Life one Handed

All posts tagged Life one Handed

Hostage

Published December 24, 2018 by helentastic67

Hostage

Hostage

There is a reference I often make to what it’s like having a disability and I’m certain people who have more severe disabilities than I, feel this way.

Disability Hostage

Now, I also premise this by saying I’m pretty sure my family don’t read my blog. So I’m good to go. I can write what I like.

Let me just say, the breakdown of my family is this. My parents are both still amongst the living (not complaining), they divorced when I was about twenty-five and I knew it was coming for the ten years before that. I have an older sister by two years, who I see once or twice a year (she lives closest), I have one surviving younger sister (16 years younger) who lives with my mum. My parents both live three and half hours drive away, my father, I see at Christmas when I’m up that way. He won’t travel to Melbourne to see me and if in town, he won’t bother to visit either. He has not seen most of the places I’ve lived, in the last twenty years. I think he’s seen one, he doesn’t call me, I call him.

Family

I speak to my mum twice a week and while that’s five times less than it used to be, we got along much better than we used to. Mum comes down every so often for serious appointments and such.

Ah, background done. Now to my point!

During smiley holidays and such (Christmas, Easter, what-not) I will go to spend time with family. It’s that or stay at home alone. So, I go and then I lose my independence immediately. I have my mum’s bedroom and I hibernate. I want a shower I have to negotiate when someone is prepared to assist me if I go outside, I generally don’t step off the verandah as the last time I went outside my mum called to me: “If you go for a walk be careful by the water tank there’s a snake over there!” I promptly went back inside to relative safety. Motivation to go anywhere is hard to draw on.

Snakes

To go anywhere requires someone to drive me either twenty minutes to a decent meeting place with medicine(coffee) or an hour where I can arrange to meet friends who might visit family once a year at Christmas time. Any of these adventures requires money I don’t have and logistical nightmares of being able to get home again when I need it.

Drive for coffee

I put my things in the fridge and when I go to get them out again, two other people have moved them to get to other things and I might be standing in just the wrong spot/angle and my things are in my blind spot and I can’t see the forest for the trees.

Fridge

The environment is a very comfortable space for the two that live there and throwing me into the mix I feel terrible to put someone out to be able to join in. Everything I can do to contribute, someone has to move things to prepare for me and I feel more of a hindrance than an adult. So, I hibernate.

Hibernate

Oh yeah, where I spend Christmas, I’m also socially isolated by other means, no mobile reception, I divert my phone and if they can’t remember their wi-fi password I’m screwed. So, hostage. Like I said.

Christmas Hostage

 

Melbourne

Published December 21, 2018 by helentastic67

Melbourne 1

Melbourne

Well, I think it’s about time I mentioned how much I love Melbourne and why. A little bit about the layout of our fair city.

I love Melbourne

I think I knew from my teenage years I would move to Melbourne. I grew up in North East of Victoria and it seemed the town (cough/ choke) they consider it a rural city, just didn’t evolve or progress. So, Melbourne here I come.

Moving to Melbourne

We always did day trips to Melbourne (3.5 hours by car) to go to Art Supply stores for my older sister, to check out the National Gallery (now known as the NGV. Because we have to ACRONYM THE SHIT OUT OF EVERYTHING, right) and to University Open Days. I got to tag along when my older sister was getting ready to go to Uni, she ended up being a poor art student in an actual rural University, country town (not in Melbourne).

National Gallery Victoria

However, I moved to Melbourne when I was nineteen, I transferred my supermarket job to the city and was a poor art student for two years.

I first lived in Brunswick in a shared household scenario. That is a harsh rude awakening to life, but you make it work. My parents paid my rent while I was studying and I paid everything else. I was a student for only two years. The course was a second choice for me and while I didn’t continue in that career, I discovered the Alternative Club Scene, which became my social life and where I discovered a different style of music culture and such.

