Red Tape

All posts tagged Red Tape

Red Tape

Published October 12, 2018 by helentastic67

Red Tape 2

Red Tape

People who don’t work or live in a world of disability don’t understand what life is like without.

Able bodied

Last week I spent some time with a brain injury group and the moment I sat down, I felt the clawing hands of desperation to get at my funding, to benefit the place I was at.

Desperate for funding

I mean, I walked in and all the members were excited because they were all waiting patiently for “stuff to happen.” Then the staff started treating me like I worked there. How many people are coming? Where is Neil?

Treat like staff

Admittedly, I live closer than Neil (who is from the Peninsula and runs a group called ‘United Brains’) There weren’t enough chairs and I was informed  there were “staff” in the meeting room next door and they were using all the chairs.

Staff

Call me crazy, but I don’t think much success can come of a business model that doesn’t prioritise chairs for welcoming visitors. That’s not even the thing that made me completely livid last week.

Welcoming visitors

But the ‘thing’ that annoyed me the most was when one woman stated the staff at the NDIA don’t come from a disability background, because they want to treat us like we are NORMAL.

NDIS

Grrrrrrr….. this is why I’ve had to explain what my AFO does, why I had medically approved shoes and why I deal with migraines all the damn time.

I’m pretty certain, I’ve NEVER BEEN NORMAL!

Never Normal

Normal does sound pretty boring.

Normal is boring

 

Hot off the Press – 27th November 2017

Published November 27, 2017 by helentastic67

Hot off the Press 2711

Hot off the Press

Allow me to predict the week in advance?

Watered some plants, unpacked some more boxes exclaims of “I unpacked a box!” And summer has started early and I’m not thrilled about it! No appointments Monday so kept unpacking and sorting things at home.

Unpacking boxes

Tuesday, really not ready to do Full-Adult (bra, shoes and leave the house, you know) and I had a message from my GP that he was sick……Yes! (No! That came out wrong) another day at home. More boxes………..Managed to make it to the letterbox, met the previous tenant outside to give her some mail, I was prepared to forward. Hot! So hot!

Full Adult

Wednesday, someone needs to get into the kitchen, because they left the oven on! Thankfully, a week ago today it was a bit warm but it was moving day. The next few days it rained. Not quite side-ways kinda rain but decent Melbourne spring rain. Now, I’m thinking summer came early and it’s way too soon. I did a lot of walking today despite the heat. Scooter yet has power, met Young John, he thinks I don’t mention him, he cheers me so. Hope you read my Wednesday post? Handed back the last of the keys for 1/111 and my bond claim form.  Visited the post office, dropped my NDIS plan into my acupuncturist, the lovely Angela is going to study it for interest sake, to get an understanding of how much they need to simplify and use simple English! NDIA hear me! Use simple English so I know what I can have!

Wednesday

FYI: My new NDIS plan was approved! I found out last week amongst the chaos! I believe my shoes are funded, but there is red tape. Isn’t there always?

Red Tape

Then standard Punchy/stubby day! No sign of Bella! Damn cat was easier to find in winter even though she was sleeping tucked in between pet mats. At least then I could get a tickle in before she bit my inquisitive hand.

Bella

Thursday, the unpacking has reached a standstill. My study, has an island of boxes in the centre, I can’t unpack until I get all the other Vogue Livings unpacked and sorted.

Vogue collection

Friday, ah. Blessed Friday! Had a carer just before midday, kinda standard! My next carer, recently returned from a holiday to New Zealand and she arrived at 2pm. Did some shopping, scored some summer shorts, long pants to get taken up, and a pair of 3/4 length pants for only $30. Hey, big spender. Not setting any fashion standards these days. By late afternoon, headed west for a friend’s exhibition opening night Extravaganza! Had my cold coffee and custard scroll on the drive over (lunch today!) Hung out for a few hours colouring in and doing some paste-ups! Paste-ups! Fancy term for slapping homemade glue on a brick surface to get a paper poster or such to stick for some time. I got to colour in my About page from Hellonwheels (really must update it! )

Paste upPaste up 1

 

 

 

 

 

 

 

 

Arrived home in time for the rain by 8.30pm and my carer departed. Bed around 2am.

Dark skies

Saturday, not completely off-grid, got my 25+ years of Vogue Livings packed away in my study. Hoping I didn’t put any ribs out this time. (It’s usually the upper right ones on my back)
Learning about Apartment Living! I live on a busy corner and there is a tram stop at my doorstep. (ok, my apartment complex doorstep) and a pub across the street and even more apartments. It’s hot in Melbourne but we had a cooler night so I left my balcony door open. Barely got to sleep and it got noisy at 4am! WTF? Slept the afternoon away and got stuck back into my study when most people are having dinner. Still settling in and still coughing a little wheezy cough.
Next!

Week ahead 1

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