Unofficial Support

Published February 23, 2026 by helentastic67

Unofficial Support

In the world of disability there are many terms for things you don’t know until you need to and that generally means you learn the hard way out of necessity. Out of your will to achieve something or your need to survive. You learn who your friends are. You work out who you can rely on.

If you don’t have family or friends who can help you do the most mundane things you might find you have a carer who can feed your cat when you go to your dad’s funeral, or you spend a night in hospital.

I don’t know if I’ve mentioned but wait for it. Humble brag, Mika is not food orientated, but she still expects to be fed, every night.

Also, kind neighbours, even after I moved were lovely enough to drop into my new home to feed my fur baby and not expect to be paid to do so. That is officially an informal support.

When I moved late last year, yes, still so much trauma around that. The moving day left me with all my tech, TV, AMP, CD carousel, drying racks, lamps, mirrors, candlesticks. So much I valued and needed to be moved and every day I was reaching out to busy people to see what they could help me with.

Now, I’ve got friends, I love and respect their time, I have later discussed my need at that time and that they were not friends I felt should need to help me for things like that.

You would be surprised when you really need help how few of the people you know are not free and I would not have expected people to drop anything to assist me, so I started asking carers who I had no funding to book them and bit by bit over the last week I had friends come from two hours away who helped when they had barely slept going through a shitty break up. Who came and helped for literally me buying them lunch. Fuel to get them through.

A carer who literally treats me like family assisted me with a few car trips and when I tried to sneak some cash into her hand, she vehemently told me that “Anybody that took money from me, shouldn’t!”

OK, fuck it. It’s now almost 1am, better go to bed.

Slap of Wisdom

Published February 9, 2026 by helentastic67

Slap of Wisdom

If you had any superpower, what would it be?

I always wanted mine to be the slap of wisdom, I go to stupid people – slap them (think DiNozzo from NCIS, the character played by Michael Weatherly) and instantly “oh yeah I get it now” I naturally think my superpower is bluntness.

I got on a tram today and asked a woman to give me her seat. I’m always careful as you can’t always tell if they have a disability. The woman instantly misunderstood and presumed it as her job to swiftly direct me to another seat down the tram. While the seat she was diverting me to wasn’t far but faced the wrong way. I would have had motion sickness in minutes. I also would have struggled to getup, stay up and negotiate my way back to a door when it was time to get off. All the while – A) not having my bag possibly fall of my shoulder creating a further trip hazard, B) not falling over and breaking every bone in my body. Luckily a woman that got on in front of me politely told the women she could go to that seat (not me). And then she sat next to me (Also, taking up an accessible seat) to support me where she felt the need to explain why that woman should not ever have been sitting there. I shrugged, told her I agree and let it go, because this is what it’s like every day advocacy it never ends.

SHOES

Went to see a shoe guy in the city today. I was already in the city and had to go from there to another area that required my ability to navigate around the city. I have not frequently visited since 1992 to 1993 (not kidding) and I knew I could walk but be hot and knackered by the time I got there, or I could navigate to a short tram ride before walking and maybe get there late. In the end, I took a tram two stops, then walked two blocks. I wasn’t 100%, certain exactly where he was since he was set up on the ground floor of a big car park. Shoe fetish.

My Egg Dealer

Published January 26, 2026 by helentastic67

My Egg Dealer

Some days life is full of surprises and the good kind which is rare. I think we can all agree. A few weeks ago, after deciding to make room in my fridge and my freezer it was necessary to go visit my Egg Dealer. I stash things in my freezer to build up a care package for George. When my Tetris skills are pushed beyond their limits an obviously to the market is critical. On this particular Friday, my carer and I headed in the direction of the space George inhibits. As I walked up to his counter a younger woman stood between us. As I walked up to her, she stated, “I love you!” Aw. So, I replied “I love you!” I mean, what else do you do? She repeated herself and I obliged. And she asked, “Can I give you a hug?” So, I gave her a hug. I later shared this scenario with my Sunday carer who looked at me quizzically, I stated, “intellectual disability?”

Back to my hugger, the hug came to a natural conclusion and like the character Alf from the self-titled TV show she ran off. She had left a shopping bag on the counter and I picked it up and offered it to the woman on my right. I confirmed she was with her. She informed me she was her carer, I pointed to my carer to indicted we understood.