Alternative club scene

 

Yet, to cover the club stuff, but not today. Maybe in this series, when I first moved to Melbourne, it was 1992. Rent was cheap, so cheap, only $50.00 per week (and my parents paid it) and I lived in Brunswick, which was not cool then. I lived in that area for a year or so, then relocated to South Yarra.

South Yarra

Here’s the fun part.

Melbourne breaks down like this – There is a river that goes through the centre, called the Yarra (pronounced Yarrah) don’t get excited, it’s not a river to go swimming in, unless it’s an era of concrete boots. (Mafia, crime etc) and that’s not swimming, that’s drowning.

Yarra River

Anyway, it’s considered everything North of the Yarra is North-side, South of the Yarra is the South side. Then there’s the Western suburbs, which we like to dis (disrespect) and the East, my take on the Eastern suburbs is ‘old-money’ and I don’t know anyone who can afford to live there. There are pockets all over the inner city, Sunshine, Prahran, Brunswick, Northcote (all over Melbourne) where the wog’s settled when they immigrated here, which was around 1940’s.

Western Suburbs

There is still a sense of presence in all of those areas of that generation of Europeans. I think the Western suburbs even more so and they kept the factories and car industries alive.

Wogs

Anyway, it seemed once I move to the southern side of the city, that’s where I thrived. My club career took off (if you can call it that) and that’s where I stayed.

For some years, I lived in several places a stones throw from Chapel Street, first in South Yarra, then Prahran, then in Windsor. Now back in the 90’s, Chapel Street was the place to be, designer label shops, café’s, street culture people.

Chapel St

The place I lived in South Yarra, (to this day, the cheapest rent I ever paid. $262.15 per month) there was a Porsche mechanic three doors down, so they would work late and you could hear them ‘Fanging it’ in the back streets at 3am.

But anyway, I digress.

I only recently realized I wasn’t even in Melbourne that time for ten years, I guess it felt longer because I kept myself so busy seven days and nights a week. But alas, sooner later all good things must come to an end and I was short changed by one of my club bosses and I quit and they retaliated by firing me from my bread and butter club job. (more on that topic another time) That and a crappy apartment with a terrible smell ended my first adventure in Melbourne. I moved back to the country for two whole tortuous years.

Back to the country

I went to live with my mum and my younger sister. Allow me to paint a picture. Hormonally, my mum was sliding into the Pause (Menopause) and my younger sister was at the beginning. It was like Michael Jackson’s Black and White album ear and I had to sit her down and explain Michael Jackson was really black. Can you imagine how that conversation went?

Hormonally Challenged

So, I was living way out in the country, wood fires for heat, dirt roads, didn’t drive, had to go for a twenty-minute car ride to get to town where twice a day (once at 6am so that doesn’t count) there is a V-Line bus that takes you to other towns and the train to Melbourne.

Vline

This was (I refer to it as) mosaic phase. I got active again, did some market stalls (didn’t make money/didn’t break even) and because seemingly music was still the same in my country town, I grew up in had not changed at all.

I proceeded to attempt to start an Under-Age Music Club. I registered it, I got a bit of a group together to do all the things and promoted it to the High Schools through my old contacts and network.

Underage

There was a music shop in town that had been there from when I had been a teenager and the owner would be visited by anyone returning from wherever it was they had escaped to.

I had hoped to get some space to run said club from and while I had some contacts and I made some noise. It never got up and running.

It didn’t close away an opposition music store coming to town (which made the music shop owner very happy) but didn’t change the music culture of well anything. After two years of trying to make stuff work living in the country.

Music culture

(if you don’t drive, don’t go to the pub to drink to socialize and don’t drive a ute) or work there is nothing more there for you and every few months I’d train back to Melbourne to visit all my people, go clubbing and stay each night at a different person’s house (just friends).

Run away

It was time to get back to life in Melbourne, I was effectively made to feel I’d overstayed my welcome at my mum’s and I found a way to go back to the city, which I’ve always felt was my true home.

