Hell on Wheels

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Today’s Lunch – 14th February 2018

Published February 14, 2018 by helentastic67

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Today’s Lunch

Good Mental Health Day

Having to fight a migraine since Monday when I had a call from my mum while in the taxi. (Yes, I love her but we do not communicate well at times) and prompting Young John to ask why I let her speak to me so?

Cranky mum

Have had a final push with all things NDIS and it needs to be said, because on the upside and because my mum has likely now spoken to every single person at the NDIA, she squashed someone’s incompetence and stopped me potentially being blacklisted by the NDIA!

NDIS

Any wonder I have a migraine! So really intend to enjoy lunch today!

Today’s offering (forget the name!) is marinated Mediterranean vegetables with a side salad
and my medicine!

LunchMedicine

 

 

 

 

 

 

 

 

 

And if no-one has said it today? Happy fucking Valentines!

Valentines

Cheers,
H

P.S. here’s a yummy frozen yoghurt thing I had last Friday!
I’m converted!

Frozen Yoghurt

Cheers,
H

Off the Grid

Published February 12, 2018 by helentastic67

Off the Grid

Off the Grid

Today is Saturday and it’s a day I let myself go ‘off grid’. It’s a way to survive, I’ve broken so many of my own rules today.

  1. I turned on my mobile phone.
  2. I put on a bra (not really).
  3. I left the house.

I walked ten minutes to the tram and caught the tram to the city. (it takes thirty minutes) Had about four conversations by the time I got to the city. WENT TO MY FIRST EVER RALLY.

Taxi rally

It was a Taxi rally, or a rally for Taxi drivers to be paid appropriately for their Taxi licences. Oh Yeah!

  1. I checked emails.

Emails feel like work, without the luxury of sitting at a desk in an office.

These days, I maintain two emails. One for personal “stuff” and the second for blogs. (The ones I follow and the one’s that follow me.)

Emails need to start only taking four hours or less a day. This is why even when I’m on a tram between appointments, I’ll cull emails.

Multitasking, Multitasking, Multitasking.

Multitasking

I should mention the Pedometer on my phone normally tells me I collected twenty-six steps, which must have been from midnight and 2am when I take my phone to bed to charge.

Today, 2,810 steps and I don’t carry my phone on my person, so all the steps I did doing laundry, chores and baking after getting home.

Pedometer

Think I’m going off-grid tomorrow instead. Going to be sore tomorrow. Yeah you are….

Nearly thirteen years ago, I was doing a job that apparently required a certificate IV in work place training and assessment. While I had been and admin assistant, I did the work of a TPO (Training Placement Officer).

Admin assistant

I had twice attempted the course while I was in the role, but while I passed the practical I hadn’t had time to do the written.

After three years in the role, I was seriously shafted. Bullied by other staff who were incompetent and just didn’t want to do their job. Turns out putting your head down and getting on with the actual ‘work’ didn’t prove enough that you weren’t the problem.

Office work

In HR terms, I was the easier person to get rid of and worst of all, I was dumped out into the market place at a time no one in the industry was employing, because contracts were up for renewal. I managed to score a job with a TAFE with their work for the Dole area and they had me ‘Culling files’. The staff running around the office like chooks with their heads cut off and I could tell they were struggling however, they didn’t trust my knowledge of the contract. (How their business operated) so they wouldn’t give me any responsibility. They kept me as a casual until they knew what ongoing contracts they had.

I had to interview for a position back in the region I had spent three years working for the first orgainisation and I could manage the clientele very well.

Client management

The clients were all ages and the bulk of my workload was the “You don’t understand! I’ve been a student for the last fifteen years, I need to take a year off.”

Yeah! Damn eighteen-year old’s who think High School was going to be enough to set them straight. Never fear, I had a few clients that were the complete opposite, remembered not by name, but by the black Doc Martin boots she wore with purple laces.

Doc Martens

She had, had a job getting up at 4amworking with horses. She would do a job again with that kind of start time. That job gave me a half a day of conflict resolution training by someone who trained people at Quantico in the States.

There were some clients in that region when they left the office, we would sigh with relief, clean up the destruction they left in their wake and mutter to each other “That one! Clocktower with a rifle! Next week!”