So, George, what are you having for dinner tonight? He told me he was being taken out for dinner. It was his birthday on the Saturday. Such good timing, I told him he had eggplant parmigiana for his lunch the next day. I don’t normally deliver people savoury, but I told him I liked him to know I had range. He then gifted me my standard order of thirty eggs. He would not let me pay him, he said it was his good deed for the day.

My Thoughts

Published January 19, 2026 by helentastic67

My Thoughts

Despite the fifteen or so blog posts I’ve written in my Drafts folder in my email account mostly in some stages of just ideas I started with when I was too busy to sit & complete the train of thought, a few including up to 10 blog posts I wanted to finish the train of thought before edits completed by a carer and sending, so don’t be surprised when you can’t keep track of my thought process? Keep reading it will all make sense in the end.

2025 has been hectic and as it draws to a close, I’ll give you this.

Sometimes, the littlest, weird thing I may do the right person is curious enough to ask. And they are usually my carers who are here. I have a system of folding my tea towels in a particular way so the edges are all facing out, you can see the different colours and patterns of each and the edges are at the back of the pile, so the messy edges are hidden. I picked up this habit working in a homewares store back in my twenties. I bought a good selection back then and only about ten years ago started to restock after retiring those old tea towels. I would go into the city monthly about ten years ago to see my shrink and if I was early, I’d stop at a particular well-placed linen retailer on my way to the Royal Arcade and buy a few and eventually I had to stop. That is how you successfully build a collection.

Sometimes, the right carer goes to put the freshly washed and folded tea towels away and after noticing the pile is not to our standards, she will offer to take them out and neaten them. Stating, she now does hers the same way.

All Things Current and the Sh*t Time of Year

Published December 22, 2025 by helentastic67

All Things Current and the Shit Time of Year

So, you may have noticed I don’t comment often on current news stories or politics on this forum. I generally ignore the news and media on weekends and so good to let the dust settle on horrific stories that are commented on around the world. I don’t appreciate the unnecessary commentary that feeds hate or any one person’s political agenda. It is to say the horrible shooting that marred Sydney’s Bondi Beach over a week ago was the worst terrorist event in Australia ever ending not only fifteen people’s lives but injuring many others. It was perpetrated by two individuals that subscribe to a version of their beliefs not shared by all that hold the same faith. The victims were being Jewish and the two perpetrators being of the Muslim faith that had been radicalized.

I have known and befriended people of both faiths in my time on this earth and while my beliefs are not the same as theirs, I just wish we could all put our differences aside and learn to get along without the need for bloodshed. There is never a need.

I can count one less than one hand how many times there has been a mass shooting in my lifetime. We don’t have gun violence in this country. We are not prepared for it to happen ever again.

Why can’t people agree to disagree and learn to get along? Don’t answer that. I know it’s a simplistic view on it, but it’s not rocket science.

It’s generally a shit time of year in my home as I don’t love Christmas. People often forget it’s not a super fun and exciting time for everybody. This year I’m preferring to spend the day home alone rather than take up the one offer I have received that was to join some friends who were participating in a gathering at their church. To which I answered, “You will do fucking anything to get me to your church!” Thankfully, she laughed as much as I appreciated the offer. I’m planning to go solo at home with the fur-kids. Make turkey or ham sandwiches and roast a few things in my oven. There will definitely be a special version of French toast for breakfast and a weird creation of trifle using no homemade ingredients and it will be shared to whoever is here to partake until all portions are gone. I even bought myself a bottle of Bailey’s even if I need to put a note in my diary once a month to have a nip to remind myself, I’d got to be had. I didn’t say I never drink I always say I barely drink. That’s what that looks like.

While most have holidays, catch up with family and friends and generally take it easy I will have a staycation at home and attempt to do things I never get to. I will finally sort my oven tray cupboard and get the last few off my bench. I don’t know when I last had a holiday. So, just remember this time of year is not as much fun for everybody as you might imagine or hope yours will be?

It’s also with great sadness I must report the recent passing of another friend who I’d known since primary school. She had a rare condition called F.O.P. Which does not stand for Fairly Odd Parents as your first google search might yield? But here’s one I’ve prepared for you earlier.

https://en.wikipedia.org/wiki/Fibrodysplasia_ossificans_progressiva

Try saying that five times fast. Try just saying it once. So, it is with great sadness we will no longer see Lyn Smiths brightly dyed hair in my media feed or her posts about her beloved cat her snuggly sleeping companion, but her regular visits to hospitals she reminded us she was still here. Still doing her best but here. Now, I have to start 2026 with a funeral. Thought she would outlive us all.

