Botox

Published September 23, 2016 by helentastic67

botoks_allergan_ilac

Botox

I’ve had Botox! Four times for free! Ask me how!

Okay, this is how I like to break the news to people because the only thing people have heard of Botox being used for, is to pump in the lines on their faces to get rid of the wrinkles.

But people get it for other things.

They might get it injected into their scalp, armpits or even a woman’s bladder. http://www.webmd.com/urinary-incontinence-oab/news/20150515/botox-overactive-bladder

sweat-glands

The bladder, I’ve not heard much about, but the first two I hear it helps with perspiration problems.

Keep in mind, in no way, shape or form am I doing a sales pitch for Botox (botulinum Toxin)

https://en.wikipedia.org/wiki/Botulinum_toxin

Hear me when I say this; it is the MOST TOXIC THING YOU CAN PUT IN YOUR BODY.

But anyway, I haven’t been lucky enough to want/need it for vanities sake!

I’ve had it out of necessities sake.

Twice in my arm and twice in my calf for what’s called Spasticity!

bent-wrist

People who suffer ‘stroke’ or ‘stroke like symptoms’ like myself will have an arm that won’t relax and straighten. In extreme cases, some people will have a hand that will not open.

Imagine what happens if you can’t wash or dry your hand. It can lead to other problems, like a stroke is not enough. Broken skin conditions don’t help.

They are very careful with where and how to inject exactly the right muscle for the best effect…

In the correct muscle in the arm, it relaxes other muscles lower down in the arm and ideally the hand. It’s ideal to have a good STRETCH OF THE hand to be able to work on the hand.

It’s every important to do a lot of OT at this time to maximise the benefits of the Botox.

Because after 3-4 months the Botox wears off and hopefully when the muscles that were ‘relaxed’ by the Botox wake-up there is a better balance between those muscles and the ones exercise have been working on.

You generally don’t have Botox all the time because you can build up an immunity to it.

I always like to use the example that one day all those faces in Hollywood will simultaneously drop. Sad face?

I might do a You tube demo to show what Botox in the calf is for…………………………….

injection-sites

injection-calf-muscle

First World Problem

Published September 19, 2016 by helentastic67

first-world-problem-1

First World Problems

You ask anyone with a disability what they encounter on a day to day basis, they will take most things in their stride after a while.

Early last year, someone I knew was banging-on Social Media about having some elective surgery to a sports injury (OK, elective is debatable).

sports-injury

But, he had surgery, a short stint in hospital, then inpatient rehab for a few weeks, then home to continue rehab as an out-patient with a boot, what-not.

Where normal life of work, study, family would continue pretty close to normal.

Really, what annoyed me about this was he really wanted sympathy and I didn’t have it for him because at the same time I was upstairs in the same rehab facility.

And in my room of 4 beds, I was the Neuro (Neurology) patient in the room. And I was there because I’d had Botox in my calf and my leg put in a cast!

attitude-quote

Have you ever heard of such a thing?

And no, Botox. Not just for young and old to make them look younger!

I will explain Botox in my next post.

Guess, I’m writing that one now too!

Advocacy

Published September 12, 2016 by helentastic67

advocacy-2

Advocacy

People don’t realise how much self-advocacy is involved in having a disability and remaining independent.

People would think I have everything in the whole damn world thrown at me because I have a disability.

However, in reality, I’m forever pushing about 5 different issues and at any given time.

You probably wouldn’t believe me but on my limited income I live in private rental. Yes this means I qualify for Rent Assistance, but it hasn’t increased since 2007 when I first qualified for my pension and while rent has continued to increase, Rent Assistance has never increased in line with the market.

The reality? THREE times I’ve moved since 2007, I’ve had to move further from my supports and comfort zone, further from the city. Let’s not forget, I have to compromise, quality of my home and size.

advocacy

(I went to an open for inspection on Saturday as I’m having to contemplate moving) and the kitchen was crappy 70’s! Not even nice or retro 70’s! We’re talking three kinds of BROWN TILE where there was already BROWN CUPBOARDS! In a really small space, I can’t do it!

I grew up in a brown 70’s house (my dad still lives there) and a BROWN SCHOOL UNIFORM. I’ve suffered enough!

NUMBER 2! My second issue I’m dealing with right now , I’m dealing with the Government and my 2^nd appeal so my pension is not reduced every fortnight for the rest of my natural born life!

I’m not being melodramatic, they really want to reduce my allowance at a small amount per fortnight for the next 24 years!

Keep in mind, they harass me every 3 months threatening to take a significantly larger portion that would see me not pay my rent or eat!

