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Published September 22, 2017 by helentastic67

Home

Home

Is where the heart is, right? My parents built the home I grew up in from the age of about 5. (better first check that)

My bedroom had a window on the side of the house so the only view I had was of a fence. When the men next door worked on their cars in the driveway after hours with the lights on, late into the evening.

The house was built in the 70’s and my parents never did any major renovations, so to this day the kitchen still has its orange (sorry, mum, Mordarine) bench tops, its brown cupboards and orange spaceship lights.

 

70's Kitchen

Space light

 

 

 

 

 

 

 

 

 

They seemed to make them to last back then, right? But anyway, I digress, I moved out of home and to Melbourne when I was 19 years old, to study. This is probably when it seemed to be my home. It was a base, sure and my teenager “stuff” remained here, but it wasn’t really my home any longer.

When I was about 23 years old, my parents finally divorced. I say ‘finally’ because from about 12 years old, I knew it was imminent.

In the late 90’s (me in my late 20’s) I lived with my mum and younger sister (then 13) for 2 years, but while her house feels like a home, it doesn’t feel like my home.

It definitely feels like their home and when my dad had a thing for moving “stuff” around inside his house, much of my important childhood “stuff” migrated to my mum’s.

Every rare visit to both my mum’s home and my childhood home brings up different emotional ‘traumas’!

A visit to my mum’s, some 3 ½ hours north from Melbourne, upon arrival, as soon as you open the car door, a whiff of fresh country air, with a subtle pine and burning wood fireplace smell takes me back and refreshes me.

Melb to Wangaratta

I was quite isolated and depressed when I lived there for 2 years.

But my dad’s house, doesn’t feel like a home. Over the 20 years, its felt like the ‘life’ left.

The good furniture is still there, the wall units in dark timber is still there, the timber chest in the billiard room that housed the stamp collection, the roll-timber desk and of course the beautiful pool table. (I call dibs)

Wall unit

Op shop finds have sprung up and taken root (or even stored) for some insane reason, where it’s not needed or used. Dad’s house seems strange, like time stood still, I got bigger, but ironically, when I’ve spent a rare night there as I did last October, when I went to my 25th High School Reunion. Kitchen cupboards, the laundry sliding door, they still sound the same. Like it’s been frozen in time.

My father did move on and found another relationship (weirdly with someone 20 years older) so he has kind of aged in a strange way, if you know what I mean. She has never taken up residence there and they maintain they are ‘friends’, although I suspect he has helped her financially.

Romantically mum never moved on and was busy being a single parent to my younger sister and didn’t make time to meet anybody.

While I’ve moved so many times in the last 25 years, my mum has called me a gypsy. I have desperately wanted my own home, where I never had to move again. A place I could renovate, plant trees in soil and put down roots.

Gypsy

My father in the last 10 years, while I’ve had my disability, has retired, slightly early to deal with bowel cancer, then bladder cancer. He has beaten both, a little worse for wear, but winning all the same and earlier this year he decided to sell his house. Not to downside, but for financial reasons he has upsized.

So, his house sold and the new house is not yet built and he’s renting for maybe 9 months in between. He’s not even renting far from the home I grew up in. He’s moving from 30 to 1/22, I know, insane!

I’m not sure how I am meant to feel about this. It has certainly bought up much emotional trauma for my mum who has clearly felt short changed for the last 25 years, since her divorce. I know, I’ve heard all about it, but while I feel a little sad, I don’t feel like I’m losing anything. If that make sense?

 

New home

Today’s Lunch – 20th September 2017

Published September 20, 2017 by helentastic67

Todays lunch 2009

Today’s Lunch

A beautiful day today in Melbourne for my foodie good mental health day post!

Beautiful day

I was even able to get Hell on Wheels out to scooter to my last appointment. I take my flag inside to avoid it being stolen and my jacket in the bag on the back. Yes, no jacket today! Still wearing wool but only my Marino Cowl neck vest.

Scooter

Got a window seat at my fav place. Just now hoping someone brings their dog for a walk, coffee, doggy biscuits. They are always so well-behaved when they are begging for their treats.

IMG_3253

I’ll see if I can dig out an old photo as there seem to be no four-legged friends today.

Standard fare today. Bolognese Arancini with side salad, with my medicine of course. (Cafe latte)

ArinciniLatte
 

 

 

 

 

 

 

 

Don’t imagine I’ll have any surprises today. Fingers crossed. Apart from the serious message I had earlier when I clipped a teenager on my scooter. Oops!

