To Whom it May Concern

Published March 9, 2026 by helentastic67

To whom it may concern?

Once a week on a Sunday I have a lovely carer that is the sweetest lady. To be fair, most days my carers will ask how my week went/how my forthcoming week will be? And all my carers are lovely but specifically on Sundays. I tell her I can’t even remember. It’s this process, it comes flooding back. Monday, I had Botox for FREE. Because I had it in my leg, which doesn’t look younger. I had an inspection of the waterproofing on my balcony.

Tuesday, I saw the vampire, officially a phlebotomist for an upcoming appointment. I saw Young John twice to get me there and home again. I once would have just fanged it there on my scooter. But I digress, I went home, inhaled brunch, then out again for a massage.

Home again, smashed out a pasta bake one-handed. Managed to get it in the oven one-handed and sent an S.O.S. in the community chat to help me get it out again. Win! Sent some to a neighbours.

Wednesday, standard midday appointment, was not late. Coffees from favourite café, lunch to go, visit to bank to order new handy card, FFS!

A zoom that I missed with my car team, I received notes later. I have a new Support Coordinator she’s a gun. She’s already got help from her lawyer friends quoting the disability discrimination Act on the whole scooter and storage cage issue.

Thursday, had meeting in my car space with my overqualified handyman and my new OT, asked the most taped in community board member on the OC board to discuss the storage solution for a new scooter. This is actually starting to get some traction.

Apparently, apart from all the safety concerns of a mobility scooter catching fire in the communal space that is the garage. The who’s paying for the power on my scooter topic? Which has been discussed to death in a million ways. Apparently, the committee is largely concerned about the cage being UGLY – UM, can we go with secure and practical to give me back some independence? Then we’ll sort the not ugly. Apparently, the board is much more motivated to assist now the disability discrimination has been mentioned. I will still need to get a plan of the proposed storage cage past the committee, then have my S.C. (Support Coordinator) to lodge a “Change of circumstances” review request to the NDIA including the police report the OT started in 2025 with that was paid to do a job she only half did, did not do.

Friday, standard hunter/gathering day. Robbed everywhere I went, came home, put everything away, smashed out two blonde entre pizza’s, blond being the term for no red sauce. Then walked the short distance with a neighbour to a local bar for a shoe gaze night. Had chips and gravy, delicious. Home by 10pm. Finish chores, admin, bed around 2am.

Friday also received feedback from one place I frequent on my Anzac cookies that are next levelled twice. He thought his “Mate Helen” had shared them with him. I don’t know him well enough to be considered “mate!” had I been in the game right I could have created the side-hustle, I really need to provide 300 cookies for an event. I dropped the ball. Boo.

Saturday, with an assist from my carer, smashed out the steak and salad I normally have every Friday night, ate it Saturday night for dinner. Anyone wonder why I like to go off grid on the weekend?

Some wins and loses this week. To be sure, I now still need to do more waterproofing on my balcony. Also, I need to take my previous water proofers to VCAT since they did not solve the issue yet charged me $$$$$!

Right now, it’s Sunday night of a long weekend. Is anyone imagining a calmer week for Hellonwheels?

Not to mention, I need to rebuild a social profile on a tiny social platform. You know the one? That is a post for another day.

I also managed to put a giant band aid this week on the bullet wound that was all the nights I had tickets for comedy shows, I did not have a plus one, also a separate upcoming post. P.S. Love my comedy/concert friend from Ringworm.

Up for Another Challenge

Published March 2, 2026 by helentastic67

Up for Another Challenge

Every now and again I’m faced with needing something done I can no longer do one-handed. So, there are few things I no longer even attempt because I won’t LET SOMETHING BEAT me. But this is so frustrating I offer you a challenge.

If you do not own one of these, I recommend going to buy one? As no one in an office environment needs some pissed off stranger messing around with their office supplies. So, go get a stapler and put staples in it. One-Handed.

Honestly, know your limits. I consider it every time and very quickly decide not to do it. There are not enough sewer words in the Universe to get me through that challenge.

See how you go AND REPORT. You’re welcome.

Unofficial Support

Published February 23, 2026 by helentastic67

Unofficial Support

In the world of disability there are many terms for things you don’t know until you need to and that generally means you learn the hard way out of necessity. Out of your will to achieve something or your need to survive. You learn who your friends are. You work out who you can rely on.

If you don’t have family or friends who can help you do the most mundane things you might find you have a carer who can feed your cat when you go to your dad’s funeral, or you spend a night in hospital.