Also keep in mind, I’ve previously stated eat Salami to shorten my life and if this keeps up I won’t be able to afford Salami either.

Perhaps, if I’m feeling a Part 2 to this, so stay tuned….. NEXT!!!!

advocacy-1

12.30am

Published September 9, 2016 by helentastic67

Night Owl

12.30am

Wow, look at that! Got motivated early. I seem to get very creative after midnight and that is of course bedtime for most normal people. But we already all realize I’m not normal.

I don’t know when I started being a night owl. Probably in my late teens. Mum recently reminded me, I would come home from High School and go to bed for a nap. After dinner I would get stuck into my artwork and stick at it for hours.

night-owl-quote

When I was 16, I worked at a Supermarket part time, as well as High School on top of babysitting my baby sister. I moved away to study when I was 19. Continued to work also and started going to clubs in Melbourne. This became my social outlet.

And I guess the bad sleeping pattern continued. These days I’m lucky if I can skip the pre-dinner kip, but by 10pm I hit my second wind and become very productive, even if I’m just glued to the couch sorting admin and doing a little drawing.

night_owl-1

It is really hard for me to switch off.

I have a very busy brain, but I’ll get to that another day.

busy-brain

In the meantime, I’ve always got plenty of stuff that needs doing and I might be one handed but if I don’t do it, it doesn’t get done.

So I do it…

Black Dog

Published September 5, 2016 by helentastic67

depression-negative-feelings

Black Dog

There is a thing that happens consistently, I think its DEPRESSION related where everything gets too hard and shit is stacked on top of shit and we get overwhelmed.

So, when if you broke things down to one problem at a time and someone give you some contacts or solutions you would generally think they could move/motivate themselves to take that first step, but what really happens is by then they can’t see beyond the overwhelming DEPRESSION to help themselves.

Poem depression

But they can’t!

I think it’s okay to be DEPRESSED. It happens. It’s OK to admit you are and definitely to ask for help.

RU OK

It’s not okay to sit and wallow too long and when given the tools to wait to be rescued.

There is a great sense of achievement to take the first step and make a call.

It’s hard to make decisions when you are DEPRESSED. But when you do, it makes it easier to do the next thing.

I highly recommend not just the method of putting out ‘spot-fires’ but picking the quickest and easiest solution to help boost morale.

I know I make it sound so easy. And it’s not, but onward and upwards.

Grumpy Cat

2.10am

Published September 2, 2016 by helentastic67

night writing 2.10am!

Let’s do a little experiment! Let’s see if I can successfully substitute the F Bomb! (Helen’s favourite word!) With a substitute. Also starts with ‘F’!

Keep in mind my GP will gauge how I am mentally by now many times I drop the Fudge word! When I’m frustrated I use the Fudge word a lot and when I see my GP I debrief him on all the things incompetent people aren’t doing. We kind of case manage my care together which works well.

People with an ABI need a lot of sleep. I can’t recall when I last had a night of 8 hours undisturbed! Seriously, maybe never!

I go to bed late (or early) I think you can tell. Tonight I managed not to have my pre-dinner kip. It’s a miracle! And surprising considering the start to my day.

Went to sleep at 2 am.

Stupid neighbours think it’s OK to run their washer/dryer all night long disturbing my sleep!

So already on bad start!

Fudging asshat! Parks his Bogan car outside my bedroom window. Insists on warming his motor like it’s the 70’s and his car is vintage – it’s not! At 6.30am – Fudge!!!

Asshat! Goes back inside and comes back 5 minutes later.

Can’t believe I’ve put up with this 3 and a bit years!

Get back to sleep!

Instagram-c5c344

8.30am – there is a chainsaw!

What the Fudge???

But wait! Then a wood chipper!

FUDGE!!!

30 minutes and it’s done.

Bet back to sleep after hitting the MEPACS ALARM!
(Diverting a 9.30 wake up)

Had put on my washing machine so again, disturbed sleep.

10.45am – my carer arrives early!

FUDGE!!!

Discussed today with my GP the lack of follow-up by a hospital Orthotists to get funding application for a 2^nd pair of shoes.

shoes for afo 1

For say. If these ones get wet, get sweaty or die because they are my only shoes to wear with my AFO (Ankle Foot Orthotic)

“FUDGE ME!” I tell my GP when he asks how hard it is for the Orthotists to do it?

He smiles and I try to look a little repentant.

We already have a backup plan.

I have an appointment with a private Orthotists I’ve seen previously. He won’t have a problem doing the forms to get me the funding for both an AFO and a pair of shoes.

ankle+foot+orthotic+modification

It’s just going to take some time!