The message was the Universal Go-Slow! You know, when no matter what you do or where you are meant to be obstacles arrive that slow you down. Today, I must have met every elderly wog in my ‘hood with their shopping trolley or walking frame. Just ambling along!
It might surprise you all to know, I have no time or patience……….

Scooter 1

Ooohh…….Doggy!

I’ve been known to text photos of the well-behaved pooches here to friends who have dogs. I ask if their dog can do this……

Dog

Sometimes they respond with “Yes, my dog can beg for food!”
I beg the question; Beg or Pester?

IMG_3257
Cheers,
H

Aussie Rules

Published September 15, 2017 by helentastic67

Aussie rules

Aussie Rules

I grew up in an era where Aussie Rules was made up only of Victorian teams. Therefore, it was called VFL (Victorian Football League).

VFL1

It was pretty stock standard that coming from a family of some Italian heritage, we went for Carlton, I’m not complaining, I understand Collingwood supporters that went for that team and more primary school kids growing up in Collingwood would greet new kids at school with the question “What team do you go for?”

Carlton

Day 1. New kids would answer with another team other than Collingwood – they would get a hiding

Day 2. Repeat of day 1

Day 3. Repeat of day 1 & 2

New kids decided it was better to be a Collingwood supporter. I heard this story about fifteen years ago and I imagine it dated back to when I was a kid also.

Collingwood

I don’t really follow any sport, it was never really a huge interest of mine. Apparently, that alone makes me un-Australian.

However, in the late 90’s, I went out one particular Saturday night in Melbourne, I thought I was very obviously dressed for clubbing.

I wore a little Dottie dress, white opaque tights with black fishnets over the top (or something like that) 10-up Doc Martins and even though I wore make up, pale face (not white, but no highlights, and bright spicy lips)

Polka dot dress

I also wore my red and blue furry jacket, despite this jacket, I was likely going to a Goth club.

I understand that weekend was the semi-final for the football. There was an out of state team playing and a Melbourne Team.

I caught the train to the city and went to get off at Southern Cross station. As the train came to a stop I was waiting at the door ready to get off, the platform was packed with football fans. Must have been around 11pm.

As the train pulled up and the doors opened, the older guys facing me looked behind them and the crowd roared.

train

Normally, they should have parted to let people off the train before they all rushed to get on. They didn’t look prepared to move.

I reached up to my collar exposing my studded leather and spike bracelet and scratched at my leather and press stud choker.

The crowd parted and I had to move through the crowd to the escalators. It would seem my jacket was the same colour as the team that played that weekend.

 

Red and blue furry jacket

Admittedly, I’m not a big football supporter and at the end of the season. I care that Carlton is not on the bottom, Collingwood is not on the top and the Cup stays in our State.

I guess it doesn’t make a bit of difference to my life who wins or loses…

 

Hot off the Press – 28th August 2017

Published August 28, 2017 by helentastic67

Hot off the Press 2808

Really needing this week to be far less busy and chaotic. Noelle informed me last week’s Press Release was akin to a short story. So, let’s put out for much less chaos.

Monday dawned cold and wet so decided I’m too poor to pay for taxis to my only appointment so I reconsidered and cancelled. Had an extra day to my weekend and did some advocacy for a friend who has had the NDIS fail him so badly he has rejected the help completely. He also has no case manager and no carers. He obviously needs an advocate and a new planner from the NDIS so I’ll work on advocating for him to get those next.

Cold weather

Ironically, if I do a little advocacy for others I’m heard and they get results however when I do it for myself there is a consensus that I don’t need to be taken seriously because I just have a brain injury! Apparently, I don’t matter.

God forbid! A client is smart enough to know when I’m being given sub-standard service and wise enough to make you feel some guilt about it. One of us is being paid for living like this and it’s not me!

So, back to less chaos.

Made it to 4.30pm and decided I really did deserve a kip……….woke at 6.30, barely in time to fit in a coffee. Back to emails, which are never ending……and felt the need to give a smack down to someone in my ABI community.

Brain injury

The biggest problem with brain injury is often that as it is something we have in common we are presumed to be herded together to socialise and advocate. Not a single ABI is like another. Everyone has different funding, supports, support needs and empathy and compassion for anyone and everyone else. Housing situation, family, etc etc.

I have really stepped back from all ABI groups and last week’s art project was a rarity on my behalf. So, after attempting to explain to another in this community I eventually repeated and delivered a sharp “Go forth and multiply!” Although not as eloquently as that…….next!