Bad clients

Slight exaggeration, but still. The sentiment was not far off.

I made a little fib about ‘having’ my Cert IV for that job! They put me in an office without net, that was not fully set up. No networked computers. I had dial-up internet and I was on ‘graphics-heavy software’ and I was often the ‘Helpdesk’ over the phone to untrained staff at another office.

To make my point, everything was slow. My printer was also a fax machine and my phone.

For safety purposes, I should not have ever opened the door for anyone. I did for clients and I had to hope for the best obviously. More experienced staff who never came to my office rang for contacts I had maintained from my previous work.

Safety reasons

Once they had my knowledge and expertise, they got rid of me. Sorry, that was so long and painful, however trust me, that was the short version.

Termination

Next, stay tuned for a lesson on how to correctly wash dishes… No really.

how to do dishes

Human Resources

Published February 9, 2018 by helentastic67

Human Resources

Human Resources

I’ve been putting off a major decision lately because it means I’m about to lose all my friends. I guess it’s not so much a decision, but more about timing.

Major decisions

Because I now have the NDIS funding, I have been allocated hours for more Carers, many more hours. But I can’t use more hours with my current Carer Provider. I need to start using an actual Agency.

My Carers over the years have been supplied through my Council, who only want to provide me with five hours a fortnight. Seriously!

What are you supposed to do with five hours a week, let alone over two weeks! Not much.

Because I’ve held off telling my grumpy Council I’ve been approved for the NDIS (because they would drop me like a hot potato).

Hot Potato 1

I will lose my mind, training a bunch of new Carers, to be able to cope with me and have them, I’ve started filling in the gaps that my Council didn’t provide.

That means Tuesdays, Thursdays and Saturday, Sundays. The last three weeks I’ve had a shower each day on the weekends.

It’s a MIRACLE.

Miracle

I can shower myself. I can even dry and dress myself. But it’s exhausting and if I needs to wear a bra, I can get it on, but it’s never comfortable.

So far, I’ve had three new Carers, it seems there’s not many in my area and they are generally not prepared to travel for a shift shorter than an hour and a half.

I am much better at the whole HR-thing these days. (Human Resources) I’ve been getting Carers for about six to seven years now. My mum was very ‘keen to train’ my Carers, thinking it would be maybe, five Carers in a room and well, I don’t know what she was thinking.

I would love my current Carers (friends) to do a handover, but in reality, I get a new Carer, one at a time and induction begins the second they arrive.

Training

I’m friendly and inviting and while I show them around I show them the list of ‘chores’ I would like them to be able to get through while they are there.

Dishes get done, Kitty litter changed, rubbish and recycling get taken out all while I’m in the shower. Nothing too challenging.

Kitty litter

But the personality match is always just as hard as finding someone who knows how to wash dishes. (Seriously, stay tuned for my training guide on how to correctly wash dishes.)

Washing dishes

Today’s Lunch – 7th February 2018

Published February 7, 2018 by helentastic67

Todays lunch 0702

Today’s Lunch

Good Mental Health Day

Now, you all should be aware by now Melbourne is dealing with summer and while my happy place is 25 degrees, today it’s 37 degrees and I’m out in it!

Hot day

These are the days hellonwheels serves me best. Particularly because I had to stop at a post office to collect a parcel. And then when I parked outside acupuncture I had to ask the lovely Angela to take the parcel inside. (For security) I already take my flag in so it doesn’t get stolen. It’s happened once, it’s not happening again!

hellonwheels parking

So, then as I watched a tram go past I received a message from Young John, he couldn’t help me today! On that topic, was in the Young John taxi Monday when his wife rang. Young Betty told me they were not going to move back to Greece! (Thank God!) She calls him each day when she finishes work (she is a nurse) and they chat on speaker phone so I always get to give him some cheek and chat to Young Betty.

Taxi

So, back to lunch.

Today with limited time to scramble, I have a lovely pancetta quiche with side salad and my standard medicine. No pretty leaf on top today. Tobey must be at lunch. No! He’s on holidays! How dare he! (note, not a question)

QuicheLatte

 

 

 

 

 

 

 

 

 

And tomorrow is a brand-new day!