Just remember, I often write the right thing at the wrong time or the wrong thing at the right time.

Everybody, enjoy the holiday season, just as long as you eat lots drink liberally, and try to do a little less damage to those who don’t deserve it.

And to finish on a lighter note.

With the passing of the great cartoonist Leunig late last year, I’ve been asking what calendar would grace my bathroom door considering a Hot firemen calendar so I could tease my carers each month. You are aware I’ve met a few firemen needing to evacuate the apartment complex I’ve lived in in recent years and having been through the MFB training centre when I was still working and none of them looked like the men in the calendar. False advertising much.

Just learnt there is a Leunig calendar for 2026. It’s sold out, Hot firemen then? Pity the zoo sent me a calendar.

Stay safe!

Project Managing

Published December 7, 2025 by helentastic67

Project Managing

Lately, I’ve cut back on my appointments like physio, hence the lack of motivation or time to blog. I am not looking forward to the grumpy chastising from my acupuncturist who I should be seeing weekly as he is free. He is a GP and covered by Medicare so I really should be getting my ass there. And I think I haven’t been since April or earlier, but while I’ve been skipping my physio/neurophysiology and a few others, my pain increases as does the discomfort. It’s all been because they are using my funding to do report writing. Yes, you heard correctly. I’ve had to prioritise reports over pain management because I’m going to review again with the NDIA! Because I’m running out of funds.

I’m currently on my third Support Coordinator, who is like a case manager. Except, mine has run out of funds to do her job. I’ve been nudging with emails most of this year for her to get reports to people that are doing things for me anyway. So, I think every year I do more and more of that role. I’ve finally got a new Gun of an OT.

I’m hoping now, just celebrating the one-year anniversary of being in my forever home, that I can have a mobility scooter and somewhere safe and secure to keep it and charge it. And the NDIS funding in which to make that all happen and finally, not me to project manage all of that to make it happen. Even getting the Owner Corp and the board of residents, on board to allow these things to happen is a hair-pulling exercise as my existing shed is too tall and gets in the way of the sprinkler system.

I think the OC is largely against my installing a shed because it might set a precedent for others, also wanting to put up sheds. That whole “but she’s got a shed mentality…?”

In the last apartment complex the OC asked what I was storing in my shed. I didn’t immediately take their interest or concern seriously. I answered with my usual wit and humour “I’m not making Ice in there!” Breaking Bad made it seem like a good starting point to run successful manufacturing enterprise in a caravan in the desert. People these days make ice in rental properties which means they are no longer safe to live in. My real answer later was “My mobility scooter, gardening supplies and sometimes my excess tinned tomatoes and passata and panettone” I offered to use the light from my scooter to help better see what was really in my shed and I provided them with photos. It was exactly as my last statement and they dropped the issue.

The Theft

Published November 24, 2025 by helentastic67

The Theft

Throughout the course of the week as I politely told friends about the theft of Hellonwheels, one friend I did not expect uttered the C-Bomb. You know the one, I’ll never utter the word in print even in this kind of context, but I will refer to it as rhymes with punt or UNT. When said friend uttered this word I cringed and shook my head. She asked if I was offended? I told her no but surprised she uttered the word out loud.

A gay male friend a little younger than me once said “It’s OK when you see your friend across the road and you yell out to them: Punt!” And all I could think was we have very different friends. I have a few friends who do use that word and I appreciate it in the context that it is used and allow it, but it’s not a word I use.

I did do a police report over the phone that day and eventually received an email stating I could do a Victims of Crime Application. Because I’ve all the time in the world for that. I have been advised I’m not likely to have it recovered.

So, by the end of the Tuesday I was a little calmer as I was consoling myself by suggesting there was a fuckwit out there walking around on two broken legs. They just didn’t know it yet.

I had at first wondered why someone would steal a mobility scooter. Getaway vehicle? Spare parts? Just what the actual fuck!

The problem if not obvious is the layers and complexity to solving this problem is so big. People would have no idea how hard it is.

I think there’s a whole bigger conversation about the word that rhymes with punt that is yet to happen. But I feel women should reclaim that word because it’s ours and we should reclaim it. If men think they can use that word because they came out of one. Yes, I’ve heard that line. No buddy! That’s not how that works.

Another carer and I were discussing while in her car one day that twenty years ago when I first moved to this area my voting enrolment district was called Batman. How cool is that? As well, in more recent years it was changed to Cooper. Boo! Because my carer stated bluntly, Batman was a punt. Which means he was a white early settler in this area who killed the original landowners in this area. So, punt indeed. Accurate.

