October, At Least It’s No Longer September

Published October 11, 2026 by helentastic67

October At Least It’s No Longer September

And again, it’s another Fucking Monday! I don’t even get to stay off grid on weekends until 5pm anymore. I joined the Owner Corp Board and there is a lot of chat. There are in fact about four chats for all the different things and on the upside, the board is organised and the new Strata is super organised. But Monday started and my carer had left already. I’m still putting out spot-fires in my weeks roster, meetings and things so I’m like, can a girl have her breakfast please? Put on her moisturizer? Its 2pm.

Best comment from the group chat to be given a special mention is Bin Juice. Our building has some overdue water leaking maintenance to be attended to and its October, so wet season and somebody queried if the bin room had a leak or was it Bin Juice! You are welcome.

It’s now after 3pm and my 3.30 has reached out to say they are running late. I hang up the phone considering I have suffered enough today and deserve a kip before my 6pm meeting I’m hosting and my incoming appointment and I don’t know where my day went. Not even a chance for a kip. Spot-fires are out.

Still trying to catch up on the fallout from 2025. FARK!

The following day was rough. I managed to do full adulting and even had a review call from the NDIA about my Appeal. To be continued. And when I took my morning pills to have breakfast finally everything went sideways. I had to cancel my taxi and my appointment and go back to bed. All because I skipped a meal the day before. Like, that’s a new thing.

Apparently living with chronic pain it’s a common problem to not have three meals a day. I don’t remember when I last had three meals a day. It’s been a lifestyle thing for over thirty years.

It is to say I’m six months from starving to death and I’m struggling with the new issue of trying to get enough protein then fibre into my day, every day. I am struggling to have three meals a day. Now, I’m trying to get 100 grams of protein in each day. It’s harder when you have habits of certain meals on particular days. Don’t ask your friend who has done Body Sculpting how many grams of protein they have in a day, I mean it. Don’t!

Answer: 240 grams.

Today’s Lunch – 16th October 2019

Published October 16, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Is it really only Hump Day? No, it’s gotta be Friday? I didn’t even have to do Person on Monday. However, it’s Tuesday evening as I tap out this post (I save this as a draft and add the important lunch details on Wednesday before I email it to Ms Noelle, my trusted administrator)

So, today I’m in Flemington at the Advisory group I’ve joined. It’s good to stretch my advocacy efforts. Also means I widen the networking. This meeting is only my second with them and it’s every 3 months.

So, lunch today is a little different, occasionally shit goes sideways and I’m a week early for a meeting and I’m left feeling like I got stood up for a second date!

So, medicine with white sugar! WTF people! Good coffee needs raw sugar.

Red Tape

Published October 12, 2018 by helentastic67

Red Tape 2

Red Tape

People who don’t work or live in a world of disability don’t understand what life is like without.

Able bodied

Last week I spent some time with a brain injury group and the moment I sat down, I felt the clawing hands of desperation to get at my funding, to benefit the place I was at.

Desperate for funding

I mean, I walked in and all the members were excited because they were all waiting patiently for “stuff to happen.” Then the staff started treating me like I worked there. How many people are coming? Where is Neil?

Treat like staff

Admittedly, I live closer than Neil (who is from the Peninsula and runs a group called ‘United Brains’) There weren’t enough chairs and I was informed there were “staff” in the meeting room next door and they were using all the chairs.

Staff

Call me crazy, but I don’t think much success can come of a business model that doesn’t prioritise chairs for welcoming visitors. That’s not even the thing that made me completely livid last week.

Welcoming visitors

But the ‘thing’ that annoyed me the most was when one woman stated the staff at the NDIA don’t come from a disability background, because they want to treat us like we are NORMAL.

NDIS