Project Managing

Published December 7, 2025 by helentastic67

Project Managing

Lately, I’ve cut back on my appointments like physio, hence the lack of motivation or time to blog. I am not looking forward to the grumpy chastising from my acupuncturist who I should be seeing weekly as he is free. He is a GP and covered by Medicare so I really should be getting my ass there. And I think I haven’t been since April or earlier, but while I’ve been skipping my physio/neurophysiology and a few others, my pain increases as does the discomfort. It’s all been because they are using my funding to do report writing. Yes, you heard correctly. I’ve had to prioritise reports over pain management because I’m going to review again with the NDIA! Because I’m running out of funds.

I’m currently on my third Support Coordinator, who is like a case manager. Except, mine has run out of funds to do her job. I’ve been nudging with emails most of this year for her to get reports to people that are doing things for me anyway. So, I think every year I do more and more of that role. I’ve finally got a new Gun of an OT.

I’m hoping now, just celebrating the one-year anniversary of being in my forever home, that I can have a mobility scooter and somewhere safe and secure to keep it and charge it. And the NDIS funding in which to make that all happen and finally, not me to project manage all of that to make it happen. Even getting the Owner Corp and the board of residents, on board to allow these things to happen is a hair-pulling exercise as my existing shed is too tall and gets in the way of the sprinkler system.

I think the OC is largely against my installing a shed because it might set a precedent for others, also wanting to put up sheds. That whole “but she’s got a shed mentality…?”

In the last apartment complex the OC asked what I was storing in my shed. I didn’t immediately take their interest or concern seriously. I answered with my usual wit and humour “I’m not making Ice in there!” Breaking Bad made it seem like a good starting point to run successful manufacturing enterprise in a caravan in the desert. People these days make ice in rental properties which means they are no longer safe to live in. My real answer later was “My mobility scooter, gardening supplies and sometimes my excess tinned tomatoes and passata and panettone” I offered to use the light from my scooter to help better see what was really in my shed and I provided them with photos. It was exactly as my last statement and they dropped the issue.

Problem Solving

Published November 10, 2025 by helentastic67

Problem Solving

I’ve been trying to solve a problem in my new home since moving in last November. It’s such a mess.

There are so many moving parts and potential solutions but more people to ask permission from before implementing solutions to the problem. So, the work around feels like a real fuck around.

Sometimes, I wish a clairvoyant or divine entity would just point you in a direction and narrow the field for you.

Here’s a real estate example which has been the perfect example whenever I’ve been on the hunt for a new home. I gave this example to a friend earlier:

If you wanted to only live in Ivanhoe and you had a set budget, and you wanted a certain number of bedrooms, bathrooms, car spaces, etc, etc. And if you couldn’t budge on any of those parameters. Maybe money wasn’t a limiting factor and you absolutely had to live in Ivanhoe; you would spend what you needed to spend.

If budget was important you would start to compromise on different things depending on what you could live with. Maybe less bedrooms, or whatever, but eventually you didn’t even live in Ivanhoe.

Maybe a clairvoyant could point you in the right direction and suggest Ivanhoe. Yes! But start looking for something a little smaller, or …..xyz. Then you wouldn’t waste your time trying to find all these other solutions.

Just an FYI, I didn’t have Ivanhoe money so I’m just giving that as an example. People that live in Ivanhoe have Ivanhoe money. You can’t hate them. You just appreciate them.

This is one of the major things on my list I’ve been chipping away at and made all the worse by a “friend?” suggesting I needed to get on my issues, like I was being lazy? Who needs enemies when you have friends like this?

So, the problem? I feel a part two coming on

I’ve had my mobility scooter AKA Hellonwheels for the last 15+ years and every time I’ve moved, I’ve had varying degrees of storage and weather proofing, security, etc in storing my Hellonwheels.

Some places I’ve lived at were easier than others for scooter storage alone. One house I rented didn’t have room to put my shed up for the scooter, so I ended up putting a BBQ cover over the scooter in the backyard close to a power supply and using locker straps around the cover to secure the cover and waterproof my scooter. It was a fuck around solution.

At my last rented home, an apartment, my car space didn’t have power so I was able to swap with a neighbour so I could erect my shed, park my scooter inside and charge it. I also stored my gardening supplies, and at one point my oversupply of pasta and tinned tomatoes, and my panettone.

I am such a Nonna!