And I guess the NDIS kicks in on the 1^st of July!

FUDGE!!!

Time for bed.

My first wake-up call is at 6.30am after all!

Strangely, my brain is all systems ‘GO’!

F off trying to sleep

2 am

Published August 29, 2016 by helentastic67

2 am 3

2am/Again!

I have written a million posts in my head today! Have a busy week and Melbourne is hot!

Not yet mentioned perhaps but I don’t cope in the heat!

2 am 1

Have a 4 day weekend at the end of this chaos – can’t wait!

Promise to catch up on some writing then.

Sweetdreams…

Grumpy cat

Hidden Pain

Published August 26, 2016 by helentastic67

hemiparesis-simulator_1

Hidden Pain

So, I know I get a little backlash out there. My disability has managed to leave me with the ability to walk with the aid of a walking stick (Not complaining).

And therefore I have a level of independence to go out and do things.

Yesterday was Monday, I had my Carer at 9am. We were done an hour later. I made my own breakfast and light lunch. I actually ate my breakfast on the couch for a change. I often eat it in a hurry on the train to the city on the days I go out. Ridiculous!

My appointment wasn’t until 3pm and while I really wanted to go back to bed and to sleep I figured my Landlord was due to mow the lawns. I’ve been watching it get long and overgrown the last two weeks. And let’s face it, I had to get to Medicare to claim two receipts. Medicare is my ‘Other Bank’ and I don’t claim much these days.

So, off I went to the city. That translates like this;

Text my Young John (will tell you about him another time; get your tissues ready) Young John drives me to a train station closer to the city. It’s more convenient and a train goes through every 10 minutes.

Get on train and in the city in about 20 minutes. The train platform is an easy one for me, it is just on Platform 1 so right out onto Flinders Street and cross.

I crossed between 2 pedestrian crossings to save time. Traffic had stopped all the same.

I made a stop at the shop I used to visit to have a quick chat to Peter. He was the 3red stop for me, back in my Promoter days every Monday Peter runs a little independent Music/Clothing/Tattooist/Body art/Gothic shop that is literally down an alley and down in the basement. Awkward stairs. Handrails not on the right but I make it in one piece, because I won’t QUIT!!!

I once flew down the stairs and up again but after a little catch up.

No independent bands touring anytime soon either. Peter goes up and comes back down for me in the lift.

Still had to do about 10 steps down to street level. Anyway, I give a nice older lady some directions as she looks a little lost and confused (don’t we all?).

Walk several large blocks to Medicare. Feel good! Big strides, can see and most people respectfully move out of my way. Not everyone, but most!

Medicare a busy place. Don’t want to wait today so I fill in the forms. Very little information required. Staple and put in the post box.

They will process and by tomorrow, I’ll be $106. Richer!!

Anyway, cross two streets. And wait for a tram.

Catching trams in Melbourne

I’m only going halfway home as that’s where my appointment is. But the tram isn’t a flatbed tram. It’s not disability friendly! So, three big steps. Word from the wise, lead with the stronger leg and I always sit just inside the door. Commonly referred to and by other disabled friends as “My seat!” We each call it that and when we are together we prioritise who needs it more. Or this allows me to sit there because they are gentlemen…

Anyway, get to Collingwood and go into shop that requires a few steps. No handrail. Walk 15 minutes to appointment. Was warm as the last day of summer in Melbourne.

Time to sit for a bit before my appointment.

I see Gerry who does Shiatsu every 3-4 weeks for an hour, he works on my back, shoulders and arms and a little on my neck.

Afterwards, he gives me a lift up the street (it’s uphill) and I heave myself up onto the tram again for the 20 minute journey home.

Off tram at my stop and walk 10-15 minutes. Happy to get home, not too desperate for the loo. 5 steps up and inside!

So Tuesday. Got the day off today. No appointments! Just phone calls to make sure my Carers are sorted for the next 10 days and any transport needs.

Struggle to get it together! Things hurt! For once my head doesn’t hurt but my thighs hurt and my right shoulder and arm. And it hurts to walk. Want to make reference to feel like, I’ve been on a horse for a week, but don’t know what that’s like. Dragging my left foot a little today.

Lastly, while my transport yesterday was all fine and Gerry volunteers his time today I’m paying for it!

Every step, every curb I negotiated I’m feeling it today! And tomorrow we do it all again.

Closer to home this time, but Wednesday is my pinchy/stabby day.

Chiropractor followed by Acupuncture. Two appointments I have weekly to help me maintain my independence. Having a disability really is a full time job…

Waxing

Published August 22, 2016 by helentastic67

waxing

Waxing!

