Life one Handed

All posts tagged Life one Handed

Today’s Lunch – 29th August 2018

Published August 29, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

First, I must share my adventures of yesterday. That being Tuesday. I went on a trip down memory lane! I went “South-aside!” That will mean much more when I get around to writing my post on basic 101 of Melbourne and many, many months before my posts catch up on the backlog I’ve already written. However, in short, I went to a part of Melbourne where I thrived back in my 20’s in Prahran and South Yarra! (Pronounced Prah-Ran! And South-Yarrah) Good times for sure! Chapel street once a thriving cultural shopping hub is now rather lacking and my friend Susanne and I went on a mission to A) Relive my memories. B) find me a new streetwear bag and without meaning to. C) unravel the mystery of why Chapel Street has died? (Many shops are vacant)

Adventure

Let me say, tick, tick and tick! Mission accomplished.

A. So many shops no longer exist! Sad face. One shop does still exist and when I walked in I was greeted by a very familiar face, bearded now and rather grey, he said he had only recently been thinking of me. It was Jeremy from Shag! (Not kidding!) the Windsor end of Chapel street became cool around the time Grant and Jeremy opened their pilot ship store back in the mid-90’s and I lived very close so often just after closing I would return and go upstairs where they lived at the time and Grant previously a hairdresser would do my plaits in the style I often wore in clubs and on one occasion a serious bee-hive! Also, around this time I decided only gay hairdressers should do my hair! Going to return to this methodology later this year. Attempted with Jeremy to give him the cliff-notes (short version) of what’s happened to Helen’s arm? Sorry, there is no short version.

Beehive do

B. Got my new bag in the last shop we went into and only $20. Done! (False alarm, the shoulder strap is not nearly long enough! Crap!)

New bag

C. We decided with the gentrification of the area and the obvious older population dying off, or selling up and moving on, a new generation has moved in. Apartments have gone up everywhere! I found the 90’s living in that area, the clubs, the street culture, the music scenes and perhaps the lack of the blond Kardashians, also the era where you would go out to dinner at one location and go to a club elsewhere, even a recovery somewhere else. Not even in the same area. Imagine being trapped in the one venue with the same people all night! This is the reality now with lock-out laws. Choose your own adventure gone to hell. In short, the yuppies moved in. Then complained when in the morning they would find someone had vomited in their doorstep and defecated! They would bitch/whinge and moan about it and the things that made the neighbourhood cool would disappear when rent would price the cool people out of the market! Hello, I’ve got my hand up! Lesson Number 1! If an area is really cool don’t live there! Go socialise there, party there. Then fuck off back to the suburbs whence you came.! Problem solved!

Yuppies

Anyway, eventually settled on a location for lunch and had great gnocchi with something-something beef and mushroom ragout, with shaved Parmesan. I know, I forgot, so no picture, instead here’s a beautiful picture of my fur-baby Mika!

Mika

D. (There is now a D) I did 8,000+ steps! Just to remind you a normal person should do 10,000 steps a day. So, having a disability and mostly I don’t get anywhere near that. Smashed it! And back in the 90’s I would have done more than that every Tuesday as it was the day I did my rounds on Chapel Street and Grenville Street, back in the day.

8000 steps

Tell me if you liked this extra little bit about what I like to call, Original Helen? Life from a lifetime ago. Before what life is like now.

So, while this has not even my normal offering on a Wednesday, it was a bit more into the life and times of Hellonwheels and definitely good for my mental health!

So, Today’s offering, a nice Moroccan chicken salad with turmeric and a little sweet treat called the Montague and Capulet plus my medicine!

Morrocan Chicken

Montague and Capulet

 

 

 

 

 

 

 

 

Latte

Cheers,
H

Hump day

Email Madness

Published August 27, 2018 by helentastic67

Email madness

Email Madness

There are many problems with being part of ABI groups for your social/advocacy/empowering blah de blah, or any disability group maybe.

ABI Groups

I’m really loathe to do the “Reply-all” option on emails. I avoid it at all costs. Because sooner or later one complete fuckwit does “Replay-all” and I get an email saying this – “That’s such a cool font. What is it?”

reply-all-fart

And I have to take a deep breath when I’m thinking “Why do I need to know that? C’mon!”