I don’t know if I’ve mentioned but wait for it. Humble brag, Mika is not food orientated, but she still expects to be fed, every night.

Also, kind neighbours, even after I moved were lovely enough to drop into my new home to feed my fur baby and not expect to be paid to do so. That is officially an informal support.

When I moved late last year, yes, still so much trauma around that. The moving day left me with all my tech, TV, AMP, CD carousel, drying racks, lamps, mirrors, candlesticks. So much I valued and needed to be moved and every day I was reaching out to busy people to see what they could help me with.

Now, I’ve got friends, I love and respect their time, I have later discussed my need at that time and that they were not friends I felt should need to help me for things like that.

You would be surprised when you really need help how few of the people you know are not free and I would not have expected people to drop anything to assist me, so I started asking carers who I had no funding to book them and bit by bit over the last week I had friends come from two hours away who helped when they had barely slept going through a shitty break up. Who came and helped for literally me buying them lunch. Fuel to get them through.

A carer who literally treats me like family assisted me with a few car trips and when I tried to sneak some cash into her hand, she vehemently told me that “Anybody that took money from me, shouldn’t!”

OK, fuck it. It’s now almost 1am, better go to bed.

My Egg Dealer

Published January 26, 2026 by helentastic67

My Egg Dealer

Some days life is full of surprises and the good kind which is rare. I think we can all agree. A few weeks ago, after deciding to make room in my fridge and my freezer it was necessary to go visit my Egg Dealer. I stash things in my freezer to build up a care package for George. When my Tetris skills are pushed beyond their limits an obviously to the market is critical. On this particular Friday, my carer and I headed in the direction of the space George inhibits. As I walked up to his counter a younger woman stood between us. As I walked up to her, she stated, “I love you!” Aw. So, I replied “I love you!” I mean, what else do you do? She repeated herself and I obliged. And she asked, “Can I give you a hug?” So, I gave her a hug. I later shared this scenario with my Sunday carer who looked at me quizzically, I stated, “intellectual disability?”

Back to my hugger, the hug came to a natural conclusion and like the character Alf from the self-titled TV show she ran off. She had left a shopping bag on the counter and I picked it up and offered it to the woman on my right. I confirmed she was with her. She informed me she was her carer, I pointed to my carer to indicted we understood.

So, George, what are you having for dinner tonight? He told me he was being taken out for dinner. It was his birthday on the Saturday. Such good timing, I told him he had eggplant parmigiana for his lunch the next day. I don’t normally deliver people savoury, but I told him I liked him to know I had range. He then gifted me my standard order of thirty eggs. He would not let me pay him, he said it was his good deed for the day.

Project Managing

Published December 7, 2025 by helentastic67

Project Managing

Lately, I’ve cut back on my appointments like physio, hence the lack of motivation or time to blog. I am not looking forward to the grumpy chastising from my acupuncturist who I should be seeing weekly as he is free. He is a GP and covered by Medicare so I really should be getting my ass there. And I think I haven’t been since April or earlier, but while I’ve been skipping my physio/neurophysiology and a few others, my pain increases as does the discomfort. It’s all been because they are using my funding to do report writing. Yes, you heard correctly. I’ve had to prioritise reports over pain management because I’m going to review again with the NDIA! Because I’m running out of funds.

I’m currently on my third Support Coordinator, who is like a case manager. Except, mine has run out of funds to do her job. I’ve been nudging with emails most of this year for her to get reports to people that are doing things for me anyway. So, I think every year I do more and more of that role. I’ve finally got a new Gun of an OT.

I’m hoping now, just celebrating the one-year anniversary of being in my forever home, that I can have a mobility scooter and somewhere safe and secure to keep it and charge it. And the NDIS funding in which to make that all happen and finally, not me to project manage all of that to make it happen. Even getting the Owner Corp and the board of residents, on board to allow these things to happen is a hair-pulling exercise as my existing shed is too tall and gets in the way of the sprinkler system.

I think the OC is largely against my installing a shed because it might set a precedent for others, also wanting to put up sheds. That whole “but she’s got a shed mentality…?”

In the last apartment complex the OC asked what I was storing in my shed. I didn’t immediately take their interest or concern seriously. I answered with my usual wit and humour “I’m not making Ice in there!” Breaking Bad made it seem like a good starting point to run successful manufacturing enterprise in a caravan in the desert. People these days make ice in rental properties which means they are no longer safe to live in. My real answer later was “My mobility scooter, gardening supplies and sometimes my excess tinned tomatoes and passata and panettone” I offered to use the light from my scooter to help better see what was really in my shed and I provided them with photos. It was exactly as my last statement and they dropped the issue.

