots of me telling his where to go. But between the two of us, we upgrade and de-bug my laptop! And he’s off to bed hours before me. So, here I am writing this post before I start my wind-down. Supper and a Cuppa T, I think and maybe I might make my curfew of 1am. Closer to 1 than 2 isn’t really getting 1am………but I’m trying.

Computer wiz

My left shoulder is hurting, I’ve obviously done something. I can’t feel a drag of the muscles over my shoulder and down the front of my neck. Think I’ll be asking my Chiro to tape it this week. She prompts how much/where? I will be suggesting she put layers down, pull it up and put it just everywhere, front and back of my left shoulder prompting a laugh from her. “Just put it everywhere!”

Shoulder

To another crazy adventurous week. Trying to get the digits up on the pedometer to make Young John proud.

And hoping I get that final follower to get me to 100, not that I get that much feedback in the form of Likes, I know I have my small number of serious followers who like and comment. To you few, luv your work!
Cheers,
H

Good week

Real

Published July 28, 2017 by helentastic67

Get Real

Real

Let’s talk ‘REAL’ for a moment. Will I ever get the use of my left arm back?

My Radiologist, who did my treatment, told me yes, I would. The Physio specialist upon my returning to him wondered why I was back and asking him to help me get the use of my arm back, he kinda expected me to read between the lines, when he told me he had been doing “this” a long time.

Physio

A few years ago, I saw a younger OT chick who didn’t sugar coat it when she said “Yes!” You will get the use of your arm back, but you will never get the strength and dexterity back you had before.

OT

Ironically, I didn’t have much “before” as it was…

I think realistically, if I do every exercise I’ve ever been told to do every day, several times and the other one’s I’ve been shown to improve, if I do all the computer/gadget based activities, commit to extra tiredness and migraines every day, it will improve some.

Realistic

Someone suggest – why not have my arm amputated? To be clear, I couldn’t be offended. She was a double amputee and she had, had to choose to have both her legs amputated!

Apart from the obvious, that I wouldn’t ever know if I could prove that specialist wrong if I had NO left arm to rehabilitate, I imagine my clothes would not sit properly. I will get even more weird questions and I would instantly go on a diet and lose 5 kilos (I don’t know how many kilos does one of your arms weigh?)

Specialist

It’s the wrong way to lose 5 kilos.

Weight lose

Today’s Lunch – 26th July 2017

Published July 26, 2017 by helentastic67

Todays lunch

Well, its Hump Day again!

Hibernated yesterday and had the kind of day I was threatening murder. Not mine preferably just other people.

Bad mood

So, today’s meal is another Arancini with Bolognaise and a standard side-salad. It’s like a saucy-meaty risotto with crunchy goodness on the outside.

Lunch

And thanks to my cheap-ass coffee rewards card todays coffee was complimentary, with the little chocolate Mignon. So, yum!

Complimentary coffee

Today I’m writing a post so with plenty of time I might have a second medicine. (Latte) Then I can speed through the rest of the day!

Woo Hoo!

Cheers,
H

Hump day

Hot off the Press – 24th July 2017

Published July 24, 2017 by helentastic67

Hot of the Press

Hot off the Press!

Very happy that I’ve followed through on my commitment to provide a current snapshot of Life with Hellonwheels. Going to guesstimate it’s now 2 months.

In recent weeks, I’ve attempted to make a serious commitment to get to bed early. You will already be aware I am NOT a morning person, unless it’s between 12am and 2am! So, attempting to set a realistic achievable goal of 1am, I failed every night the first week, although, if 1.04am, I consider that a win! The last four nights I’ve managed to get into bed before 1am and I can’t wait to get an eye roll from Ms Jillian tomorrow for my monthly head-check. I will get lots of steps on my pedometer to more than make up for it.

Early night

Have had a very busy week and while I usually see my lovely Young John at least three times a week, he’s off to Greece today for at least five weeks with his wife Young Betty.

Greece

As he never charges me, so I have to consider realistically which of my appointments I can live without. I now need to taxi ($$$) to appointments or rug up and walk to the tram and cater to the fact that I will get wet. I can’t use both my walking stick and an umbrella.

We are over the halfway point in winter in Melbourne but this is the wettest part of winter and the start of Spring.