Sometimes, these are the problems that seem first world problems, but for me with my high functioning ABI, I can’t help it.

First world problem

Delete, move on.

Delete and Move on

TMI – Too Much Information

Published August 24, 2018 by helentastic67

TooMuchInformation

TMI

There are many times when discussing having a disability that in my last relationship, a relationship I started after my diagnosis and had no idea what life would bring, but before my actual treatment and disability, I had moments I had to suggest to him (he that is not part of my life anymore) where I may have disclosed a little too much to him and he couldn’t cope.

Oversharing

So, humorously I had suggested if I told him a little too much at times, we could have a ‘safe-word’, so he could quickly and politely let me know to stop talking.

Safe word

I’ll say, he never used, said safe word, but as it already mentioned “no longer part of my life”. So, humorously our safe word was “Sprinkles”.

Sprinkles

Today’s Lunch – 22 August 2018

Published August 22, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Another busy week, and struggling to get used to the new Wednesday schedule.  It’s my official Punchy/Stabby day!  Ow, it’s my lazy/I might get to my favourite cafe where they all know my name (no, it’s not called Cheers) and otherwise, sneak in lunch at my more local cafe near where I get stabbed!

Favorite Cafe

Mika has settled in, sleeping on the bed with me. I am gradually translating her different meows and noises. All I can tell is she seems to be calling me to go to bed in the same way Jamima my last fur-baby used to come out to the lounge room late with sleepy-squinty eyes with a meow that asked where I was and when was I coming to bed? She had generally been there sleeping for hours and my bedtime is so far past the normal bedtime……..

When are you coming to bed

Also, in the last week my lovely administrator has been responsible for Hellonwheels having a Fanpage  https://www.facebook.com/pg/hellonwheelslifeonehanded  My goal there is not to bombard you with my fun and very cute cat/dog/bird everything posts but to have the opportunity to chat and be in contact with anyone that chooses to reach out. I hope to share some useful tips on how to survive one-handed, without losing one’s independence.

So, today’s offering, Ortolani quiche with the side salad and my medicine!

QuicheLatte

 

 

 

 

 

 

 

 

Now, off to get stabbed! No rest for the wicked!

no-rest-for-the-wicked

Cheers,
H

Wednesday

Whose Job Is It?

Published August 20, 2018 by helentastic67

Whose job is it

Whose Job Is It?

“How is it my fault, I’m smart enough to know they are doing a shitty job for me and if I’m smart enough to know, what about those who are not smart enough to know.”

Smart enough

I’m currently experiencing something where (because I don’t have a name for it) I’m being under valued by family and thrown under the bus as having a ‘brain injury,’ my intelligence is being dulled so, I seem to need more help than maybe I really do.

Undervalued

Then it opens the door to people thinking they can perform at a sub-par or standard level and half doing a job. Am I meant to apologise or monitor my frustration or bad behaviour, just because I may make them feel guilty or incompetent?

Feel guilty

I hate to say I told you so, but when I push so hard to get ahead of certain issues, there is a reason. When the fit hits the shan (you heard me) it’s then your mess, not mine to fix it and you must give it as much energy and time that it requires.

Fit hit the Shan

No excuses from having put it off for weeks as other ‘things’ seemed more important. Don’t all of a sudden complain to me when I need to rebel and spend money on things that are important to me, so I can feel better.

Spend Money

I seem to be the only person who is abundantly aware all of my family would see me homeless, then help me financially or offer me a place to stay despite how ridiculous or unrealistic that would be.

Homeless

I feel sick to my stomach that my family cannot put all of their own ‘stuff’ aside.

Put stuff aside

 

Because Life is Short

Published August 17, 2018 by helentastic67

Life is too short

Because Life is Short

Because life is short, we should sometimes write about the little things that amuse us, that might amuse others. Rather than doom and gloom all the time.

No doom or gloom

So, this week I have been introduced to a new term for when a woman has her period.

I like the IT Crowd reference to Aunt Irma. If you are not familiar with the show, you just got homework. Wonder if my male followers read to this point.

Aunt Irma

The term I’ve been introduced to this week is called “Shark Week” I mean, on this topic in general, men can be such bastards. Oh, they think we blame everything on our periods, but if they had crazy hormones once a month and had just one full on menstrual cycle, they would bite their tongue and be much more considerate.