Good day

Cheers,
H

Smart Arse

Published February 5, 2018 by helentastic67

Smart arse

Smart Arse

People who have known me over the past 10+ years, they have commented on my sharp wit and that I’ve got the quickest wit of anyone she knows.

Sharp wit

Hello! Compliment. Right here…

There are people who treat me like I’m an idiot because I have a brain injury. There are many ways people comment on my disability. One particular consistent ‘opening’ is – “You look like you’ve been through the wars!” Which I received most recently today. I was a little wet from having to walk a short distance in the rain. So everything else is my base-line already and I didn’t feel the need to comment.

Through the wars

First time ever I came up with the best response, but not on the spot.

So, here’s how I will respond to that line in the future.

“Not a war, a battle! I won!

I won

Yeah! This is what winning looks like and then imagine what loosing would have looked like.”

I generally follow comments like this with a sharp look and a smile. So they know I do mean it, but that I’ve also accepted it.

Smile

Another older lady sat in the waiting room to wait for her taxi. She also had a walking stick, now she commented to me; “That’s the thing with stroke, it takes your independence!” I’m sure I’ve encountered this woman before, her name is also Helen.

Independence

I respond swiftly with ‘Ah, but it doesn’t take our sense of humour.’

I think I even put a little Scottish brogue on it in the tone of “But they will never take our freedom.”

Sense of Humour

Reasons

Published February 1, 2018 by helentastic67

Reasons

Reasons

Reason’s not to kill yourself… Yeah, Good times, seems I’m in a mood!

  1. Because if times are tough, if you can’t have, you won’t see the good things that might be right around the corner. I often wonder if this is all life is about? The constant agonising struggle for survival.
  2. My mum would be so upset, I often joke she would revive me to kill me herself.
  3. I’m looking to have to move again. I’ve been here 4 years, which seems to be my limit in the last 15 years and while I have 3 bedrooms (yes! A spare and a study), a laundry and a linen cupboard (who knew these were luxuries) my rent has become harder and harder to maintain living by myself.
  4. I’m an organ donor, harming myself means no one gets these beauties

Organ donor

So, moving right along.

  • Keeping in mind, I was lucky when I got this unit. It was the same rent as nice freshly painted 1 bedrooms in this area. Three-bedroom units are unheard of.
  • I’m also about to spend Christmas alone rather than be bothered to be part of Christmas holed up in the country with some family.

So, getting it together and putting my ‘Big Girl Pants’ on. Looks like moving might be imminent.

Big girl pants

Today’s Lunch – 31st January 2018

Published January 31, 2018 by helentastic67

Todays lunch 3101

Today’s Lunch

Wednesday’s Good Mental Health Day…

Luckily, I got to be here for a quick lunch yesterday. As once a month I see my GP in this neighbourhood. I was able to scribble down a post and as I’m falling behind in my written posts with still plenty to say.

Visiting Dr

So, yesterday’s lunch was the grilled Mediterranean vegetable quiche with a side salad and my medicine! I keep having the best of intentions to order a salad but they are popular and sold out by the time I arrive.

Quiche

Latte

 

 

 

 

 

 

 

 

 

Ah! Wednesday! Salad! It’s called a brain grain salad. I’ve arrived late today and it’s a bit cooler and schools went back today so it’s a little quieter. Thank God!

Brain Grain

 

Still got my constant companion, my migraine! Not thrilled. Actually, been getting to bed by 1am the last few nights. This morning I managed to sleep in until 9.30am when my Mepacs rudely woke me! And yet my left eye still hurts!

Migraine

Oh, and today due to time restraints and no young John, I can take whatever salad I don’t eat with me and work on my medicine and this little rum ball.

Rum ball

 

I will need to include a rum ball recipe because it’s that naughty yummy thing that we grew up making but you don’t make them all the time and yes, you must use rum!

Rum balls

Have a great day!

Happy Wednesday

Cheers,
H

Blame

Published January 29, 2018 by helentastic67

Blame

Blame

I’m not sure if it’s just Acquired Brain Injury (ABI) or the whole disability, but I find I get blamed for all kids in my family or even just my home. I’ve had some new carers of late and one is my new Saturday/Sunday lady. She wouldn’t come for less than 90 minutes, so I figured I could make it work by giving her some odd cleaning jobs.