Thinking to do like a bear and hibernate. Plenty of TV to watch, currently watching some Hawaii 5 Oh! To trick myself into thinking it’s not so cold. It’s not working.

Hibirnation

Oh, the start of the week saw my mum here for about 24 hours. This week both my parents celebrated their birthdays. 68 and 69, I think. Young compared to many of my friend’s parents.

Happy birthday

Visited the pet shop again to check on Ralph’s fate. He had been adopted the day before and another cat had also come and found a new home. Another to arrive that day and still no new fur-child for me. Sad face. But the trip to the pet shop revealed there will be a Cat Lounge opening in August in a neighbouring suburb. FYI: Lounge presumably is a fancy name for a cafe, in a suburb I wouldn’t consider fancy. But until I move and/or get my new fur-child I foresee myself being a regular visitor.

Fur baby

The drama of finding carers has continued. Last Monday I went to the top and sent a polite but brief text to the CEO (what? He told me I could call him!) and within an hour I received an email of my roster. So, definitely doing that again.

Still adding to the mental list of how many carers have seen me naked. The least favourite thing about having and needing carers to do the most simple and mundane of tasks. I’ve decided to cancel four of my FP (food preparation) shifts this week. I need a break from the rostering nightmare and staff changes. If I have to micromanage someone I might as well do it myself. If it’s something I can’t do one-handed it can wait.

Naked

Still no new shoes to speak of. Starting to get murderous thoughts at the powers that be ‘getting in my way’.

The NDIS is supposed to be life changing. Then why do I have blisters on my toes? Less travel assistance and I am forced to trim my own fingernails on my left hand until I butcher them as I don’t know how short I cut them until they hurt! My chiropractor put my rib back in and it was bruised for days yet, that was something my CM decided warranted an incident report to assist me getting my monthly chiropractor bill covered. Here’s hoping.

NDIS

Lastly, my anniversary White Tail Spider bite flare up has returned. So, it’s as itchy as hell and the skin peeling is about to start again.

White Tail spider

Oh, I got through three comics this week and also filed away the ones I’ve read this year. Going to need a new achieve box soon. I’ll try to read a few more comics before I make my next pilgrimage to the comic shop. I do this every three months.

Comics

To a less chaotic week ahead!
Cheers,
H

Have a great week

Review

Published July 21, 2017 by helentastic67

Review time

Review

Because I don’t have enough on my plate! Remember all those things I was advocating? Well, shit just got more real!

Who wants the purest definition of a Permanent Disability? Well, Centrelink, the Government agency that pays my Disability Support Pension. They want to review my pension.

Centrelink

This also requires me to attend a JCA appointment. Sorry another acronym. The worlds in full of them. Job Capacity Assessment.

Firstly, they head up a staircase, I stay at the bottom and say to her (It’s generally a her) I don’t do stairs. She comes back down and we both go up in the lift. It’s like the first test to see if I’m really disabled. One point, Helen, JCA staff – zero.

Stairs

Hopefully they will assess my specialist reports and meet me so I can explain what it’s like just to sit in their office and they will be happy. Permanent is permanent.

Well, as reported recently that Stupidlink did decide I was still eligible for my DSP, it’s just that it took them 18 months to work this out? Maybe not quite that long but it felt that long.

As I like to explain Brain Injury. You can’t unscramble an egg!!!

Unscramble eggs

Today’s Lunch – 19th July 2017

Published July 19, 2017 by helentastic67

 

Todays lunchSo, lunch is early today. Sadly, Young John is off to the bank. To get a loan, so he and his wife Young Betty can go visit her parents who are not well.

I wish I could help him.

It is what I refer to in Melbourne today as Full-Winter! I am wearing my Marino wool jacket and my heavy jacket with my hood, add a Marino wool scarf and my cuff and collar I resemble an Eskimo.

Melbourne winter

Not looking forward to seeing my chiro today. I have a rib out and when it goes back in, it hurts. Then when she massages the muscles around the same rib at the front under my left ‘girl’ it tickle/hurts. I am often grabbing my chiros thigh when it gets to be too much. Kinda “you hurt me? I hurt you!” She will say, “Mmmm, That’s good actually!” Making me thing I’m doing it wrong.
Anyway, the day goes on.

Hope your Hump Day is going to include a coffee and some delicious food.

Happy hump day
Cheers,
H

Today’s lunch is my winter favourite.
Zaffarino Arancini with side-salad.
With the medicine. Latte.

