Today’s Lunch – 4th December 2019

Published December 4, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Anyone else thinking with the arrival of December that Christmas is too soon? I’m still planning to stay-cation. I might get a break, sufficient air-con and I may even watch a few films, I’ve been working on my never-ending list of TV shows. I can’t cull anything. I must watch everything. Since I can’t read books anymore.

Currently, I’m watching season 2 of Pose and crying. And all the appropriate uses of the word ‘Bitch’. Really, it’s eye-opening, sweet, beautiful and sad. But reality for gay men in the early 90’s. Oh, and legs that go on for days. Those bitches! Really!

Yesterday I went to the city to attend a launch of a project I participated with earlier this year. So, today I bring you the link to the website from the project Opening Doors. Watch my video if you dare.

Our Lived Experience

I’ve only seen a little of it so far but, you saw the photo of me in my study a few weeks back. When I walked into the gallery space and saw it, I thought I looked really pissed off, I was told others thought I looked strong. The space yesterday for the launch allowed some interaction. Here’s what I added to the picture of me.

 

 

 

 

 

 

 

 

 

 

Meanwhile, where were we? Oh yes. Our standard foodie post. Today’s lunch is brain grain salad and medicine to help my migraine!

Playing the Disability Card

Published December 2, 2019 by helentastic67

Playing the Disability Card

There are times when I have to play my disability card to get results. Sometimes I throw it out there and I have to hope for the best, because it can very quickly be taken out of my hands (in this case, just the once) as I can’t control everything once it gets away from me.

You know that time “You attract more bees with honey?” and I’m sure there’s something about putting innocent bystanders in a situation where they witness something happen and you have to hope someone comes to your defense.

Like today for example.

Buses have replaced trams on my tram route while roadworks are being completed. Today, while leaving my acupuncturist, I saw three buses go past and seeing none anytime soon. I walked about three tram stops. I’ve walked further, in fact the whole way home, but I had an evening adventure planned that I had to save some of my spoons for.

https://en.wikipedia.org/wiki/Spoon_theory

So, I saw a bus (tram) pull up to a stop and I stepped it up a little to make it to the bus. If I couldn’t get to the front door of the bus near the driver, maybe I’d make it to the back door. I got to the door half way down the bus and I saw the teenage school boys (I presume they said nothing to the driver to ask he to wait for me, Yes? They had seen me coming) the door started to close, so I put my walking stick in the door. A woman stepped forward to stop the doors closing and yet the bus started to move.

Oh dear!

I tugged at my walking stick; it really was stuck. I could see some people on the bus standing in the isle call and look towards the driver. The bus stopped, thankfully and I put my right foot up on the floor of the bus using my right hand pulled myself up. My walking stick now dangling from my wrist strap.

A woman in a seat near the door moved to get up and I thanked her and told her I was only going two stops. The bus driver appeared at the door behind me asking what was stuck in the door?

 

I explained, I had wanted to catch the bus and my walking stick had been stuck in the door. He didn’t say anything, he just looked ‘put-out’. He got back into his seat and behind me someone else offered me a seat. Word passed down I wasn’t going far anyway.

Once off the bus, I saw a man in high-vis, when I asked him about the roadworks back in Clifton Hill and if it meant they would be completing the accessible tram stop on this route, he had no idea and had simply gone where he had been told and worse still, did not normally do this area, so really had no idea whatsoever. He just directed every question to the PTV (Public Transport Victoria) website and phone number.

Guess I’ve got another thing to add to my list tomorrow. But it just goes to show, people did come to my aid when I needed it and I don’t ever know who they are.

Now, while you read this post, who had a vision/image of an old lady like Mrs Magoo with the grey hair and grey dress being dragged beside a bus by her walking stick?

Yeah! Me too! That could have gone so much worse as the cord around my wrist often gets twisted on pretty tightly, making it rather challenging to get it off in a hurry.

 

Failing

Published November 29, 2019 by helentastic67

Failing

I am part of a Brain Injury group (if you have followed special links and such you would be able to learn the things these groups have achieved) I feel a little like everything I’m trying to achieve is failing or falling short, because I’m being undermined or sabotaged by  people who do not understand the meaning or importance of returning a call, a message or email (is it just me?), is it that other people with Brain Injuries or one other people are not as efficient as I am?

