Today’s Lunch – 31st January 2018

Published January 31, 2018 by helentastic67

Todays lunch 3101

Today’s Lunch

Wednesday’s Good Mental Health Day…

Luckily, I got to be here for a quick lunch yesterday. As once a month I see my GP in this neighbourhood. I was able to scribble down a post and as I’m falling behind in my written posts with still plenty to say.

Visiting Dr

So, yesterday’s lunch was the grilled Mediterranean vegetable quiche with a side salad and my medicine! I keep having the best of intentions to order a salad but they are popular and sold out by the time I arrive.

Quiche

Latte

 

 

 

 

 

 

 

 

 

Ah! Wednesday! Salad! It’s called a brain grain salad. I’ve arrived late today and it’s a bit cooler and schools went back today so it’s a little quieter. Thank God!

Brain Grain

 

Still got my constant companion, my migraine! Not thrilled. Actually, been getting to bed by 1am the last few nights. This morning I managed to sleep in until 9.30am when my Mepacs rudely woke me! And yet my left eye still hurts!

Migraine

Oh, and today due to time restraints and no young John, I can take whatever salad I don’t eat with me and work on my medicine and this little rum ball.

Rum ball

 

I will need to include a rum ball recipe because it’s that naughty yummy thing that we grew up making but you don’t make them all the time and yes, you must use rum!

Rum balls

Have a great day!

Happy Wednesday

Cheers,
H

Blame

Published January 29, 2018 by helentastic67

Blame

Blame

I’m not sure if it’s just Acquired Brain Injury (ABI) or the whole disability, but I find I get blamed for all kids in my family or even just my home. I’ve had some new carers of late and one is my new Saturday/Sunday lady. She wouldn’t come for less than 90 minutes, so I figured I could make it work by giving her some odd cleaning jobs.

Clean fridge

Nothing major, but on a Saturday, I’ve asked her to clean a shelf in the fridge (it will be all clean eventually) and other things that rarely get done (cleaning the cutlery drawer or cleaning the front of the kitchen cupboards). The second Saturday, after washing went on the line, I know she didn’t do any of the other tasks as she had found the new foodie magazine on the dining room table.

Magazine on table

She commented to me I really liked cooking and Donna Hay’s recipes were easy. When I remarked to my mum, she said it was my fault, I left the magazine out on the table.

Donna Hay

The message was rather scathing, I didn’t know where else I was to have put it, in my own home…

It’s my home, I don’t leave out bills, cash, bank statements. I’m wondering if anyone else experiences this?

I can’t wait until I get my next Neuro psych, I’ve had countless, but my mum is insisting on being there next time. (pointless/counterproductive) and she wants to be there for the debrief.

Psych

She says it’s so she can better understand my ABI, but I know it’s going to lead to me better understanding my behaviour and then changing it to suit the family.

Behaviour

Nearly fell over on the tram today, Yes! It was the day I was carrying that darn cool-bag, but still number 1.

Why do people who don’t fit the criteria to take up those seats with signage stating they are for people who are elderly, disabled or pregnant. While I’m here, can pregnant ladies not sit in my seat in their first trimester. Please! You just look a little fat, sorry. Save it until you’re nine months pregnant.

Disability seating

Today, I wriggled up by asking a young woman to hold my walking stick, being weighed down by both my bags. It took an effort to push myself up.

I put my hand on the wall behind the driver’s cabin and had to balance so as not to fall backwards when the tram lurched forward. I stumbled and a woman behind me to the right, screamed out that I had trodden on her foot.

Stepping on toes

She dropped the F* Bomb to describe how much it hurt. I muttered an apology, but I had struggled to remain upright and had thrown my right hand up and grabbled the headrail. The woman holding my stick looked at me concerned, I think she wondered when to give me the stick and I had to wait for the tram to stop. I will often lean my shoulder or hip against that wall of the driver’s cabin to get my balance.

Falling over

I had to ignore the woman who complained I’d hurt her foot. I had apologised and I think her feet weren’t anywhere near her seat and she hadn’t realised how precarious my situation had been nor did she care.

I did notice she didn’t look like she had any of the pre-requisites of taking up those seats.

I don’t know how I’m supposed to fix this situation…

fixing it

Why I Blog

Published January 26, 2018 by helentastic67

Why I Blog 1

Why I Blog?

If you have been wondering with a weird array of randomness, what Hellonwheels is all about? Wait no longer, this is why, here is the answer.