IMG_3140IMG_3141

Cheers,
H

Hot off the Press – 17th July 2017

Published July 17, 2017 by helentastic67

Hot off the Press

Just an FYI; received two proposals for marriage last week, on the same day. Like I’ve not waited 44 years….ok, maybe not the first 23 or so….but the last 20 sure and got them both in the same day. One was simply because I made minestrone and didn’t stuff it up.

Gave some to the lovely gentleman Tony previously mentioned and the second offer came from another gentleman for a reason I cannot even recall. Both men old enough to be my father! So, not offended. Let’s move on………

Story for the week re the Place I go? Previously, the crazy woman who threatened me? This week a lady was wandering around in her winter jacket (only) while she ran her clothes through the washer/dryer. She kept using the washer then the dryer about three times so she was there all day! With the machine busy all day and proceeded to make a mess of the bathroom (there is a shower there) and she managed to flood the laundry twice. The place survives with one underpaid staff member and volunteers. This woman could not be reasoned with, she would not clean up after herself as she felt she wasn’t paid to clean so, she almost had the only paid person on site in tears trying to reason with her to leave and take her presence elsewhere. I was in the office filing away client files (mine included) helping any way I could to lighten the staff members workload. I even did a little parenting since grandma wasn’t doing it. I do grumpy parenting under these circumstances by the way. “No! No one’s using that computer. But go out there and stay out of the way!” I might also have ended up sitting on the floor in tears but luckily my day ended by being given a lift home. About 3-4 suburbs away.

Laundromat

We eventually paid the terrible laundress money that had been donated that day so she could take her wet clothes to the local laundromat to dry them there. She even had the audacity to demand change for the dryers. I later learned her mentality is due to alcohol related dementia.

So, everybody put down those glasses and I have been starting to consider alcohol an affordable solution…..

Also attempted to propose a foodie gathering with the ladies in my family. My mum, younger sister and my older sister with her partner. Suggested a gathering so we don’t just all see each other together once a year if we are lucky.

I offered to cook my amazing Chicken Veggie Lasagne. At least I got responses despite not the ones I had wanted. So, I might be making my lasagne for my friends instead as my family gathering is not going to happen. Not surprised but still disappointed, everyone in my family has someone else except me. Feeling like an orphan.

Chicken Lasange

Finished 2 comics this week! I read both in a single sitting for each which felt like an achievement however I’ve obviously been churning through all the A’s -B’s and having just read a season of Willow from the Joss Whedon. I’m way behind still. The final Willow Comic Season, had an advert for a Comic Con….Dated 2013! Grrrrr……Just when I thought I was getting somewhere!

Also had company for my standard Single Girl Date Night! I referred to us as the 3 Amigo’s watching, you guessed it “The 3 Amigo’s!” I suggested to the others, to work out which actor they felt they embodied. I ended up Martin Short but, I’m not complaining. I haven’t seen the film in years, but recently added it to my collection. Now I have the tune My little butter cup song in my head!

3 Amigos

My guests fell asleep sitting up on the couch before 9pm! After the film ended and their kip’s over I fed them. Everyone was happy! They departed by 11pm.

In recent weeks, I’ve learnt the meaning of the term ‘False economy. For example: 1. An NGO (Not for profit/None Government Organisation) self-advocacy group has been funded nearly half a million dollars just before the end of the financial tax year because the government had a surplus. Now, that agency has been given that funding to roll out what they do in Victoria but in the other States as apparently Victoria is ahead of the curve and the other States are behind, and they will get it done. However, in the following years they can’t expect the funding to be there to help get the work done or keep the ball rolling. They will need to tender for ongoing funding.

False economy

My firsthand experience of the false economy is that my Case Management organisation who also provide the bulk of my carers these days has not been particularly efficient and as my NDIS package was not correctly implemented (not getting my shoes, etc) the company has offered to find the money for my shoes to keep me happy. Little does the guy who suggested this to my Mum to appease her know I need 2 pairs of shoes and they cost AU$460.00 a pair! But they cannot seem to fix the communication issues in their organisation so I have a roster every week for my carers no more than two carers in any given week. Lastly, the lovely newly qualified lady from the Rio/Remedial clinic came to give me a massage on Thursday. I put on some lovely soothing music. Dead Can Dance.