Overstay

I rented a tiny room in Hawthorn (the east) with a male friend of the family (through my older sister) and only had a few things for a while, where I did a business course to start my own business. I got back into the club scene however, not as a job. After six months of attempting to rent on the south side and starting my own business, ‘to take over the world’ (splutter, cough) I moved to the north side.

Take over the world

I’ve been here ever since. I think my south side era is over. It’s not like Chapel Street Prahran stayed super awesome anyway.

Last time I visited that neighbourhood, I recognised a familiar face while standing waiting for some traffic lights. He must have thought I looked familiar too, although in a different way, because he asked ‘Did we have sex?’ Um, call me crazy (dare you) however I subscribe to the ‘if we have sex I would remember’ and you would remember my name.

Familiar faces

I, of course said no, but not rudely. Kept walking and about two minutes later, I remembered his name, that he worked bar on the second floor at one of the clubs I worked for and that I made a special effort when distributing Brunswick Street, Fitzroy on a Wednesday to time my run to get to the café he worked at, as his day job so he could have a coffee with me.

Remember his name

To be clear, he was mouthy to stoned to turn up to work on time, but I’m just saying my brain injury has not affected my memory.

If you have been in Melbourne long enough you will recognise the banter and throwing shade (need a different term, gentle teasing) about which side of the Yarra people chose to live on.

Melbourne Banter

I was recently on the phone to someone and I indicated to him, while I’ve moved further north (into an unnamed suburb I won’t mention) and I’m on the border of a street I always said I would not live beyond. He responded on the phone that he had told his wife he couldn’t live north of the Yarra because he had nothing to go with a bullet proof vest.

Bulletproof Vest

I laughed but hey SLAP.

In Australia, we thankfully don’t have gun violence like in America (I do have a few American regular followers) and sadly, one happened on Hoddle Street on the north side of town.

https://en.wikipedia.org/wiki/Hoddle_Street_massacre

I remember when it was on the news. I was (how old was Helen?) again, I’m sure to circle back to this topic, stay tuned.

Today’s Lunch – 19th December 2018

Published December 19, 2018 by helentastic67

Todays lunch

Today’s Lunch

Good Mental Health Day

It seems after several months of ploughing through meetings and appointments I realise there are people I have not seen for a while. Social lunches that I thought needed priority to help ease the way into Christmas. So, Monday and Tuesday I caught up with two friends I’ve not seen for a while.

Social catchup

Monday, very local to home I had this yummy beetroot salad, with feta, hazelnuts and orange and other yummy things.

Beetroot Salad

Tuesday, I wanted to try a place one of my carers had mentioned. This particular carer, the conversation went like this, she started with “what are those people? Not. Millennials, the other ones?” I was very confused, you need to give me more. You are telling me this story, not me. She mentioned ‘beards.’ Oh, Hipster? Bingo! I got it right! Love this game. So, Tuesday, found our way to a hipster cafe in Northcote called Tinker. Like typical hipster cafes you need to ask for explanations for made-up things on the menu. After being educated about what a ‘redox beef burger’ was. It’s after you have the detox salad and you want to replenish yourself of toxins? What the F?! I did not have the burger as burgers are a particular challenge one-handed in public and a very happy meat eater not too pleased. My vegetarian friend had this concoction.

Vegetarian

And I had the hot cakes with so much yummy I think I’ll be going back there very soon.

Hot cakes

Today, back to my regular Wednesday haunt and I fear the upcoming holiday spells, finding an alternative lunch spot as it’s the only time they close for a break. So, I guess you can expect some variety in my lunch offerings in the New Year. Today’s offerings, another chicken and turmeric salad with medicine.

Chicken and Tumeric SaladLatte

 

 

 

 

 

 

 

 

If anyone receives a Christmas card from me before actual Christmas? It will be a Christmas miracle! I finally outsourced them to a carer and put them in the post only yesterday.

