Uncategorized

All posts in the Uncategorized category

The Things I Missed

Published December 16, 2024 by helentastic67

The Things I Missed

After the recent radio interview, I recalled other things that add to my disability, even I just take it on the chin and get up and keep going.

Shortly after my disability, I had a little fall at the front of my home. My left foot got caught behind the supporting post of the fence to the balcony of the front veranda of the terrace house. It was a ground floor only terrace before you get too excited. and when I fell, I hit my head against the brick wall, also hitting my left shoulder. When I fell, I hurt myself so much that I let out a mauling noise my mum heard from the lounge room, coming to my aid. She called out “what have you done now?” As she walked down the hallway, I levered myself up using the gate under my tummy to get my feet under me then stood up.

Across the road the friendly neighbourhood lookout was on his chair on his balcony. He looked poised to get up and come to my rescue. I waved him away that I was ok. My mum was only down at that time because I’d been in hospital having had my disc-bulge surgery. So, my shoulder has forever been dislocated, or Sub-Luxed. But not. Are you confused? Yeah, me too.

My shoulder is out more than not. If I’d hit my right shoulder, it would have been knocked out of its socket. It would have been put back in, had surgery, strapped up. It would have gotten better. But my left shoulder? It was pushed out of the socket, but the shoulder muscles stretched to move with the shoulder and because those muscles act like an old elastic band they stretched and the muscle tone no longer exists to hold the shoulder in place, if it was put back in.

Early days I went to emergency, I went to the counter and told the nurse behind the Perspex glass why I was there, I’m good at this stuff these days. FYI: Use all the trigger words. I’ve got an ABI and I was there this time for a dislocated shoulder. She turned towards the back of the staff area calling out “dislocated shoulder!”

It was rather amusing really; I was seen to eventually. Lots of “Does it hurt?” and surprised because it doesn’t but it could be on account of my complete left sided hemi. I have limited sensation on my left. Who knew that would come in handy? Fuck all that could be done. I was given a sling that barely seemed to fit and sent on my way. Basically, mum encouraged me to go see a shoulder surgeon.

I finally got to see the inside of a beautiful building in The Avenue in Windsor and he effectively started with “Now, what’s wrong with you?” and I asked him “How long have we got?”

He told me surgery wouldn’t help as I didn’t have the muscle tone to keep my shoulder in place and surgery would give me secondary problems across my back. When I’m out I wear my left arm in a sling called a Cuff and Collar, or a Collar and cuff. Physios all look to each other when I enter a physio/rehab clinic like who is going to explain to this one why we do not prescribe to wearing those, I remind them I’m carrying around dead weight that drags and pulls on all the muscles up to my neck, adding to my migraines and the added secondary problems I think I have already across my back. Seems I got those without surgery.

So, if you haven’t got it sussed already. Problems arise all the time you seek treatment, sometimes those issues are resolved, but there is always the potential of other undiagnosed problems you don’t yet know about and you are always needing to do the Pro’s versus Con’s game to work out if you fix the thing and hope there isn’t something else around the corner? Or can I live with this and for how long?

The OG

Published December 8, 2024 by helentastic67

The OG

Someone called me that today. I’m honest enough to say I didn’t know what it was, but as I left the lift in my building suggesting to the other occupant to join the Facebook page, I created pre-Covid to create community, I told him I’m the admin.  He said “Oh, you’re the OG!” I gave him a hand signal I often use to communicate “cool”.

Once inside my apartment I consulted Google. I will let you do the same. I think it’s the Hipsters version of someone who is wise and is connected. Although I’m not sure Gangster has the best sentiment. I generally associate that term with something you want to be on the right side of. You have those friends not enemies.

I have friends that have those friends. It’s safe enough for me.

Social Etiquette

Published December 2, 2024 by helentastic67

Social Etiquette

How to behave yourself in social forums is next level. Yeah, we get it, the younger generation think anyone butchering the stickers and acronyms are Boomers. But the young kids are getting a lot of the etiquette wrong too.

I’ve joined community groups over the years and I know I was late to join the main social online forum. You know the one? I’m referring to (I won’t say the name!) the one designed to connect University students that the algorithms seem to think everyone in the whole fucking world needs to be friends. Yeah, that one.

Lesson Number 1. You send a friend request to a group. They don’t have to welcome you with open arms. If they accept you and welcome you in a post.

Lesson Number 2. Say Thanks for the add, if there is a question asked of you – Example “tell us about yourself?”

Lesson Number 3. Answer the fucking question.


I know we all get it wrong. However, the older generations have the experience of life before the internet, we actually know how to speak to each other. We will even still pick unpacked phones and call each other. It’s much harder to insult people or get away with it face to face.

Reasons Hells is a Single Barren Spinster

Published November 25, 2024 by helentastic67

Reason Hells is a Single Barron Spinster

I’ll tell you one good thing, no wait, two good things about why Helen not children having is a good thing.

One, I’m still alive. I have been of an understanding since my AVM diagnosis when I was 34, I’ve learnt many things. Such as, Ladies, when we are pregnant our bodies blood volume doubles. Ok, google tells me it’s somewhere between 20%-45%. If I’d gotten pregnant, I could have had a stroke and been in a coma until I came to full term. Had the baby by C-Section, then what? Interesting, I’ve seen this exact storyline (minus the AVM) on medical dramas.