Just as we got started, out the front of my house some overdue roadworks started! My council has been promising speedhumps down my wide street to slow down the hoons for years! Then down the back someone started some gardening with a Chainsaw!!!!

Sweet Jesus! I was neither happy nor relaxed! The Universe did not get my memo….. for peace and calm.

On Friday, while out shopping with my carer we visited a pet shop in a neighbouring suburb. It’s the kind that has pets for sale bunnies, fish. On this occasion, a kitten curled up fast asleep, I let it sleep. It was a challenge as they usually have a cat that has been rescued, fostered by a crazy cat lady in the countryside to be rehabilitated (my word not there’s) and their health attended to. Then transported off to pet shops for sale to living pet owners.

Ginger cat

This is how I came to meet Ralph on Friday. Ralph is a 2-year-old boy, ginger and white, long-haired. He is a very big boy. I asked Mark if he would get him out of his 3-tiered enclosure so I could do more than beg to scratch his head. He was inundated by hand from everywhere prompting me to ask a man (whose daughter was patting him) if he would give Ralph a good home. He confessed they had two cats at home already so I continued to introduce myself to young Ralph. Luckily, Mark (staff) lives in my street so we discussed renting in the area while I managed to get a headbutt from Ralph. I suspect Ralph is a Maine Coon breed, but I don’t think they know this. Mark told me the long-haired cats get snapped up very quickly there. The last cat they had was there a month, Ralph had arrived only the day before. These cats are vet checked and neutered. And cost only $120. My carer and I stopped for a coffee break next door and I rang my mum. I really miss sharing my home and coming home to another living breathing creature but mum is convinced I’m not getting another cat until after I’ve relocated.

Again, I’ve come to the conclusion I won’t find anything cheaper of a reasonable size where I won’t go bat-shit claustrophobic crazy, so I want help to be able to afford to stay. I look to my mum to encourage me to have another cat but she is not very encouraging.

I have a wardrobe full of clothes from my old life I want to sell. I’ve recently been in pursuit of some consultancy work. To help me afford the things I need but cannot afford but it’s hard to convince people with an ABI who have plenty of funding how the rest of us live. He keeps offering me work telling me how much he needs me but if I do any work, I risk losing all of my income and I can’t work enough to cover what I would lose. So, I’ve started to withdraw my advice and energy.

I’m finding while not financial I get some great rewards from my blogging community even if all I’m doing is advising someone who hasn’t left the house in 9 years, how best to utilise their carers. She now gets carers because I asked her what she was waiting for. Her blogging is not as prolific however her tone is clearly more upbeat.

So, again all I can hope is that this week is not as stressful and I can read more comics.

Cheers,

H

Good week

 

Spelling

Published July 14, 2017 by helentastic67

Spelling

Spelling

I hate when I spell something so badly, even the auto-correct on your phone can’t help me.

I have been known to suggest ways I could be excused from having to attend an AGM because, Sweet Jesus some I’ve been to are boring as!

Seriously, like waiting for paint to dry or grass to grow. I always suggest I’d prefer watching paint dry, because at least you can get high on the fumes…

Paint drying

Anyway, I have asked what would be a suitable reason to get out of attending, said AGM’s in the future and suggested Chronic Diarrhea? But the retired teacher told me only if I could spell it correctly!

I can be a bit of a spelling Nazi, because in I’m old enough to know the benefits of using words and yet “young enough” to abbreviate when texting and such…

Spelling Nazi

I can’t tell you how many times I’ve held out my phone to someone telling them I have never typed in Canbu” because surely by now Not-smart phone you can tell I have a fat thumb and really meant to type Can you! Or the shorter version Can u?

Spelling mistake

Today’s Lunch – 12th July 2017

Published July 12, 2017 by helentastic67

Lunch

Today”s Lunch

Today’s usual arancini is looking a little flat for some reason. Kinda how I’m feeling this fine Hump Day mid-winter Melbourne.

Arincini Ball

Arancini has pumpkin & spinach today with the standard side-salad. And my medicine (cafe latte)
Side Note; When in Rome do not order a Latte! You will get what you asked for….a glass of milk.
Latte

There is something I really appreciate about the routine of my Wednesday. The crazy part of my week is done. From here to Friday there are generally no surprises.
Depression the standard today. Another day. Meh!