Christmas card

Lastly, wishing everyone a very Merry Christmas and a safe New Year. I’ll be going home to the country for a week, which will be 4 days too long. Then back for New Year’s Eve where I might make it to midnight before going to bed. Feel free to share what you will be eating to celebrate Christmas.

Merry Christmas 1

Cheers,
H

Stupid

Published December 17, 2018 by helentastic67

Stupid

Stupid

Now, it might surprise you to know that I get asked a lot of stupid questions. I’m generally pretty good at dealing with the ‘stupid’. At times I disappoint myself, I’ve not been able to shut down the ‘stupid’ with my first answer, so when the ‘stupid’ continues if in public, others will usually witness my frustration before the ‘stupid’ person does.

Stupid questions

Fifteen years ago, when I was working and asked stupid questions when on the phone, I would bang my phone on the surface of my desk several time. Next time it happens to you, try it.

Smile to your face

It really can bring a smile to your face.

If the person on the other end of the phone asks what that was for, you can just respond with “That was a stupid question.”

Thats a stupid question

I digress, I wear a badge on my cuff and collar from Vision Australia that CLEARLY STATES.

Low Vision Badge

“I HAVE LOW VISION”

And this is the state of the ‘stupid’

A guy on the tram today, presumed it meant I worked there. Which I’ve found is common because people are idiots and don’t read.

Idiots

I always respond to this misassumption that they should read the badge. This doesn’t mean they bother to read it then, but still, this guys level of ‘stupid’ was next level. He wore glasses, but that’s not really relevant to his question. I imagine he is unaware of what Vision Australia actually does.

https://visionaustralia.org/

You don’t go there for eye tests or diagnosis. The health of my eyes is perfect. However, it’s what’s going on in my brain with my AVM that has permanently affected my vision loss and it’s not coming back.

Low Vision not good

Now you might think the ‘stupid’ is over, but no. He must work in the call centre (no offense to anyone that does) because he then asked;

“If Vision Australia could change just one thing, what would it be?”

Now, that is stupid isn’t it? I told him I wasn’t going to answer it.

Stupid is as stupid does

 

Favourite Things

Published December 14, 2018 by helentastic67

Favourite things

Favourite Things

I would think this would be common for all people with an ABI, but people don’t realise the emphasis and importance on ‘sleep’.

Importance of sleep

So, I seriously think my top five favourite things would be;

  1. Sleep
  2. Sleep
  3. Sleep
  4. Sleep
  5. Sleep

Sleep

Ok, but seriously, in no particular order.

  1. Sleep
  2. Food
  3. Cooking
  4. Coffee/cup of tea
  5. TV

No Particular order

Oh, I know I cheated, putting two together, but I had to keep room for having a cat, which still didn’t fit.

Having a cat

Looking back over my life, the way I often dealt with stressful times, I would sleep.

Life

Damn it and internet.

Internet

Today’s Lunch – 12th December 2018

Published December 12, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Have I told you how I do not like summer? Yeah, summer and Helen with my AVM: Not good friends. Love wearing my cruisey shorts (3/4 length pants) and t-shirts, however if I’m not wearing a black tee shirt and I’m wearing white. It’s too damn hot! Add to that Peri-menopausal hot flushes, no you can’t tell which is from what.

Summer clothes

Also, blogger friend in Florida? You know who you are. Don’t worry, pretty sure I’m not coming to visit. Too damn hot!

Florida

Tuesday, not thrilled to go to a brain injury group meeting in the city. Miss made a noise like she might vomit. “What’s that Mika, you feel sick and I should stay home and look after you?” Sadly, I had to go. Didn’t bring my migraine home until 5.30pm! Then out on hellonwheels for a 7.30pm appointment. It wasn’t far but pilled a little on Oxy made my waxing a little easier to take. Really looking forward to chiropractor already even though it’s another hot one today.