Crazy Hormones

Where was I? The other name I’ve heard, this one Oprah uses, “You Know where Aunt Flo visits.” Oh Oprah, so love her… Then theirs “I’ve got the Decorators in.” What? That person also explained ‘You know the painters?’

Oprah painting

What term do you use?

Tell me

Today’s Lunch – 15th August 2018

Published August 15, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Have had a crazy week so far so really glad to have only lunch and my stabby appointments now on Wednesday.

Crazy Week

Have no idea how I’ve made it home the last two days! No idea, have walked and walked and carried (learnt nothing from my Milk post obviously!) so much! Got home Tuesday and weighed my bag before unpacking it. 5 kilos’! Unpacked it and it was still 2!

Walking

Friday is looking to be a crazy day, with an extra appointment with my guy who made my AFO, my GP and the chiropractor and that’s on top of the normal grocery shopping and my only food prep appointment for the week.

Friday

I’m exhausted and it’s only Tuesday night when I do my prep-work on this post. Is this week over yet? I am always surprised that people have no idea how knackered I am once home. People must see me and assume I’m energetic all the time because that’s probably how they see me when I’m out. They have no idea I got home Monday on a whiff of determination that I had to get home.

Knackered

I even went upstairs to unpack my bag from my adventures in the city, then went back down to go to the local supermarket just to get milk and kitchen-tidy bags as I wouldn’t make it to Friday. I avoided what I call “Danger Alley!” So, or to buy unnecessary items and you pick which supermarket I live way too close to? It’s the one with all the weird stuff you wouldn’t find in the one place in any other country other than Germany? (Hint! Hint!) still ended up getting about 5 things!

Aldi

Oh, here’s a nice Lebanese pizza I had last week. Close to home.  Can’t tell you how confused the girl was when I ordered Vegetarian but asked they put salami on it! What?  (Handy Hint!)

Lebanese Pizza

And today’s offering? Because it looked too big to eat I ordered half a Mediterranean focaccia. So, yummy bitter green olives, eggplant, feta and zucchini. With my standard medicine.

PanniniLatte

 

 

 

 

 

 

 

 

 

 

Then because I decided I could eat more, this naughty little chocolate tart!

Chocolate Pudding

I stayed close to home before my stabby appointment as I didn’t have the luxury of seeing Young John. But will make up for it by walking home.

Walking home

Also, a picture of Mika my new fur-baby. Just proof she has settled in even sleeping snuggled against my legs overnight telling me she trusts me. Yeah, that’s the sign. For those who don’t speak Cat!

Mika

Cheers,
H

Have a great week

Milk

Published August 13, 2018 by helentastic67

Milk

MILK – for want of a better tittle.

Have you ever wondered about the cost of milk? Often there are lots of hidden issues with having a disability that the average person wouldn’t consider. Now, it’s going to annoy me to explain the intricacies on this very simple topic, but I’m by all means not crying over spilt milk.

Spilt milk

I shop with a carer every Friday, they collect me from home and drive us to my local shopping complex. It’s not a huge Westfield, so thankfully has the basics of what I need. Butcher, baker, candlestick maker. Supermarket, you know.

Shopping list

 

Whatever, foodwise I’m going to need I must get or I run out, paying more for it at a smaller independent supermarket, carrying it around for a period of time or risking it spoiling because it’s out of a fridge for too long, like milk.

Shopping list

About once monthly I buy an extra litre of milk, so I don’t run the risk of having to resort to using sweetened Condensed milk in my coffee. Year, nice but that’s diabetics right there.

Condensed Milk

The following Friday arrives and I check the fridge for my supply of milk. Sometimes I’ve still got an unopened bottle. The Use by date is the following day, now being unopened, it’s possibly going to last beyond the Use by date, but can I be sure.

Check fridge 1

Lately, I’ve been joking if I eat something I’ve had in the fridge a little too long and I ask if the worst that happens is I spend the night on the toilet and loose five kilos, that’s a lazy diet right.

Getting sick

So, I throw out the milk, which is wasteful and go shopping and get more. Maybe the guilt plays on my mind so I under stock milk and the next week, I ration a bit.

Ration milk

By Wednesday during my busy punchy/stabby/foodie , mental health post day, I need to debate picking up milk in my travels. I am near two independent supermarkets, one of which I walk past later in the day.