FYI; False alarm in the finale of GOT. I am a week early meaning I now must wait in anticipation like everyone else. I don’t know if you are aware, however I don’t have patience for all things.

GOT

Tuesday! myo/Remedial! So, needed that. The student worked on my back and both my arms, and when working on my left arm was surprised when my left hand flared open.

Wednesday! Remember my suggestion for needing a less dramatic week? Yeah, well……..
T, a good friend scooped me up in time to get to see what I hope will be my new home. T, helped do the application forms and after a short trip to the police station to sign a statutory declaration, a drive to the city to drop the forms straight to the real estate agent. I even did a flight of stairs! Up and down.

Appartment hunting

After my initial feedback that they had an accessibility issue, I left her by telling her if I got down the stairs my application should go to the top of the pile, if I fell? I should get the apartment! (She got my humour) As I got in the car I could feel muscles in both my legs I don’t recall ever having.
After being delivered to my fav lunch haunt and no time to smash out my foodie post, apologies. Hope you appreciated the extra well thought out /structured post? Inhaled lunch, something different ironically. Delicious pancetta quiche with side salad. And the standard medicine………..
And then off to Chiropractor!

GOT 1

Quick debrief with the younger Associate Chiro on GOT! I peaked too early and binged the first six episodes of the season a whole week before the season finale, meaning I have had to wait on tender-hooks like all the other plebs! My debrief with him was had with me, wide eyed, raised eyebrows and very short statements. He smiled and agreed and then my Chiro broke it up with “C’mon! Quick back to work!” We parted ways me responding “Yes, Mum!” Humorously.

Chiropractors

Already had a migraine from the chaotic day. Tram, acupuncture. (Took out my own needles for efficiency) and off to the beauticians for a quick underarm wax! Taxi home and chores, chores and more chores. Turned out to be a great day for ducks! (it is standard end of winter/start of spring rainy season)

Thursday, now this is the ticket! Very quiet day at home. So happy, with sore legs from doing those stairs Wednesday, but still happy days!

Thursday

Friday, before lunch, had sheets on the line already! In Winter (well, practically spring in Melbourne!) Then received the hideous news, I didn’t get the apartment I applied for. Apparently, the winning applicant could take possession on Monday. While I’m yet to give notice as I can’t afford to be homeless and cannot do transitional housing. I would have scrambled to get funding to pay rent on the new place while I gave notice here. This is the 3rd place in as many months I’ve applied for that I didn’t get. My new fur-child again not here. Feeling like a loser! Had my young carer who does my shopping, homecare and food prep and had plenty of laughs to cheer me.

Friday

Huge laundry weekend and at least one decent day to get through it all. Happy to be off grid as of right now, being midnight! And looking forward to getting shrunk Monday!

Off-grid Saturday as quiet as it should be, single girl date night again spent consuming the build-up of shows on my Toppy. Princess Diana has been very well covered in recent weeks. Some shed a few tears, obviously, other distractions. No complaints at all. Just going to be a challenge to snap back into full Adult mode for Monday! It looks like I’ll be doing it with a twinge of a migraine. Super!

off the grid
Only managed to read three comics last week, believe there is another Joss Whedon comic to add to my shopping list. That being Dollhouse. I’m sure it can wait until I’m a little more caught up. I imagine comics are a more affordable medium than producing TV series that may or may not be green-lit for future seasons.

The finale of season 7 of GOT (Game of Thrones) airs tonight. I will watch it later Monday! Woe is me! I know my followers likely don’t understand the appeal of GOT so I promise one day I will attempt to explain. But not now.

GOT game over

To another stress-free week.
Cheers,
H

Stress free week

Today’s Lunch – 12th July 2017

Published July 12, 2017 by helentastic67

Lunch

Today”s Lunch

Today’s usual arancini is looking a little flat for some reason. Kinda how I’m feeling this fine Hump Day mid-winter Melbourne.

Arincini Ball

Arancini has pumpkin & spinach today with the standard side-salad. And my medicine (cafe latte)
Side Note; When in Rome do not order a Latte! You will get what you asked for….a glass of milk.
Latte

There is something I really appreciate about the routine of my Wednesday. The crazy part of my week is done. From here to Friday there are generally no surprises.
Depression the standard today. Another day. Meh!