Clean fridge

Nothing major, but on a Saturday, I’ve asked her to clean a shelf in the fridge (it will be all clean eventually) and other things that rarely get done (cleaning the cutlery drawer or cleaning the front of the kitchen cupboards). The second Saturday, after washing went on the line, I know she didn’t do any of the other tasks as she had found the new foodie magazine on the dining room table.

Magazine on table

She commented to me I really liked cooking and Donna Hay’s recipes were easy. When I remarked to my mum, she said it was my fault, I left the magazine out on the table.

Donna Hay

The message was rather scathing, I didn’t know where else I was to have put it, in my own home…

It’s my home, I don’t leave out bills, cash, bank statements. I’m wondering if anyone else experiences this?

I can’t wait until I get my next Neuro psych, I’ve had countless, but my mum is insisting on being there next time. (pointless/counterproductive) and she wants to be there for the debrief.

Psych

She says it’s so she can better understand my ABI, but I know it’s going to lead to me better understanding my behaviour and then changing it to suit the family.

Behaviour

Nearly fell over on the tram today, Yes! It was the day I was carrying that darn cool-bag, but still number 1.

Why do people who don’t fit the criteria to take up those seats with signage stating they are for people who are elderly, disabled or pregnant. While I’m here, can pregnant ladies not sit in my seat in their first trimester. Please! You just look a little fat, sorry. Save it until you’re nine months pregnant.

Disability seating

Today, I wriggled up by asking a young woman to hold my walking stick, being weighed down by both my bags. It took an effort to push myself up.

I put my hand on the wall behind the driver’s cabin and had to balance so as not to fall backwards when the tram lurched forward. I stumbled and a woman behind me to the right, screamed out that I had trodden on her foot.

Stepping on toes

She dropped the F* Bomb to describe how much it hurt. I muttered an apology, but I had struggled to remain upright and had thrown my right hand up and grabbled the headrail. The woman holding my stick looked at me concerned, I think she wondered when to give me the stick and I had to wait for the tram to stop. I will often lean my shoulder or hip against that wall of the driver’s cabin to get my balance.

Falling over

I had to ignore the woman who complained I’d hurt her foot. I had apologised and I think her feet weren’t anywhere near her seat and she hadn’t realised how precarious my situation had been nor did she care.

I did notice she didn’t look like she had any of the pre-requisites of taking up those seats.

I don’t know how I’m supposed to fix this situation…

fixing it

Why I Blog

Published January 26, 2018 by helentastic67

Why I Blog 1

Why I Blog?

If you have been wondering with a weird array of randomness, what Hellonwheels is all about? Wait no longer, this is why, here is the answer.

Logo Hell on wheels

Since my diagnosis in 2007? (I don’t know! It’s been a blur) I’ve met many people with ABI/TBI/general fuckwit-ism and it has led me to query, what means what?

Brain injury

Example;

When I first started going to ABI groups socially, because society loves to put you in contact with people with the “same” issues you have. (Please note eye-roll!) I walked in and young men and old flocked towards me, I felt like a Spice Girl in the mid-90’s. One guy, let’s call him ‘Fred’ (because it’s been a while) made it clear to take me under his wing. We got chatting, as you do and as you do you talk about your life before the ABI.

Spice girls

I mentioned my Club years and that’s always a big topic. But, push came to shove and after a little young woman joined us and I was introduced. Lovely younger lady, also with an ABI. Make mental note; got to be careful or might end up ‘paired-up’ with another numpty like me before long if I’m not careful. I didn’t say this reason/story would be simple so stay with me.

Numty

Totally worth it, Promise.

Over time, I participated in activities at this group and I supported people and they supported me, so all is well. Became friends with Fred and others outside this group. (it’s inevitable: stuff sticks sometimes) Fred had gotten his TBI from pure fuckwitedness (as I like to consider it) his girlfriend was lucky to be alive having been hit by a car crossing the street. But, unlike her boyfriend, she had not had a typical young adult life, like he had, had before his TBI, because she had, had hers at 17 years-old.