Wax on! Wax off! OK, this is not going to be a blog about the 80’s film Karate Kid, but life is short and I covered some intense replies yesterday.

If you forgot, didn’t realise and take it all in, recapping I have less sensation on my left side, generally looking like a stroke and referred to as a Hemi. Has a longer term, but let’s start with that.

(Hemiplegia: total or partial paralysis of one side of the body that results from disease of or injury to the motor centres of the brain)

hemiparesis-simulator_1

Every so often, I still like to get a leg wax. No one see’s my legs that count. But every now and again even my Carers will comment. They don’t get out of control, but word from the wise;

HEAT ENCOURAGES HAIR GROWTH!

I try to keep an eye on them and I gauge it as;

It’s not that bad yet!

A little longer!

Start saving!

And God damn it! It’s going to hurt!

So, Fun-Fact Ladies

Things that make waxing hurt more.

Crazy lady hormones, 1 week on either side – JUST DO IT!

Stimulants! COFFEE!!!!!

Save your coffee for after waxing…

So, you would think with my ‘Hemi’ that my left leg wouldn’t hurt as much?

I should be so lucky! They fucking hurt the same!!!!!!

Today my beautician actually asked which leg I wanted waxed first. To be clear, she does them both at the same time and you rotate like a chicken on a rotisserie “thing” in an over, but the reason she asked is because I’m right handed.

Therefore the left leg will hurt more. To be clear, it’s nice to get a leg wax every now and again, even if I don’t wear shorts out of the house and only my Carers all woman see them. It’s something I do for me.

But these days, I even self-medicate for a leg wax!

I find 10mg of Oxy normal is my ‘Happy Place’ for a level of tolerance! 3 hours of pain relief while my left leg twitches is about all I can deal with.

So, there you go, 1 F** Bomb and an amazing little ditty for something different.

waxed legs

Final result…

2011

Published August 19, 2016 by helentastic67

Kitten lying down 2011

Remembrance Day! Let’s come back to that!

Don’t get excited, not in the way we would wish!

I also learned about Morphine as a form of pain relief!

On the 6^th January I lifted a heavy suit case one handed!

My OT’s had been very impressed with my maintaining a level of independence often carrying a 10 kg bag of Kitty Litter through the house to save my Carers doing it or my ex, before he left.

But that suitcase was the straw that broke the camel’s back. First, I think it just hurt to sit! It was pure agony, pain shooting down my good leg…

I has some tests, x-rays and muscle relaxants and after a period of time trying to find the right drug for pain relief and the right tests. I found myself spending a year on my bed waiting for surgery to a bulging disc.

Bulging disc

While working my way through enough Oxy to drug a horse.

While in hindsight, I’ve spent a lot of time with a headache, I’ve likely said, I wasn’t one to reach for pills. I wasn’t anti-pills however, there was always other ways to treat it. An Osteo (Osteopath) or a Chiropractor!

A migraine always meant a trip to the Chiropractors to put my Atlas Bone in or adjust it! (http://simpleascension.com/out-of-alignment-atlas-bone-now-known-to-cause-dozens-of-health-issues/ )

Good night sleep, back to normal!

Where was I? So after a period of time found the perfect balance of drugs for maintaining a prone existence that year was;

20mg’s Oxy Contin during the day. That’s the slow release!

10mg’s Oxy Contin at night.

And if I had a brief taxi ride to my chiropractors twice a week, I would take 5mg’s Oxy Norm. (Fast release, but really only 3 hours!)

Chiropractor joke

I didn’t see much of the world that year!

I would taxi to my GP and see him while lying on his table (bed)…

And your likely wondering what the significance to Remembrance Day is? Keeping in mind I lifted that heavy suitcase on January 6th. Remembrance Day is November 11. that was the day I finally had surgery. I’d had 2 Nerve Root injections. Which were not my favourite and hurt like a needle being rammed into my spine without anesthetic. No wait. That’s literally exactly what it was. Twice!
And that comment about the horse? Oh, yeah. At the end of the year I saw my dentist for a small filling. He gave me an injection and even after a few minutes I could still feel him drilling. After a second injection, I could still feel him drilling. Now, I hate to repeat myself but after the second injection I could still feel him drilling. But after the third I was all good to go!
My dentist who knew I’d spent the year on opiates for pain relief likened me to a horse because I’d build up a tolerance and the average dose wasn’t enough.
Ironically, my filling was on my right side. And I had to go to my GP afterwards. With my facial droop on my left I already slur a little when I speak and if I’m particularly tired. So, that day I really did sound as if I’d had a stroke. Luckily my GP is fluent in several languages including stroke. Winning!