Logo Hell on wheels

Since my diagnosis in 2007? (I don’t know! It’s been a blur) I’ve met many people with ABI/TBI/general fuckwit-ism and it has led me to query, what means what?

Brain injury

Example;

When I first started going to ABI groups socially, because society loves to put you in contact with people with the “same” issues you have. (Please note eye-roll!) I walked in and young men and old flocked towards me, I felt like a Spice Girl in the mid-90’s. One guy, let’s call him ‘Fred’ (because it’s been a while) made it clear to take me under his wing. We got chatting, as you do and as you do you talk about your life before the ABI.

Spice girls

I mentioned my Club years and that’s always a big topic. But, push came to shove and after a little young woman joined us and I was introduced. Lovely younger lady, also with an ABI. Make mental note; got to be careful or might end up ‘paired-up’ with another numpty like me before long if I’m not careful. I didn’t say this reason/story would be simple so stay with me.

Numty

Totally worth it, Promise.

Over time, I participated in activities at this group and I supported people and they supported me, so all is well. Became friends with Fred and others outside this group. (it’s inevitable: stuff sticks sometimes) Fred had gotten his TBI from pure fuckwitedness (as I like to consider it) his girlfriend was lucky to be alive having been hit by a car crossing the street. But, unlike her boyfriend, she had not had a typical young adult life, like he had, had before his TBI, because she had, had hers at 17 years-old.

Fuckwitedness

He also liked to bond with me because I had been ‘there’ (Clubs/parties) and I remember it. I wasn’t drunk and off my face like nearly everyone else.

Overtime, I became a bit more of a mentor to Fred. I was friendly to his girlfriend, also she was none the wiser. He was also finding excuses to visit socially. FYI: I don’t socialize at 11pm at night, that’s my time.

Mentor

He even had a gay friend drop him over for a coffee one afternoon on a weekend and I was told to ‘look’ after him.

I hope you are getting that he seemed to have told people, I might have been a potential ‘whatever/girlfriend’ when in reality it was always a HELL NO.

Hell No

I decided to discuss this situation with a friend who worked in the industry who was familiar with all of us and our past history etc, her advice to me was.

‘Oh, you should go out with him, because before his ABI, he had four or five girlfriends at a time. Now he’s only got one or two.’

WTF!

Um, I hope you realise, I would not have dated more than one guy at a time before my diagnosis, let alone date a guy who thought he could date more than one woman at a time, I certainly wouldn’t now.

I am also aware I am no longer some Jennifer Hawkins type, now or before my disability, however I’m still not prepared to lower my standards and just accept some broken bit of road kill.

Body

Make mental note: Explain Helen’s definition of Road Kill later.

Road kill

So, back to my point. Yes, apparently it is said, people retain their personality after their ABI/TBI what did I call it? That they had before their (as above).

Personality

Now, this is why I blog.

If I’ve always had my ABI (AVM), have I developed this personality, because of my AVM or despite my AVM?

BAM! There I’ve done it.

Today’s Lunch – 24th January 2018

Published January 24, 2018 by helentastic67

Todays lunch 2401

Today’s Lunch 24/01/18

Wednesday’s Good Mental Health Day…

Today’s lunch is a little different today. I’m actually at a once yearly United Brains BBQ. It’s one of the Melbourne based brain injury groups I am on the fringes of. So, instead of food today, here are some pictures of people!

Ok, and maybe some food.

Sausage SizzleSteak Sanga

 

 

 

 

 

 

 

 

 

Always feel being at these kinds of ABI groups they could easily recruit the next season of Walkers for the Walking Dead here. There is always some numpty walking around drooling. I generally pick my regular faces to catch up with quietly. Even though I have one ear trained on what others are discussing. I then try to offer a few brief words of advice to help others. I generally don’t last long before I have a migraine and am feeling very seedy. I do still have my standard punchy/stabby day ahead.

Also, note photo of moi with a marrow? Ok, Larissa the artist gave it to me and. No matter how big they get she still calls it a zucchini. I grew up calling it a marrow once they got this big.

Zuchinni

#Helensnotexpecting

Also, the photo of the snag in bread? Most Aussie thing ever! Yes, it’s the long sausage in the square bread!