Finding Time

Published December 1, 2025 by helentastic67

Finding Time

I’ve weirdly worked out the best sweet spot for blogging these days. As I’m always too busy to sit in any cafe let alone my favourite cafe in Clifton Hill. Actually, it’s in North Fitzroy. I still get to that cafe every Wednesday as my weekly Chiropractor appointment is very close to there now. However, stopping all the busyness long enough to type some words that tell a story and make sense; to share a lesson or learning, without being distracted.

Impossible! And I’m too easily distracted. Always something I want or need to do that isn’t typing words on a keyboard into an email I’m always drafting. I’ve now been in my forever home a whole year. Can you believe it? The 13th of November was the anniversary, a few months ago I would have said the perfect day/time of the week to sit and blog would be after getting home from physio, with a coffee by my side sitting at my dining table. Music in the background. However, while I should be fanging it home on hellonwheels after a kip at Physio, I would have had enough rest to not want to come home and go to sleep again and miss the perfect time I don’t need to do all the chores one-handed, cook dinner, bring in washing, maybe hand clothes on racks inside, etc, etc. So, it is to say, I’m as per usual behind.

Behind on the Adulting, behind on the responsibilities and the last fifteen plus years of trying to live well with disabilities, trying to maintain some parts of Original Helen and carve out a vision of Future Helen is catching up on me.

Problem Solving

Published November 10, 2025 by helentastic67

Problem Solving

I’ve been trying to solve a problem in my new home since moving in last November. It’s such a mess.

There are so many moving parts and potential solutions but more people to ask permission from before implementing solutions to the problem. So, the work around feels like a real fuck around.

Sometimes, I wish a clairvoyant or divine entity would just point you in a direction and narrow the field for you.

Here’s a real estate example which has been the perfect example whenever I’ve been on the hunt for a new home. I gave this example to a friend earlier:

If you wanted to only live in Ivanhoe and you had a set budget, and you wanted a certain number of bedrooms, bathrooms, car spaces, etc, etc. And if you couldn’t budge on any of those parameters. Maybe money wasn’t a limiting factor and you absolutely had to live in Ivanhoe; you would spend what you needed to spend.

If budget was important you would start to compromise on different things depending on what you could live with. Maybe less bedrooms, or whatever, but eventually you didn’t even live in Ivanhoe.

Maybe a clairvoyant could point you in the right direction and suggest Ivanhoe. Yes! But start looking for something a little smaller, or …..xyz. Then you wouldn’t waste your time trying to find all these other solutions.

Just an FYI, I didn’t have Ivanhoe money so I’m just giving that as an example. People that live in Ivanhoe have Ivanhoe money. You can’t hate them. You just appreciate them.

This is one of the major things on my list I’ve been chipping away at and made all the worse by a “friend?” suggesting I needed to get on my issues, like I was being lazy? Who needs enemies when you have friends like this?

So, the problem? I feel a part two coming on

I’ve had my mobility scooter AKA Hellonwheels for the last 15+ years and every time I’ve moved, I’ve had varying degrees of storage and weather proofing, security, etc in storing my Hellonwheels.

Some places I’ve lived at were easier than others for scooter storage alone. One house I rented didn’t have room to put my shed up for the scooter, so I ended up putting a BBQ cover over the scooter in the backyard close to a power supply and using locker straps around the cover to secure the cover and waterproof my scooter. It was a fuck around solution.

At my last rented home, an apartment, my car space didn’t have power so I was able to swap with a neighbour so I could erect my shed, park my scooter inside and charge it. I also stored my gardening supplies, and at one point my oversupply of pasta and tinned tomatoes, and my panettone.

I am such a Nonna!

My landlord queried what I was storing in my shed and I suggest Owner Corp and landlords do not have a sense of humour. Don’t say what I did? I responded to their original query that I wasn’t cooking meth or anything. My shed wasn’t big enough for that and I ended up using the lights on the front of my scooter to illuminate the inside of the shed to show them the contents. Seriously!

And while I was living there, I could go in and out of the only entrance to the garage on my scooter, I could go straight into my shed or go up on my scooter in the lift without causing damage. Parking near my apartment door and transferring items gathered into my apartment one item at a time before returning my scooter down to the shed to store and recharge. When I had more to take up and less time, I’d unpack items into a market trolley I stored in my shed and take that up.