If I get one at either of the independent supermarkets, they cost more than a coffee. Outrageous. Aside from the risk of how long the milk should be out of the fridge.

More than coffee

Fun Fact: – Did you know, every degree milk loses (after coming out of the fridge) it loses a day of its shelf life.

Fun fact

The other issue is of course, how I need to carry the milk. I wear a bag that has a strap, which sits on my left shoulder and the bags sits on my right glute. My Gluteus Maximus.

Gluteous Maximus

Despite disc bulge surgery, my lower back is always at risk when carrying anything home, no matter the length of time I carry it.

My lower back twinges and when I get pain down the back of my good leg, it’s a sure sign any heavy lifting or excess carrying of heavy things is temporarily banned.

Lower back pain

So, while to the outside world I’m portrayed or seen as this confident, flexible and mobile semi-broken woman (my term), underneath the cost of a simple litre of milk is either my pocket or my back.

Strong Independent Woman

Both require medication and time out to not spend money. So, that was actually not as painful as I thought. Maybe I didn’t do it justice.

Doing Justice

 

Torture – Part 2

Published August 10, 2018 by helentastic67

Torture Pt2

Torture – Part 2

So now, to how doctors buy themselves time and the active torture that was to temporarily fix the problem. They promised me an Epidural.

Doctor buying time

Have you ever wondered why “women in labour” ask for the Epidural? I don’t know from personal experience, but I’m told it hurts. It hurts like pushing a big square wardrobe out of a small place in you body, wardrobes don’t belong…

Women in labour

And the Epidural doesn’t hurt because of the happy pregnant lady hormones.

Now, they promised me an Epidural as part of delivering me a nerve root injection or a Cortisone shot. (you will hear people call it)

Cortisone shot

At the time I was on two waiting lists, one with my hospital (because I thought they would get to me) and another hospital closer to home. (that is, I didn’t have them do my surgery, my own mother might have killed me. Because she had been told they had the best surgeon to see.)

Waiting list

Have I mentioned, I’m a public patient? Because I’m poor. Yeah. So it generally means, you go with whatever you can get, whenever you can have it and not before.

The term for it is triage, they prioritise the patience that are less mobile and more ‘at risk’. Just making a point – ALL YEAR, it took all year!

Still, I digress.

The Nuero root injection goes like this, in nothing but your knickers pushed down low on your hips and a gown that is open at the back, you lie down on your tummy on a CT scanning bed. There are two people in the room whom you will hate by the end of the procedure. (if you follow my advice and learn from my experience.)

Lying on CT Scanner

Firstly, they give you a local anaesthetic. Now I will remind you, it’s been a while since my last local, so you forget how much it stings.

Sweet Jesus! (Which is likely what I said)

Sweet Jesus

The doctors claim it’s because the needle is so fine. Really? Torture device.

Then they wait until it starts to kick-in and then I swear it’s like a pick-axe! They insert it in my lower back, telling me to breathe and relax.

Pick axe

When in pain, it’s good to keep breathing, but when lying on your tummy and working where they were, it’s impossible.

Keep Breathing

Then, they roll you into the CT machine and take a scan. The doctor comes back in and utters some words like “Looks like we’re heading in the right direction” and they ram the needle in further.

Heading in the right direction

I don’t think a “Sweet Jesus” was what came out the second time. They offered me more local, but does anyone need reminding, a local really does mean ‘local’.

Not sweet Jesus

Then another scan and more core breaking agony. Three times they took to get that needle all the way to where they wanted it. Then they injected me with the Cortisone, or whatever, that was meant to give me blessed relief from the pain.

Another CT Scan

I did feel something shoot down my right leg, but that was it.

I recall getting up after it an asking “What’s next?”

They told me that was it and I could go. OK

My sister had told me, if I was getting an epidural to ask at the end of the procedure “Where’s my baby?”

Wheres my baby

The Jewish doctor and his registrar just looked at me. The female nurse, over to one side gave me a little smile.

Tough crowd.

Anyway, I left the hospital with my mum and was still in pain, but now with a very sore back.

The second one I had at a different hospital, they made me stay lying down for an hour or so afterwards, in a small recovery room with nurses overlooking about six beds. They were very insistent I not get up and walk straight away in case my legs gave way and I fell over. Is that the sure sign it worked? Maybe not, not sure. But I really needed to pee.