My landlord queried what I was storing in my shed and I suggest Owner Corp and landlords do not have a sense of humour. Don’t say what I did? I responded to their original query that I wasn’t cooking meth or anything. My shed wasn’t big enough for that and I ended up using the lights on the front of my scooter to illuminate the inside of the shed to show them the contents. Seriously!

And while I was living there, I could go in and out of the only entrance to the garage on my scooter, I could go straight into my shed or go up on my scooter in the lift without causing damage. Parking near my apartment door and transferring items gathered into my apartment one item at a time before returning my scooter down to the shed to store and recharge. When I had more to take up and less time, I’d unpack items into a market trolley I stored in my shed and take that up.

Every pedestrian entrance to that complex had zero access for a scooter, and therefore no access for a wheelchair, except the B1 level or the carpark, just to give you a bigger picture.

Good thing I only have used my scooter for solo shopping missions locally as well as prompt local appointments where I get to maintain a level of independence.

So, when I moved to my forever home, the real estate agent showed me the apartment. My car space, the lift, the direction of the closest power supply to my car space and basically gave advice on both my disability and access to things he had no working knowledge on and directed everything to be sorted by the owner Corp when the time came.

I don’t know if anyone else has had to deal with an owner Corp, or had to solve problems of access for someone with a disability? And under the NDIS I have people for that right?

I prompted my support co-ordinator if she could get on that and sort things so when I moved, I wouldn’t lose my independence around needing my mobility scooter. After multiple prompts I was provided with a company name and the comment that they were expensive.

You might imagine the title of that person, being a Support Co-ordinator would mean they um, Support and Coordinate?

But it often means THEY DO NEITHER OF THOSE TWO THINGS!

So…

New Hellonwheels

Published September 1, 2025 by helentastic67

New Hellonwheels

Have I mentioned I’m getting a new Hellonwheels this year? I know I haven’t. I’ve been too busy sorting the permanent housing or garaging and powering location for it in a communal garage.

To be fair, I had asked my support coordinator before I moved back in November 2024 if she could help sort these things before I moved so I would not be without the use of my scooter. The best time of year to be out and about on my scooter is summer. I literally had to pester my support coordinator to assist me with this task. In the end she did neither of those things. Support or coordinate.

I received a text with a company name who helped with this issue and the comment that they were expensive. I have never been angrier. Or so I thought.

At my previous address and all previous addresses over the last 15 years, I had been storing my scooter in a shed that had been funded for me by my first OT and over time it was a method of great importance and security to maintaining some independence for allowing me to get to local appointments without the assistance of carers or doing some hunter/gathering solo, to get ahead of when I did have carers for limited times.

When I moved, I concentrated on the things inside my new home. I don’t know if you have ever moved one-handed, but I’m limited by weight and size. For something without ADHD when I move homes I find I am always moving around, moving things from one location to another until everything settles to where I can best store, access or use it one-handed. Somethings only I can put away as I need to be able to get it out again if nobody else is around. Somethings that worked in my previous home may not work here.

I lagged in storing my belongings in my storage cage because I had to wait for my handyman to bring bolt cutters. I wanted to have him cover the inside with black plastic. to keep prying eyes from my belongings, my gardening supplies and my boxes of bits. Don’t need to explain that I hope. I was not allowed to erect my shed in my car space because its height got in the way of the sprinkler system and storing my scooter there was redundant as there was no power supply I could access and all the other fucking things.

I had been so busy sorting inside my home, I had implemented the theory of Schrodingers Cat to the belongings in my car space.

My neighbour who has the car-space beside me informed me my belongings had been rummaged through. When I checked I found a transformer for my scooter had been stolen. What the actual F. Do I need to finish this sentence?

At least this meant I poked my handyman to sort out the things by stopping ‘Mr get these things away’ And then…

Circle Back to 2024

Published February 17, 2025 by helentastic67

Circle Back to 2024

So, I thought I should circle back to part of why 2024 was such a shit show. I started the year with a really good support coordinator. I thought no issues on the horizon so why not bring in a third carer agency to take the pressure off one of my other two, so I get some more variety with carers.

Since the start of Covid I was getting one carer for four shifts per week which I worked out quickly was three too many.

Having carers over the year you work out over time and pretty quickly who you mesh well with, who you can rely on and who you can be flexible, because sometimes it is me and my expectations. Can I work around different personalities, or should I not need too? When I asked if I could have less of this carer, I was told it was her or no one. I was also told they were recruiting. The number of times, I’ve been told they are recruiting in the last fifteen plus years, if I had a dollar for every time I’ve been told that I would be living in a house not an apartment.