Every pedestrian entrance to that complex had zero access for a scooter, and therefore no access for a wheelchair, except the B1 level or the carpark, just to give you a bigger picture.

Good thing I only have used my scooter for solo shopping missions locally as well as prompt local appointments where I get to maintain a level of independence.

So, when I moved to my forever home, the real estate agent showed me the apartment. My car space, the lift, the direction of the closest power supply to my car space and basically gave advice on both my disability and access to things he had no working knowledge on and directed everything to be sorted by the owner Corp when the time came.

I don’t know if anyone else has had to deal with an owner Corp, or had to solve problems of access for someone with a disability? And under the NDIS I have people for that right?

I prompted my support co-ordinator if she could get on that and sort things so when I moved, I wouldn’t lose my independence around needing my mobility scooter. After multiple prompts I was provided with a company name and the comment that they were expensive.

You might imagine the title of that person, being a Support Co-ordinator would mean they um, Support and Coordinate?

But it often means THEY DO NEITHER OF THOSE TWO THINGS!

So…

Blogging

Published October 20, 2025 by helentastic67

Blogging

I remember reading a blog post in my early blogging days by a very prolific and consistent blogger who I think stopped posting in the last year or so did a very good public announcement about not doing comments longer than a post you are commenting on. I was so guilty of this in my early blogging days in my desire to share hints and tips of living with my kind of disability and how having carers really helped. I know commenting is a skill I’ve lost in the recent upgrades from blog site to webpage.

But something this particular blogger instil in me, is to not comment a longer comment than the actual post. Many a time, I’ve written a lengthy comment only to reread then delete the whole thing. I guess it’s nice to give someone a bit of positive reinforcement, but you need to hope they edit or read before approving your comment on their blog. Otherwise, use their post as inspiration and write a post on your blog to link to them.

The Absence of Light

Published September 21, 2025 by helentastic67

The Absence of Light

I confess, toward the end of winter I did a little retail therapy at a merino wool sample sale. I bought this fantastic black jacket that is a bit more original Helen. A term I use to refer to me before my disability. If weather permits, I would live in black. It’s my favourite colour despite black not actually being a colour officially. It’s an absence of light. I’ll give you a moment to ponder this.

I have a good wardrobe of woollens these days as I can’t always put a jacket over warmer items and a full jumper just hikes up in all the wrong places. Or I can’t put my arms down as I resemble a penguin?

If in Melbourne, dress in layers. Can not give better advice.

I think it’s every five to eight years I add to my winter wardrobe, so I have more options but I’m already going to miss that jacket.

Expectations From Others

Published June 30, 2025 by helentastic67

Expectations From Others

Sometimes, there are little things about having a disability that you would never imagine or believe.

People will always imagine everyone treats me as a human being that deserves respect, love and support and that might feel fair and truthful for some of the time. However, on occasion someone you least expect will throw their emotional baggage at you they refuse to deal with themselves, I gather.

When I’m depressed, I hibernate to minimise fallout on others. I’ve found biting and hissing at others just makes them less likely to sign up for more.

It’s not for everyone. It’s not even good for a long-term solution for anyone with mental health issues. But I like to consider I’m taking responsibility for my issues and not projecting my shit on others. But other times, when someone wants to pick a fight with me, they will throw it in my face that I’m uneducated.

I’m sorry! Did you hear me?

About ten-years-ago I had an OT ask me “How far I made it in school?” I was offended. I finished secondary school. Then completed three years of Tertiary, Arts, sure, however, I’ve since completed a leadership course of which this blog was my project. I also did part of a Certificate IV in assessment and training but don’t even start me on that.

I never had to do a four-thousand-word essay until my first year of tertiary. My art history lecturer thought my presentation on Pop Art and the artists Andy Warhol and Roy Lichtenstein was brilliant. I know it may sound like I’m justifying but!

One thing I would never do is kick anybody when I’m struggling so I feel better about myself. So, you may be able to tell I’m having a hard time.

Sometimes, being one-handed, having half one’s eyesight, not being able to see. Work catches up on me. And as per I’ve some blogging to catch up on. I really don’t like blogging as a reactionary measure because I like to let the dust settle but maybe I need to rant.

Then I foresee many posts to context the ranting. Alas, it is 12.30am, and while this is early, I feel I should call it a day. Unpacking this shit always feels like unpacking dirty laundry.