Recovery

I was offered a bedpan, seriously, the push bedpans in hospital, like it’s more convenient for them to change the sheets than wheel me to a toilet and wheel me back to bed.

Bedpan

Grudgingly the nurse bought over a walker (you know, not just for old people, but predominantly) and I told her no. She kept insisting and I thought she was very slow for not realising you needed two hands to work one. I growled further to get it out of my way. I’m sure she thought I was the rudest cow in there that day. (I probably was)

Eventually, a wheelchair was produced and I was wheeled to the toilet. The chair pushed so close to the toilet and locked into place, I struggled to wriggle up and around it to wash my hand after I had gone.

Wheelchair

I pressed the duty call button and waited for some time for the nurse to return to me. My mum was patiently waiting my return. My mum was patiently waiting for my return, I briefly contemplated getting up and walking back using the hand rail on the hallway wall as an aide, but I waited.

Call button

I swear I waited twenty minutes, you get I only needed to pee.

The nurse finally retrieved me, stating she only realised I was not in my bed when she did a head-count and realised there was one bed empty. Oh, the call button doesn’t work? Nor did the nerve root injection.

Head Count

But, humoursly, the night light was comment from the nurse that had been in assisting my injection. She must have been new to that area.

An older more experienced nurse enquired as to during all the CT scans if she had protected herself from the radiation.

Radiation

She replied “OH yes! I hid behind the Doctors.”

Oh facepalm.

What about me? I’d suffered four or five, that day, I was informed the staff get fifty or more in a day.

I guess getting a needle rammed into your back with only a local, really doesn’t make for a happy Hellonwheels.

Sad Helen

Today’s Lunch – 8th August 2018

Published August 8, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Going to rush through some important updates first if I may, have had a series of MRI’s to rule out a second disc bulge, and anything new going on with my brain. MRI on my head, results, still got a brain up there! (Not sorry, brain injury humour) and lower back MRI. No second disc bulge. Check! Friday’s upcoming post particularly important for reasons why I don’t want another disc bulge. Stay tuned! So, next, thoracic spine MRI and yes! I have a spine! And there is good news and bad news! I love this game, I win it every time, it goes like this.

MRI

The Good News! There’s nothing wrong!
The Bad News? We still don’t know what’s causing the problems/pain you are experiencing!
Next!

Good news bad news

Have been particularly tired this week, don’t know if anybody else has felt it? I always flick a message to a friend who is particularly switched on to such, her reply did not disappoint! “Yup! There are 6 planets in retrograde and the lions gate is open!!!!Definitely something in the stars and planets!”

Tired

Prompting me to reply, “Jesus, Mary and Joseph! There’s a lion and a gate? Are we in Narnia?” caught up with my Boo (sweetheart name for one of my gay friends) last week for dinner. Upon reminding him I have Mika he promptly stated I’d given up on finding a husband? Ggggrrrrrrrrrrrr!  Move on!

Narnia

In less than two weeks Mika is settling in nicely. She is insisting space on my lap in the evening on top of the polar-fleece covered blanket. Making it very hard for me to eat my dinner, as I am in that slump where all meals are consumed on the couch on my lap! Also, when I want to go to bed I have a grumpy cat not wanting me to move.

Mika 1

Ms Tina one of my crazy cat lady friends dropped in last week to meet Mika and the look on her face when I told her Mika only eats dry food! Priceless! Admittedly, that is 15minutes every Friday I just got back not standing in the supermarket trying to work out what the damn cat will eat this time? Mika will be introduced to wet food. But slowly for a varied diet and not gravy-based, the complete opposite Jamima’s preferences, the Neko Cat Lounge paperwork recommended Mika wouldn’t respond well to runny food. Must reset mind-set!

Crazy Cat Lady

And getting back to the point of today?

To write future blog posts. Socialise at my regular cafe and great tasty food. Today’s offering, something a bit different today although I might not eat the bread. Panino Milanese, (What’s that? I hear you ask, exactly) It’s Coletta, cos lettuce, salsa, Augusta and mustard mayonnaise, with the side salad and medicine!

PanninoSalad

 

 

 

 

 

 

 

 

Latte

Cheers,
H

Wonderful day