I really wanted to include a clip of a comedian explaining his take on some of our Aussie food things. His name is Ivan Artisteguieta and yes, I have written that name enough times today. He comes from Venezuela so his take on our food culture is rather amusing to us. He does a particularly witty take on our love of the sausage sizzle at our Bunnings hardware stores. Because they are there to raise money as a fundraising activity. That smell of burning onion as you leave a Bunnings on a Saturday morning gets you every time! However, he makes fun of us trying to put a long sausage into a square piece of bread or as we often refer to it as a Snag in bread. He points out in America and Venezuela where he is from they have long sausages and buns designed for such. So, I guess if you all luck out on finding anything on him online, as I did. Keep an eye out for him on the comedy circuit.

 

Australia Day/Invasion Day is this weekend so a good Aussie staple is in much need. That is the anniversary of when the First Fleet arrived in Botany Bay in 1788, and when the Aboriginal community see as the start of white man killing and abusing their people. It happened, I’m not suggesting it didn’t. I know I didn’t do it and I’m sure you don’t need me to get politically motivated about it here. If you would like to read more about the above here is a link…

https://www.australiaday.org.au/about-australia-day/history

My brain hurts however have a great day!

Brain hurts 1

And a naughty little custard slice I had last week.

Custard Tart

Cheers,
H

The Seasons

Published January 21, 2018 by helentastic67

Seasons

The Seasons

The weather is Melbourne is always a heated topic. Everyone gets grumpy in Winter because it’s so cold. I think I’ve coped better this Winter as I’ve had an electric blanket.

Winter

Spring was over before I could get it together and write a decent post about it.

Living here is the best in Spring, there is a peach tree outside my bedroom window. While it was raining a lot in the early part of Spring, watching the tiny green come out on the peach tree followed by the sudden burst of blossoms.

Peach Tree

It’s like watching a slow-mo nature documentary. Then the gust of wind blows the blossom away and now the end of November, Summer is really here.

The butter on the kitchen bench has become a melted oil slick, the jar of Coconut oil is about to follow the butter into the fridge.

Butter melting

I want to bake some cookies later, I wonder if I can do it without turning the oven actually on? Definitely can’t do it while I’m in the kitchen.

Cookies

Clothes dry on the line in no time at all. Bonus!

The best positive of all.

My coffee takes one minute and 10 seconds less to prepare. I get the bottle of prepared coffee from the fridge, pour into a glass, add milk, some sugar and stir.

Coffee

 

Get on with it

Published January 18, 2018 by helentastic67

Get on with it

Get on with it

Fuck the whole world!!!!

I wanna get off! Oh, wait my bad. The time is “Stop the world I wanna get off!”

Stop the world

Been dealing with all the usual shit lately and because there’s no point talking about it, because I can’t change any of it. (I’ve been too busy just dealing with it) I basically, event to the head down/ bum up and get on with it.

Head down

I’m not saying it’s worked super well in the past however it’s my default mechanism.

Miracles

 

Today’s Lunch – 17th January 2018

Published January 17, 2018 by helentastic67

Todays lunch 1701

Today’s Lunch

Happy Hump Day!

Hump day

Haven’t left the house in 2 days and back at my favourite cafe! Was looking forward to a nice healthy salad, but alas by the time I got here they were sold out. But as you will notice consistency is the key. Pancetta quiche with side salad. With my standard medicine! And rather than try carrying it myself, I asked for a glass of water and this is what arrived. Feeling special!

WaterQuiche

 

 

 

 

 

 

 

 

Latte

Have a nice little migraine bubbling along behind my left eye since late yesterday so really looking forward to seeing my chiro today. She has been away the last two weeks so I saw a fill-in. Head, shoulders, knees and toes. Or realistically, head, neck(atlas) ribs, back, just everywhere. Ad nauseum!

Head Shoulders 1

Rather warm in Melbourne today! But hellonwheels will make it a breeze………..
Also, big shout out to my pen-pal friend from Texas! Phoebe! I received an amazing parcel from her yesterday. I sent her a late birthday gift last year and am about to post her my last Christmas parcel. Seriously, why should Christmas and birthday presents be on time and just once a year? Anyway, rambling. My left eye hurts.

Texas

Have a great rest of the week!
Cheers,
H

Good week

Bikini Body

Published January 15, 2018 by helentastic67

Bikini Body

Bikini Body

I had gone into the kitchen to make a cuppa T and put the dishwasher on.

Jamima follows

Human in kitchen, must be feed-again.

“Meow” the sweet sound of encouragement.

Wanting food

To which I reply…

“Yes, I know, we’ve had this conversation. Tell me what you want and I’ll give it to you”

From the other room, my mum laughs.

Today I was describing to another friend with cats and that Jamima has been very fussy lately with her food. I describe it as ‘she’s’ trying to get her bikini body back again.