Think I’ve worked this one out.

BUT, WHAT THE FUCK! (Feeling frustrated) happened to common decency that people are all so busy they can’t respond in a timely manner?

I’m fucking busy, they are winning at LIFE ONE HANDED! I’m nearly ready to give up on quality control and giving a fuck, aren’t I?

I just don’t want people to slip through the cracks and then have to be patient while they complain how bad life is.

When do I get to care less? Unfortunately, that will mean I will feel like I’m failing.

Today’s Lunch – 27th November 2019

Published November 27, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Where were we? I had an appointment today with a follow-up at the sleep clinic. Yes! Yes! It’s still going on and I booked an appointment in my 2020 diary today for next September. Looks like I’m carrying around two diaries until January already! Too soon! Just too soon!


Last Thursday night I went to see the world release of film called Spirits in the forest. It was amazing!

https://www.orlandoweekly.com/Blogs/archives/2019/11/20/depeche-modes-spirits-in-the-forest-documents-their-world-tour-at-maitlands-enzian

Take the time to watch it. My favourite quote is when a fan describes seeing Depeche Mode in concert as the closest thing to going to church. My other favourite quote includes a crown and a cape and retiring g the someone. I was not the only person to laugh! They are definitely my favourite band despite the fact they have not toured in Australia since 1994, when I went to the after party and met the band! You heard me!

Here is a quick shout out to my friend William the owner of this vlog! I know not much about V8 Super car, but then I don’t need to? I know someone who does………..

www.williamsperfectride.com

And just before summer hits in Melbourne, these are my first Christmas Lillie’s out on my balcony.

 

 

 

 

 

 

 

 

 

 

I’m actually currently planning my Christmas at home in Melbourne rather than going to the country. To be continued on that front…….

But it really feels a calmer week this week so today’s lunch is a nice change, so today’s lunch is the Moroccan chicken salad with medicine!

Good Mental Health

Published November 25, 2019 by helentastic67

Good Mental Health

Sometimes having to rely on carers is detrimental to my Good Mental Health. So, in case you had been imagining having carers makes up for being one-handed in life. It really doesn’t.

It often requires a skill set, not everyone with a disability has. I mostly have carers older than I am. It’s not by choice, that’s what it is. I’m not complaining, it’s good.

However, I find older carers sometimes think they know best, so do things how they want to. The downside on occasion is when they don’t listen. They are not there to deal with the consequences.

Some carers only see me when I’m upright, chatty and engaged. They don’t see me when I’m not coping. They are not there when I have to bring my washing inside and hang it, so it has a chance of drying on racks.

Some items in Winter can take days to dry because it’s cold enough to need a heater on, but I have to negotiate spaces around drying racks. My left-hand catches on things as I move around, my left foot catches also. I can easily lose my balance and fall and trust me, no-one around when I have a migraine. Because they don’t limit themselves to the days, I have to suck it up and get shit done.

Migraines will come every day of the week.

Lesson

Published November 22, 2019 by helentastic67

Lesson

Well, today I’ve got a lesson in acronyms, I think it’s been a while, so I’ve got two new ones.

  1. CDC – Feel free to comment as to what you think it is or could be. Feel free to do this even thought you will shortly know what it actually stands for. “Client Direct Care.” Apparently, it’s from Aged Care mentality services. I was given this as a tool to use with one of my carers, who really doesn’t like being told what to do. I often let carers have the benefit of the doubt that they know how to do somethings. If I have a better way, I often share that way with them. I guess, it’s also when I expect them to do that thing my way. I guess it’s like saying “My home, My rules.

  1. BDM – A friend suggested it’s not an acronym I should be using with my carers. She’s probably correct. “BIRTHS, DEATHS, MARRIAGES” and I spent an hour on the phone, I may never get back, just to get my Birth Certificate. I think the moment I rang; I was in this automated loop advising me they had an unexpectedly high volume of calls and that I could do stuff on-line. I can’t fit it in to go in, in person and wait for an hour. But, employ some people, stupid Government. Can’t wait until not every household in Australia has a computer. To be fair, that’s already a reality. My dad’s only just gotten a smart phone. Also, several hours of my life I will never get back. But!