Fuckwitedness

He also liked to bond with me because I had been ‘there’ (Clubs/parties) and I remember it. I wasn’t drunk and off my face like nearly everyone else.

Overtime, I became a bit more of a mentor to Fred. I was friendly to his girlfriend, also she was none the wiser. He was also finding excuses to visit socially. FYI: I don’t socialize at 11pm at night, that’s my time.

Mentor

He even had a gay friend drop him over for a coffee one afternoon on a weekend and I was told to ‘look’ after him.

I hope you are getting that he seemed to have told people, I might have been a potential ‘whatever/girlfriend’ when in reality it was always a HELL NO.

Hell No

I decided to discuss this situation with a friend who worked in the industry who was familiar with all of us and our past history etc, her advice to me was.

‘Oh, you should go out with him, because before his ABI, he had four or five girlfriends at a time. Now he’s only got one or two.’

WTF!

Um, I hope you realise, I would not have dated more than one guy at a time before my diagnosis, let alone date a guy who thought he could date more than one woman at a time, I certainly wouldn’t now.

I am also aware I am no longer some Jennifer Hawkins type, now or before my disability, however I’m still not prepared to lower my standards and just accept some broken bit of road kill.

Body

Make mental note: Explain Helen’s definition of Road Kill later.

Road kill

So, back to my point. Yes, apparently it is said, people retain their personality after their ABI/TBI what did I call it? That they had before their (as above).

Personality

Now, this is why I blog.

If I’ve always had my ABI (AVM), have I developed this personality, because of my AVM or despite my AVM?

BAM! There I’ve done it.

Today’s Lunch – 24th January 2018

Published January 24, 2018 by helentastic67

Todays lunch 2401

Today’s Lunch 24/01/18

Wednesday’s Good Mental Health Day…

Today’s lunch is a little different today. I’m actually at a once yearly United Brains BBQ. It’s one of the Melbourne based brain injury groups I am on the fringes of. So, instead of food today, here are some pictures of people!

Ok, and maybe some food.

Sausage SizzleSteak Sanga

 

 

 

 

 

 

 

 

 

Always feel being at these kinds of ABI groups they could easily recruit the next season of Walkers for the Walking Dead here. There is always some numpty walking around drooling. I generally pick my regular faces to catch up with quietly. Even though I have one ear trained on what others are discussing. I then try to offer a few brief words of advice to help others. I generally don’t last long before I have a migraine and am feeling very seedy. I do still have my standard punchy/stabby day ahead.

Also, note photo of moi with a marrow? Ok, Larissa the artist gave it to me and. No matter how big they get she still calls it a zucchini. I grew up calling it a marrow once they got this big.

Zuchinni

#Helensnotexpecting

Also, the photo of the snag in bread? Most Aussie thing ever! Yes, it’s the long sausage in the square bread!

I really wanted to include a clip of a comedian explaining his take on some of our Aussie food things. His name is Ivan Artisteguieta and yes, I have written that name enough times today. He comes from Venezuela so his take on our food culture is rather amusing to us. He does a particularly witty take on our love of the sausage sizzle at our Bunnings hardware stores. Because they are there to raise money as a fundraising activity. That smell of burning onion as you leave a Bunnings on a Saturday morning gets you every time! However, he makes fun of us trying to put a long sausage into a square piece of bread or as we often refer to it as a Snag in bread. He points out in America and Venezuela where he is from they have long sausages and buns designed for such. So, I guess if you all luck out on finding anything on him online, as I did. Keep an eye out for him on the comedy circuit.

 

Australia Day/Invasion Day is this weekend so a good Aussie staple is in much need. That is the anniversary of when the First Fleet arrived in Botany Bay in 1788, and when the Aboriginal community see as the start of white man killing and abusing their people. It happened, I’m not suggesting it didn’t. I know I didn’t do it and I’m sure you don’t need me to get politically motivated about it here. If you would like to read more about the above here is a link…

https://www.australiaday.org.au/about-australia-day/history

My brain hurts however have a great day!

Brain hurts 1

And a naughty little custard slice I had last week.

Custard Tart

Cheers,
H