No Longer bikini body

Then I stated she needs to accept for both of us, our bikini bodies are behind both of us.

There is no going back.

It’s over…

Jamima

 

Hidden Pain

Published January 12, 2018 by helentastic67

Hidden Pain 1

Hidden Pain

Some people are really quite oblivious to the strain and pain on my body when I’m out and about because despite my walking stick and my left arm being in a sling (collar and cuff) and that I’m out of the house, it’s presumed I’m always wandering around with a smile on my face.

Walking stick and sling

In reality, sleep or lack thereof means my left leg works even less than “I make It” and the eyesight in my left eye is worse than people would realise.

Often what I carry and how it affects my mobility even more.

In my own backyard, even moving a few small terracotta pots around means my left hip hurts! WTF! I don’t even use my left side to do anything, so I’ve asked an OT/Physio what that is all about and she had no words of wisdom for me.

Small Terracotta Pots

Yesterday, I went to the city, I travel by car to a train station closer to the city, then a train from there.

When I’m out and about my ‘handbag’ (hate the term) is a large street-wear bag with the clash on it. (I just like the image) the strap on the bag hangs from my left shoulder and the bag sits on my right hip and gluts as in Gluteus Maximus. If I buy something when I’m out, it must fit in that bag. If I can’t carry it, I can’t buy it…

But yesterday, I also had to transport a delivery of Ginger Kisses. I have a cool bag, big enough for six cans (so Australian for those serious drinkers; not me, other people) and in it were 2 large ice blocks (heavy) and 30 Ginger Kisses (cool).

Ginger Kisses

I got out of the car at the train station carrying the walking stick and the cool bag and walked the twenty metres to the train platform without the aid of the stick.

I missed the train by “that much”. A train station staff member told me I’d missed it. No shit Sherlock! Because he hadn’t held it for me for two seconds despite my efforts.

Missed Train

So, I asked him to help me put the cool bag on better. I gave him both the stick and the cool bag. I eased the two loops of the collar and cuff down over my hand and proceeded to have him put the handle of the bag on my arm up under my elbow. The collar and cuff goes back on and keeps the bag from slipping down.

The weight of the bag hangs by my side and doesn’t obstruct the forward motion of my left leg.

On the train to the city I often find myself eating my breakfast. Vegemite and cheese on toasted bread. Good breakfast for on the go, not great every day.

Cheese and Vegemite

I got to the city, scooped up my coffee in my keep cup in Degraves Street and got to the AGM for the Self Advocacy group I’m part of. There was only one table at the front that four people were to sit at in a ‘panel formation’.

Degraves St

I put my bags down and looked around. No-one! So, I dragged a table over. At which point my left hip is hurting. Seriously, don’t know what it’s complaining about when it does nothing.

Had the meeting.

Did some serious walking.

More serious walking.

Walking

More serious walking.

It’s now been several weeks since I started this post. I think I got lost in the details. Relevant details, but today I was off to the city again with that damn cool bag.

Cooler bags

I realised how the added weight changes how I move and balance and the impact on just walking by the end of the day…

Hidden Pain

Today’s Lunch – 10th January 2018

Published January 10, 2018 by helentastic67

Todays Lunch 1001

Today’s Lunch

I do solemnly swear to not forget to eat the yummy food before I take a photo, on the other days I eat out at the cool hipster cafes closer to home. As I know I did promise to include those pictures in this post also. I promise to do better…………

Do better

So, again this week my managed to make it to Cliffy Hill with some time for lunch.  My favourite cafe/bakery/patisserie is still closed for a few more days.

So, had to find an alternative destination. Today’s medicine, think we call this design – the I was too fucking lazy to pay attention at Barista school to do leaves and love hearts.

Lazy Barista

 

So, today’s lunch is a healthy quinoa salad complete with mustard seeds and goats cheese.

Lunch

Last year I had a rum ball with my medicine here and despite not being a drinker I found the golf ball sized rum ball both lacking in rum or good quality vanilla essence. Just learnt they make the rumballs themselves on site but he said they don’t have them from where he’s from? Note faint accent, he is from San Fran. Ok, I will allow.

Rum balls

But healthy salad at 1pm, winning! Hope your midweek is coming together?

Midweek

Update on Hikaru the curious cat? He is home from the vet but not only housebound after his snake bite but also contained within a cage. Hikaru is not as healthy and energetic as he believes. The vet said they were lucky he made it.

Cat in a cage

Cheers,
H

Great week