Cheers,
H

Hump day

Breaking News

Published January 23, 2017 by helentastic67

breaking-news-1

Breaking News

We interrupt the normal flow of my writing and posts to give you this breaking news……that means I’m tapping on my iPad, paper and pen put aside for speedy delivery.
If you are up to date on my blog and current affairs in Melbourne, Australia being my beloved home.
Last Friday, the 20th of January 2017 saw an incident Melbourne is not known for having. I’m going to use some generalised terms however bear with me. A young man in a Holden Commodore performed burn-outs and donuts in the main intersection of Flinders Street and Swanson Walk in front of Flinders Street Station. He was apparently screaming out obscenities while hanging out the window of his car. While he used terms like ‘Reign down terror!’ His actions were not perceived to be terrorist relayed. The driver was persuaded down Swanson Walk and the Bourke Street Mall. Both precincts known for being busy pedestrian traffic areas.
For those unaware, Melbourne has had the popular Australian Open Tennis, which is huge with tourists and Melbourne in general. We Melbournians love our coffee and our culture. We are happy and friendly people, so what happened next was (for lack of words,) just awful. The driver just drove into and over people. The youngest victim was a 3-month-old baby who was in a pusher(pram) and two people in their 30’s were killed also. Many others were injured, later reports indicated injuries to limbs and some brain injuries. The latest report is that five people were killed including the baby.
Passers-by pulled together to help the injured people until medical assistance could attend.
The driver was eventually stopped by police who shot him in his car, then dragged him from his car that still sported part of the pusher from earlier.
Now, I premise by saying this is likely not normal anywhere and most definitely not Melbourne.
I generally go to the city once a week. And was only made aware this was happening when out getting groceries and ran into an old carer who mentioned her son was in the city and she was concerned about him.
I don’t spend much time on social media, however I checked in on Saturday night. Lots of posts about sending people back where they came from when they cause such incidents and posts about acts of terror.
Clearly very glad I had not been anywhere near the city on Friday however with all the love and respect and support in the world to those who died, suffered injury or emotional trauma for witnessing such atrocities, I’m a little surprised my own family and friends have neglected to reach out and just ‘check‘ I wasn’t anywhere near the city……
And my point is that the silence is deafening and telling, isn’t it?

It’s now late Sunday night. Ok, it’s early Monday morning and I’ve avoided social media today. Sometimes, I like to let the dust settle on these events and rather than get caught up in the early assumptions I like to get the real facts….. There is no point getting caught up in the drama until the media gets all the information and updates correct.
So far, the reports I seem to have seen somewhere indicated he had mental health issues and not a terrorist related event.
Many posts I did see early Sunday morning, indicated the driver had slipped through the cracks in the legal system and had he been remanded for a prior infringement, he may not have been on the streets to cause such chaos. I prefer to imagine the mental health system failed him and everyone else affected on Friday.

Meanwhile, in a suburb in the North I had a conversation with my mum on the phone about the status of the lovely NDIS. In 2016, I was given the funding that is supposed to be the silver bullet to fix all problems and level the playing fields. My funding was rushed through giving me the lowest level of assistance. The first plan is supposedly designed this way…. So I’m not saying I’m the only one to get screwed. Just stating facts.
Last year Stupidlink (sorry, my favourite term for the government agency that handles pensions, etc) did to review my DSP (Disability Support pension) because apparently, I might be job ready?
So, the NDIS has also triggered an overhaul and review of my mum’s carer allowance although it’s not at all what they told us it’s what they were intending.
Now, I have had great carers who cared from the second they walked through the door and I can tell you I think they love me like family not just because they get paid to care and while I’m transitioning to new carers I’m micromanaging and already can tell I would have the same level of stress free care any time soon.
My NDIS funding needs an appeal/review and my mum, my only family member to actively help me has stated she is not going to assist with any paperwork unless she is paid to do so.
It’s the loneliest moment to feel the government is working to isolate me from the only family assistance I receive because, do they think they have my best (can’t think of appropriate word here) in mind. Because everything else points to the government wanting to institutionalize me and take away all my rights and independence.

I don’t mean to minimalist the events of Friday in the city because in that situation people died. I’m not planning to reach for the razors (my home has no razors) or the pills and let’s hope it continues that way…….
Now, please do not adjust your dials while normal transmissions resume.
Peace Out!

Winter Part 2

Published December 23, 2016 by helentastic67

melbourne-meme

Winter Part 2

When Winter hit’s I’m always reminded of going clubbing during Winter. The 3-5 nights a week of clubbing has finally caught up with me!

outside-nightclub

Those nights of walking up a narrow street in the city to one club where the buildings towered either side of us and acted like a wind tunnel blowing right through whatever you were wearing.