Alas, my support coordinator No.1 for 2024, set me up with a new agency, we did the three-way zoom intro meet and greet thing. (Never done one of those before) Then I went to the countryside for about four days to help clear out my father’s house in late January. WHEN I RETURNED TO PULL THE TRIGGER ON THE NEW CARER, I WAS TOLD SHE HAD TAKEN EMPLOYMENT ELSEWHERE! Then, I was told they had a lack of carers in my area and would keep me on the books. You bet I was told they were recruiting in my area.

Just a FYI. It’s now a year later and I’ve not heard from them again. So, I digress, my really good support coordinator was promoted to Team Leader. It is the only progression for that position in a company, so I think it was my third in about five years I’d lost my Support Coordinator to being Team Leader. Although they always moved on, I gather soon after.

AND YES, IF I HAD A DOLLAR FOR EVERY TIME I’D BEEN TOLD THEY WERE RECRUITING MORE SUPPORT COORDINATORS ID HAVE A GOOD HANDFUL OF GOLD COINS.

The new support coordinator, in July we were already discussing and planning a request for a review of my NDIS funds.

Hot off the Press – 15th June 2021

Published June 15, 2021 by helentastic67

Hot off the Press

Change does not come easy.

So, I guess my posts these days have become more of a Hot Off the Press edition. Today, I’m writing on a Friday morning and every day this week I’ve been needing the pennies to stop dropping if you feel me.

There is just something fucking new every frigging day, I’m up to pussy’s bow, the end of my rope, not sure my nerves will cope with much more.

You may be aware, earlier this year I may have mentioned my shrink (makes me sound crazier). My psychologist is wanting to retire. WHAT? I know.

She’s mentioned for a while now, over more recent years and I’ve been in denial, obviously at some point she decided she was more and more serious and in 2021, it’s happened. She’s winding down. Very sad face!

You see, I’ve been seeing her for 13 years, I know, still not fixed (That’s a mental health joke!). I tried to entice her to stay, but I haven’t unpacked my baggage from my teenage years yet. I think we all know I have, but she could not be encouraged to work forever.

I asked if I could have half my money back, as I’ve got to start again with someone new.

Anyway, this week I found out why I’ve been unable to nail down my Support Co-coordinator (fancy name for a case manager). I’d been told she was sick, I now also imagine she’s been doing a job trial for her new job, because she’s leaving. Meanwhile, I don’t know if my new shoes have been paid for? Well, they haven’t and I guess now, I’m making sure all the wheels are turning.

Because the NDIA makes sure everyone else gets paid, even if they haven’t been doing their jobs. So, of course I started making calls. Like I don’t have enough to do already? FFS!

Have been meaning to do this blog post for days and yesterday I realized why I hadn’t, all the pennies had yet to drop.

Thursday, found out I’m also getting a new Occupational Therapist (OT). Are you breaking up with me too? So yes. She did too. I’d only had this OT a few months as I’d finally kicked the last rubbish OT to the curb.

2020 is still kicking me in the pants and I’m over having to rehash all the things. FFS!

I need a cheat sheet!

Wednesday, I heard (got a text!), I’m at 81% of my year’s funding and it ends in December. So, I need a review and my support coordinator better bring her A-game.

The NDIA like to give you just enough funding to cover you for 10 months of the year and then you have to go beg for more, by which time they have moved the goal posts to mean you can’t have what you previously had. I also heard the NDIA has trialed a new ‘thing’, it’s called Personas (Independent assessment) and an algorithm.

It’s just a funny way to put us all in little boxes as if we need the same things. We will all hurry the fuck up and go do study, or just get a job and not be a drain on the Australian government. It’s like they realized people with disabilities deserve a normal life and things and human rights. Until they realized how expensive having ethics is. Then they’ve tried to take out the human element so they can be more economized.

Advocacy never ends does it.

On the upside, Smith Street in Collingwood was voted the best street in the world! Voted by the editors of Smith Street has been named the coolest street in the world (timeout.com)

I got to catch up with Noelle last night by phone. I’ve started calling her every few weeks to chat. We were commiserating over how bitterly cold it got all of a sudden. Winter has hit. And Melbourne has come out of lockdown 4.0. We still need to wear masks and Noelle is in Sydney and they do not.

So, I just tease her at least we have heaters in Melbourne. They had their coldest day on record in 37 years yesterday and the rivalry continues between Sydney and Melbourne.

We still have better coffee, art and street culture. I mean they don’t even have a National Gallery, it’s in Canberra. WT Firetruck!? (Trying to swear less, is it working?)