Cheers,
H

Hump day

Hot off the Press – 10th July 2017

Published July 10, 2017 by helentastic67

Hot off the Press 100717

Today’s Hot off the Press will be bought to you today by the letters ‘F’ for Helen’s favourite word and ‘A’ for my apology for using the favourite word with frequency that might upset some. Only for the events that were on Monday and all in context to what happened. Anyway, let’s move on.

Calendar

Monday, I was at my usual free community it’s health clinic only ever referred to as the Place. Trying to multitask and do my admin/emails while conversing with a nice gentleman called Tony and another lady joined the conversation. Well, she actually hijacked the conversation and it tuned out as I was getting a migraine. After a while, Tony disappeared and as I was not coping with being talked to (note, not with but at) I had asked her to stop. Several times, when she didn’t I humorously asked if she could talk under water? (Gets a laugh, yes. But apparently inflammatory) but I honestly thought it was better than a Shut the fuck up! Or outright Fuck off!……no? Tony returned with the woman who runs the place. She took a physical position between the other woman and myself. I had been aware she had been competing with me, but I had not been baiting her or responding to her so I didn’t realise she had been attempting to intimidate me by standing over me. Management seemingly came to my rescue and feeling miffed the other woman left. It was explained to me she has a very prison mentality and had spent 8 years in prison (wait!) for killing her husband. (And that is not the punchline)

Um, a new friend from this Place has said when you feel like your life is totally shit (paraphrasing) you go to this Place and then from what you see your life doesn’t seem that bad. It is presumed I should be getting my social community fix from this place.

I did attempt to explain to this woman why I wasn’t coping with her talking at me. I mentioned I had a brain injury and her only response to this was “everybody has a brain injury these days!” I honestly didn’t know how to respond. Note it would still be rude for me to have told her to fuck off or shut the fuck up! Go figure….and I’m the one with the brain injury.

I was given a lift home by said gentleman, after I joined them for some good social contact ie; joined them at the pub for beer. I had lemon, lime and bitters. Once home, coffee was had while my carer completed her chores.

Tuesday, went to the brain injury group I’m part of in the city for some Shanghai Doodle. (Think Chinese whispers but on paper) Good times, it seems even with only 8 people with brain injuries I still go home with a migraine. It would seem my ABI is not compatible with others in large numbers.

DoorwayGarden 1Garden 2Garden 3
 

 

 

 

 

 

Wednesday, you may have noticed a lack of my Foodie Post? I didn’t have time to tap out an email on my iPhone as I was busy with company. A friend who I have not seen in some years joined me and much discussion was had. Here is a picture of Ro with the (I can never recall the name, so I call it the) Salted a caramel thing………I generally only have it in my birthday week and it must be shared and accompanied by coffee.
 

 

 

Ro

I’m not too good with photography these days…

 

Thursday, had the day off. Making me a very happy camper. Still had calls to deal with in the never-ending drama of needing personal carers. I confess I had some fun at the expense of my young carer who got a tongue piercing. Making it impossible to understand her with her tongue swollen. I resorted to suggesting she throw me a few words and I would attempt to make a sentence from them. Couldn’t help myself.

I don’t have any unusual piercings, not my thing. But I found myself explaining to Young John why people might get their tongues pierced? That wasn’t awkward at all. Speaking of Young John, still got that damn song in my head. “Shuddup-a-your face!”

Friday ended with a large pot of bolognaise sauce in my slow cooker. Yield? About 8.5 bottles.
Which might explain why my left hip hurt Saturday. Some weird thing even the physiotherapists can’t explain. When I do too much or lift heavy things, I shouldn’t one-handed my left hip hurts. Yes, it super-awesome! Not!

Managed a whole comic this week, I know, only one, but I did get to replenish the pile in the lounge to get through in the coming weeks.

Single girl date night included the “Guardians of the Galaxy’ which I finally saw in full and much TV was watched. It sometimes feels like my appointments and visionary achievements (TV Shows) really do mark the passing of time and there is nothing major to report. Really feel like I’m treading water and not making any significant mark on this planet.

Guardians of the Galaxy

The weekend was spent otherwise off-grid. Just the way I like it and now it’s Monday and the crazy starts all over again.

Big week huh? I can do without so much excitement this week. Please?
Cheers,
H

Have a great week 1