Usually a cute little Dotty dress, layers of tights covered by a long black leather jacket. My friend and I would catch our breath at a particularly cool gust of wind and convince ourselves once we were inside it would be better.

leather-jacket

Once inside we had the opposite problem, Jackets safely kept on the top floor with our favourite DJ in the booth.

I will leak some tidbits about my club days in time, but I find it ironic that these day’s I think it’s been 2 or 3 years since I last ventured out to a club. It was the 23rd reunion of the first club I ever worked at. It was Spring and some people I hadn’t seen for all of the years since. These days, as of making up for a miss-spent ‘youth’, I spend every night on my couch alone, eating my dinner and watching TV. Alone, weird how life is right?

eat-alone

Priorities

Published May 18, 2016 by helentastic67

 

Helens artworkPriorities!

So, these days I use a walking stick when I’m out of the house. There is a term for this. I am Ambulant!

And for those who are unfamiliar, I live in Melbourne Australia. Melbourne weather is known to be very erratic. I think crowded house was singing about Melbourne when they sang of ‘Four Seasons in one day!’

During the winter months, it helps to layer up with clothes because being Ambulant you really need to prioritise.

Walking stick or umbrella?

I sometimes after 8 years get a look of concern from the same people asking me if I have an umbrella.

Here is pretty easy, the answer is I GET WET…

The next one I think is pretty easy also.

Once a month I go to a committee meeting for a self-advocacy group I belong to. I cruise through Degreaves Street and pick up a coffee (medicine) to get me through the meetings.

So walking stick or Keep cup?

KEEP CUP!

Without my ‘medicine’ I don’t make it through those meetings. I often get a migraine just walking through the door and with a room full of people with an assortment of Brain Injuries I generally want to blow my brains out, pretty quickly…

Social Isolation

Published March 8, 2016 by helentastic67

Social Isolation 4

Social Isolation

Sometimes, I try to socially engage with people wherever I go. I do this at the places I go for appointments or the supermarket for groceries. No lifetime friendships, but connecting all the same because it’s how I encourage people to get to know me and see that I’m “Normal!”

At my local supermarket, my favourite checkout chicks have gotten to know me over the years. Even from before my disability.

On Friday, I encountered a newish guy in the Deli/Freezer area. He was restocking the dairy case with milk.

Now, for those who don’t know – Melbourne has had a heatwave the last few days and being in the freezer section of the supermarket is the place to be.

This is the perfect example of how I try to engage with people and retain my sass!

This guy was wearing a big jacket to wear into the cool room. I asked if that jacket was really necessary in this weather.

He tells me it’s for when he’s in the cool room.

I inquire, “What’s a girl gotta do to get in that cool room? He didn’t really reply.

I grabbed my cream and as I moved away I told him,

“I wasn’t trying to sexually harass him in the work place”

I saw he had a big grin on his face and I did a circular motion towards his smile and told him “I was going for that!”

Human Rights

Published November 28, 2015 by helentastic67

Human Rights

Human Rights

There are many examples, I will give where you would imagine, just because I have a disability and because someone collects a wage from a job where they provide a service to those with a disability that you would be treated with respect and provided the services they are entitled to.

I hope my blog over time will express my experience of this sector and that if it is challenging to give a client/patient/customer, what they need then, it’s ok to withhold a service, not delivered a service or just outright bully so you will stop asking.

There are times now, how I’m treated, is outright shocking! And I’m someone who knows what’s going on and how to organise my life and my needs and my services and I dread to think how the people who can’t self-advocate get treated.

I once received a call offering me Public Housing. I know these calls are often met with jubilation and great relief, but I often get a little grumpy and demand “Yes? Where is it?”

Even my friends no longer get excited anymore and demand to be told “Where is it?” On this occasion they building was a new apartment block and the gentleman on the phone after selling me the fact that it was fully functioning, disability friendly bathroom. He told me I couldn’t take my cat!

I am not one to smuggle my fur-baby into my home. People have to know I come with a cat!

I’ve had good house-mates and shitty house-mates. I’ve had shitty boyfriends. Shitty because they are not still here.

I’ve had shitty friends and good friends. All in the last 16 years. They have all come and gone and are no longer here.

The fur-baby is still here!

I often go days without seeing another human being. So my cat is not an optional housemate. I told the gentleman, my cat didn’t cope without me and I didn’t cope without her.

HE TOLD ME TO HAVE HER PUT DOWN!

Now I think you can now tell when I used the term ‘gentleman’ I was being very generous!