If it doesn’t scream at you, the Universe really looked after me by sending me ONLY SHIT BOYFRIENDS. I don’t know what else does. I’m still here.

And the other good reason? Well, I’m not going to hand down any shit family trauma or baggage to children. To the whole universe of people, You’re welcome.

Question for the Dentists

Published November 18, 2024 by helentastic67

Question for the Dentists

Some time ago I picked up a follower that was a dentist or somewhere in that industry. So, this is definitely a question for them and I notice possibly any industry where they have patients/clients, etc.

Here’s the question – at what point in any treatment is it too soon to start saying “we’re almost finished!” Because honestly, when I get my teeth cleaned, and my anxiety is real, I’d ask am I a total squirmer? I hate it and that says something when I mention I’ve bared knuckled fillings. Now, I will do the same if it’s not a deep filling needed, but if I start to feel them working away on my teeth I’ll tap out and tell them I’m happy for an injection but seriously, I hate the clean so much.

Literally, as soon as the big heavy x-ray jacket comes out, I don’t give it back. What? You want it back now? No chance. I think I better appreciate that people with ASD (Autism Spectrum Disorder) like weighted blankets. I also prefer to sleep with layers no matter the season.

But, alas, I digress, please tell, can anyone give me an answer to the question? How soon can you tell someone the torture is almost done?

I heard it’s used as a calming comment offered way too soon and repetitively when please give me some credit that I know you are not nearly close enough to be finished. I mean really. If someone can tell me when chronic pain ends? That would be great. I know it ends when I’m dead. But before that?

Didn’t think I was going there today. Yes? Don’t want to need to remind people, if they have read this far however, please hit Like. 

Bruises

Published November 11, 2024 by helentastic67

Bruises

A woman saw the bruise on my chin today. Six days later, she asked “You fall over? For what? Nothing!”

I didn’t bother explaining to her and shrugged and then the best response I’ve had all week, one word. “Fuck!” 

Also, it helps to know I was in an Italian supermarket. Well Greek, but wog I guess so sometimes I love the non-PC and non-business-like response I can get from this sector. I seem “white” to many people in Australia, but in the “wog sector” I’m part of their own, as my father was Italian and I look enough European in that setting, they will not mince words. I appreciate that and respect it.

About 2 weeks after my fall and the bruise was mostly gone, I was at my favourite cafe and the longest serving hospitality staff member Gabby said rather simply “It could have been worse, you could have lost all your teeth!”

And she was bang on the money. Respect.

And the Good News – Drum Roll Please

Published November 4, 2024 by helentastic67

And the Good News – Drum Roll Please

And the good news is, Hernia. Sometimes, maybe rather than sharing this with my blog administrator/aka the Meme Queen, I thought I’d just blog it out.

On my phone in a cafe so I can just do it all in one go. As I’m given a big paper towel and some tissues to clean the jelly out of my belly button, I asked for the good news. She’s a lot younger, so the bad news would have just been “No Helen you’re just fat?” 

Even in the bad news terrible scenario, I can find a way to make others laugh. Is it a gift?  Maybe.

Always Recruiting for My People

Published October 28, 2024 by helentastic67

Always Recruiting for My People

You know those moments when Crazy Cat Ladies just can’t help themselves? I’m sorry in advance.

I was recently in an apartment standing in the bedroom, my carer measuring an area that was quickly deemed too small for my bed. The real estate guy asking why I need such a big bed? My Dad made my bed when I was about twenty-four and I’m not giving it up. Even more so because he’s gone, so he can’t make me anything else. I mentioned as much but four days later he was showing us another apartment and I’d thought of a better response, telling him, “It’s for all my future cats!”

Yes! C’mon! If I didn’t just nail crazy cat lady, I don’t know what will. He asked how many I have? Just one, so far.

You know those days you feel people you interact with will never forget you? I mean for good reasons; I like more of those please.

I’m hoping this young guy will help me lock in my forever home and if he can work for me as much as he will work for the seller, he’s got pudding coming his way. Pudding is not how I recruit my people, but it never hurts. Is that a bribe?

Quality Control – Not Finished Yet

Published October 21, 2024 by helentastic67

Quality Control – Not Finished Yet

So many questions.

Wondering if people are doing a shit job for me because they find my disability makes it hard to do a good job?
Or is it because they think I don’t matter?
Would they do a better job if it was for themselves?
Or someone else?
Or are they just doing it until they get something better?


It’s always hard to know if people do an ok kinda job because they need the money or they give a fuck.


It’s part of the downside to needing carers or having funding to have people do things for you.



Developers Please

Published October 13, 2024 by helentastic67

Developers Please

I think it’s about time developers paid attention and built in some things to enhance properties for residents. 

Number one, put in an accessible toilet close to the entrance off the foyer. It should have a sign stating “Accessible!” For which I will ask “Are there any other residents here with disabilities?” Then it’s unofficially Helen’s Personal toilet. But you may use it, just keep it clean and tidy for all.  

Also, while we are on the topic of bathrooms. Can they start designing apartments with one and a half bathrooms? That would be an ensuite and maybe just a second toilet with handbasin. I cannot tell you how good it’s been for the last seven years to have two toilets in my home and I live alone.

I get ready to head out with a carer calling out “I’m just going to the loo!” and they will return with “I’ll go too!” 

So, at the end of the day there is no fighting when we get home who gets to go first or how long you can be there. 

I’m sure I’ll revisit this at a later date so, to be continued.