Leg waxing

Have I mentioned 25degrees is my limit? I really don’t get it and today is, oh wait. It’s only 32 but I’m wearing my only white T-shirt already.

Summer

Today’s offering is a quinoa and chicken salad, with my standard medicine.

Chicken Quinoa SaladLatte

 

 

 

 

 

 

 

 

 

Just a thought. If anyone is still reading? Do people actually read this post or do you just like it as goody/coffee porn? (You know, pictures of good food and/or coffee?) Trying. not to feel needy, just working out if anyone’s going to be open to learning anything I have to say on a Wednesday? Or is it just the food porn!

Food Porn

Hit me with a Like and why not comment?

Like and comment

Cheers,
H

Staff

Published December 9, 2018 by helentastic67

Staff

Staff

It’s surprising how often I am mistaken as staff. As in “Do you work here?” or I wish people would bother to ask, but no don’t be ridiculous. That would make sense.

Do you work here

Today I was in my local supermarket and I had a man come up to me as I was waiting to pay for my one item. The man asked me if there was a rest room for the public there. Now, I don’t know any supermarket that do. It was not in a shopping complex and I imagine not, but I suggested the man ask a staff member.

Restroom

I didn’t at all think I should be misconfused/mistaken as working these since I was sitting on my mobility scooter at the time.

Mistaken

WTF

A staff member came past so I asked her.

“Why yes they do.”

What?

What 1

Making Things Count

Published December 7, 2018 by helentastic67

Making it Count

Making Things Count

It may or may not surprise people to know that I have done a Leadership program, which I completed back in 2012? Now, don’t get too excited, it wasn’t a massive degree or such that it would get me a cushy job, working at some multi-national, million dollar paid job, but a portion of Community Development course and the fellow students, all fifteen of us had disabilities (very different kinds) and the course was only two full days a month because the rest of the time it was presumed, because we did work on our individual projects in our own time. Some people worked, some didn’t and while the majority had an ABI (Acquired Brain Injury) or Mental Health and a random MS, Polio, Scleroderma thrown in.

Leadership

Seriously, the contrast and differences were really obvious to me. By the way, my project was this blog. It took a few more years to come to fruition, but within a few years, I now have 230 followers. I call it a win.

Project

Not my point, that’s just the background.

I find because I want my time to be productive and I want to feel like I’ve/we’ve achieved something I step up in groups I go to so it’s not a complete waste of my time.

Productive day

In recent years I’ve stepped back from the Self Advocacy group I was the treasurer, for several years and I’ve concentrated on other things, the DAC (Disability Advisory Committee) I’m part of, in my local community, I’ve been dealing with the NDIS (nightmare) and live really.

Self Advocacy Group

I find myself on the out-skirts of the Advocacy group and at times I end up (self-nominated. I’m such an idiot) conversing and moderating issues.

Moderating

I firstly try to do as much in the moment so it gets done and we can discuss and move the fuck on.

Moving On

Today’s Lunch – 5th December 2018

Published December 5, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

As per usual, just when my Wednesday settles back into a comfortable routine there is a spanner thrown into the works. If you need a reminder, my Wednesday used to completely revolve around lunch at my favourite cafe followed by a short walk to chiropractor then tramming it back to acupuncture close to home then a hearty walk home. But because one of those things relocated from Clifton hill away from the tram route that I rely on. I would catch taxi’s however I am lucky young John fits me into his schedule and doesn’t charge me, in his words because he says he’s a “decent human being”, and I otherwise cannot afford to do taxis and the NDIS expects me to Uber. Hell NO! So, I started getting a carer for a rather lengthy shift just to get me to my standard Wednesday appointments.

Normal Plan

Just pointing out I don’t need handholding for 4 hours but here we are and you may wonder about this “red-tape” I’ve mentioned previously in regards to funding for disability? I learned yesterday the NDIS has decided I can’t use core supports (fancy word for carer hours) to cover the mileage for my carers. I will now be billed for that separately. Only .80cents a kilometre, but if you add it up for the year? Ouch! After consulting the lovely Noelle, my blog administrator and the person solely responsible for my memes, her son also a client of the NDIS recommended I have mileage written into my service provider agreements.