 

Today’s Lunch – 20th November 2019

Published November 20, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Happy hump day! It’s hot in Melbourne today! Have I ever mentioned how much I love hot weather? (Sarcasm) Yeah, that’s because I don’t! And I’m out in it……all day!

Even though my AVM (Artereovenous Malformation) has been fried with radiation so it’s not at risk of a bleed, a stroke or even blood flow but in hot weather my brain is not happy. My left side of my body works even worse than normal. So, my AFO and Shoe wears not quite right. My body compensates by just pushing through and smashing it out. I still have all the same deadlines. The same appointments to get to. At least once home I have air-conditioning and cold water in the fridge. Once home the cool change will throw my brain into a brain freeze. I predict a kip until my brain and body normalises. Welcome to my summer!

Meanwhile, luckily as I was here yesterday, much cooler. I had yummy sausage roll with relish and a side salad and medicine and macaron. Everything else had sold out!

 

 

 

 

 

 

 

 

 

 

Meanwhile, today’s lunch consisted of…….the brain grain salad. And medicine.

 

 

 

 

 

 

 

 

 

 

Glad I’m at home for the most part tomorrow for an even hotter day!

Meanwhile my Egg-Dealer is back from his holiday in Queensland! Putting in a huge order. Hoping the eggs don’t fry in my apartment or hatch! Got a mental image of little chicks chasing Mika! “Muma? Muma?” To cement the image, I’m ordering 140 eggs! Poor Mika!

Aussie Slang

Published November 18, 2019 by helentastic67

Aussie Slang

It occurs to me I’ve not yet given any of the Aussie Slang a voice, or exposure. I’m sure other countries have words or phrases they use, that only locals use.

The evening cool news program I watch is sold as “News delivered differently” and it’s for the ‘young’ and by the young, I mean not old and by young, I mean me.

They will have a panel of different people who have different strengths and backgrounds. There is always a comedian to bring a bit of light and shade.

Then, there will be guests who often share terms that they have not encountered anywhere but here.

One such pearler… Shit-tone

Yes, you heard.

It means more than can be quantified.

You are welcome.

Dress Code

Published November 15, 2019 by helentastic67

Dress Code

I’ve received an invite to an event, I did put my hand up to go, so it’s not like I’m special.

The event is at a place called ‘Government House’ without mentioning what the event was in aid of, the point is it sounds special and impressive, right.

Also, it has a dress code.

Now, I don’t know if any of you realise, but I do not have an exciting wardrobe these days. If unsure, No, I don’t.

The invite states

“Men: Lounge suit.

Women: Accordingly,”

Um? Do I get free reign? I’m taking it to mean I don’t need to wear a suit or dress, but I should dress appropriately.

Not like I’ve got my Hoochie-on or a like a slag. I don’t know where ‘Hoochie’ came from but, a slag is rather 80’s term for a woman with loose morals.

To be continued…

Today’s Lunch – 13th November 2019

Published November 13, 2019 by helentastic67

Today’s Lunch

Good Mental Health Day

Last week I mentioned an exhibition opening I was to attend. That whole day did go to plan thankfully, including an hour kip and getting back to the city with 10 minutes to spare to see Dylan Moran at Hamer Hall. Hilarious!

These were my two favourite portraits in the exhibition. I didn’t even take one of mine.

 

 

 

 

 

 

 

 

The Opening Doors project will launch its website early December. I’ll share the link then.

Well, needing a calm lunch as my regular girl Wednesday has taken leave to go to Disneyland. With a different carer than usual. I suggested a postcard for her favourite client and I was told she would be too busy. I was serious the first time I suggested it but after that I was just teasing her.

Yesterday, after going to the AGM (Annual General Meeting) I had my nice monthly migraine for the rest of the day! You may wonder if going to the advocacy group I attend e dry on this worth the pain? It’s necessary connected. To network and connected to ‘my’ even if all the time I’m reminded I don’t fit in with ‘normal’ people that I am always desperate to connect with in some long-lasting way. I am often left feeling even more alone. Or in some way unworthy. Yeah, it’s super!

Today’s offering is a bolognaise arancini with side salad and medicine.