Red Tape

My other solution is to only use the providers who don’t charge for mileage. My Friday chick who takes me shopping claims hers I believe on her tax, which makes me favour her for community access shifts. Are you picking up my subliminal messages of all the new names and terms for things under the NDIS? Yes, let’s recap, shall we?

Service Providers – Companies that provide carers or other needs funded and registered with the NDIS.

Core Supports – The name given to funding allocated for hiring person carers or support Workers.

Subliminal – Like, how I’ve been sneaking it into your minds that not all brain injuries are the same.

The general consensus is that all people with brain injuries sit in a corner and drool without conscious thoughts and you are getting it that I don’t have that kind of brain injury. Nailed it!

Brain Injury

Also, today is different again and not getting to my favourite cafe at all. Instead going to a free screening of a film called Defiant Lives.

https://defiantlives.com/

Lucky for you I managed to get a quick coffee break last Friday in between missions and my Friday chicks, really should call her my Girl Friday. Had this delicious little treat. It’s half a lemon tart and medicine.

Lemon TartLatte 1

 

 

 

 

 

 

 

 

 

I may squeeze in a medicine at a more local cafe close to home before I get home. To be continued……….

Latte 2

Oh, and here is my first calla lily out on my balcony garden. Only planted them a few months ago.

Calla Lilly 1Calla Lilly 2

 

 

 

 

 

 

 

 

 

Cheers,
H

Wonderful Wednesday 1

Problem

Published December 3, 2018 by helentastic67

Problem

Problem

I have a problem! Yeah, I know I have plenty, but in this case, it is my inability to go to bed and go to sleep by 2am at times.

Getting to bed

This is not a new thing for me and depression and chronic pain skewed my sleeping patterns, go hand in hand.

Sleep Pattern

I have had ridiculous sleeping patterns since my late teens, but these days I find I need to explain why I’ve fallen into this diabolical pattern.

Diabolical Pattern

 

I mean I won’t die, going to bed at 2am. However, it really very much impacts everything the next day, how well my brains is rested, my left leg works etc. So, I explain it like this, having one hand, not being able to dry myself, dress my self (very well), the brain strain it takes to do simple things like prepare breakfast (yes, I can, however painfully) hunger is a great motivator, all I’m saying.

Simple tasks

But, during the day, I’m out and doing the things, like going to appointments that keep me moving independently and fed. I text and cull emails or some quick phone calls when out on trams heading home, so I save time later. I get home, I really want to crash and face-plant and sleep, but I have learned that sleep at this point is bad. I get here and I do the chores that keep my home and life going, bring in washing, unpack/repack dishwasher etc.

Faceplant

I generally need time to rest and decompress. I have a coffee, even if it’s my second for the day and it’s 6pm. No it doesn’t keep me awake, no, don’t argue, it really doesn’t. I have some Italian blood after all.

Italian blood

Then, I get ahead of my “Brain Training” or what I consider my brain training. (you an ask me in other forums, I really can’t mention in my blog). Then I watch a few shows I feel keep me in touch with the real world.

Brain Training

But I digress. The evening is filled with hours of TV and some social media stuff and emails, let alone the admin/case notes I do every day, so if needed I can be billed correctly, I message friends so I can keep in touch with people I love.

I Digress

At some point I realise, should I eat dinner? Yes! It’s probably as late as 11pm.

You see the slippery slope to hell now? I prepare something tasty, lazy, but healthy and I get back to admin and emails. I like to have a cuppa T (yes cup of tea) and a brain numbing horror or two of TV to help wind down and switch off

Late night dinner

Before I know it, it’s 2am.

I’m working on it, I swear…

Working on it