Problem Solving

Published November 10, 2025 by helentastic67

Problem Solving

I’ve been trying to solve a problem in my new home since moving in last November. It’s such a mess.

There are so many moving parts and potential solutions but more people to ask permission from before implementing solutions to the problem. So, the work around feels like a real fuck around.

Sometimes, I wish a clairvoyant or divine entity would just point you in a direction and narrow the field for you.

Here’s a real estate example which has been the perfect example whenever I’ve been on the hunt for a new home. I gave this example to a friend earlier:

If you wanted to only live in Ivanhoe and you had a set budget, and you wanted a certain number of bedrooms, bathrooms, car spaces, etc, etc. And if you couldn’t budge on any of those parameters. Maybe money wasn’t a limiting factor and you absolutely had to live in Ivanhoe; you would spend what you needed to spend.

If budget was important you would start to compromise on different things depending on what you could live with. Maybe less bedrooms, or whatever, but eventually you didn’t even live in Ivanhoe.

Maybe a clairvoyant could point you in the right direction and suggest Ivanhoe. Yes! But start looking for something a little smaller, or …..xyz. Then you wouldn’t waste your time trying to find all these other solutions.

Just an FYI, I didn’t have Ivanhoe money so I’m just giving that as an example. People that live in Ivanhoe have Ivanhoe money. You can’t hate them. You just appreciate them.

This is one of the major things on my list I’ve been chipping away at and made all the worse by a “friend?” suggesting I needed to get on my issues, like I was being lazy? Who needs enemies when you have friends like this?

So, the problem? I feel a part two coming on

I’ve had my mobility scooter AKA Hellonwheels for the last 15+ years and every time I’ve moved, I’ve had varying degrees of storage and weather proofing, security, etc in storing my Hellonwheels.

Some places I’ve lived at were easier than others for scooter storage alone. One house I rented didn’t have room to put my shed up for the scooter, so I ended up putting a BBQ cover over the scooter in the backyard close to a power supply and using locker straps around the cover to secure the cover and waterproof my scooter. It was a fuck around solution.

At my last rented home, an apartment, my car space didn’t have power so I was able to swap with a neighbour so I could erect my shed, park my scooter inside and charge it. I also stored my gardening supplies, and at one point my oversupply of pasta and tinned tomatoes, and my panettone.

I am such a Nonna!

My landlord queried what I was storing in my shed and I suggest Owner Corp and landlords do not have a sense of humour. Don’t say what I did? I responded to their original query that I wasn’t cooking meth or anything. My shed wasn’t big enough for that and I ended up using the lights on the front of my scooter to illuminate the inside of the shed to show them the contents. Seriously!

And while I was living there, I could go in and out of the only entrance to the garage on my scooter, I could go straight into my shed or go up on my scooter in the lift without causing damage. Parking near my apartment door and transferring items gathered into my apartment one item at a time before returning my scooter down to the shed to store and recharge. When I had more to take up and less time, I’d unpack items into a market trolley I stored in my shed and take that up.

Every pedestrian entrance to that complex had zero access for a scooter, and therefore no access for a wheelchair, except the B1 level or the carpark, just to give you a bigger picture.

Good thing I only have used my scooter for solo shopping missions locally as well as prompt local appointments where I get to maintain a level of independence.

So, when I moved to my forever home, the real estate agent showed me the apartment. My car space, the lift, the direction of the closest power supply to my car space and basically gave advice on both my disability and access to things he had no working knowledge on and directed everything to be sorted by the owner Corp when the time came.

I don’t know if anyone else has had to deal with an owner Corp, or had to solve problems of access for someone with a disability? And under the NDIS I have people for that right?

I prompted my support co-ordinator if she could get on that and sort things so when I moved, I wouldn’t lose my independence around needing my mobility scooter. After multiple prompts I was provided with a company name and the comment that they were expensive.

You might imagine the title of that person, being a Support Co-ordinator would mean they um, Support and Coordinate?

But it often means THEY DO NEITHER OF THOSE TWO THINGS!

So…

The Last Weekend in September

Published September 29, 2025 by helentastic67

The Last Weekend in September

Once again, it’s that time of year when this weekend just passed, Australians gathered to yell at their televisions or went to an oval to yell at the outcome of two leading teams pitted one against another. Once a year I try to do a sporty post for people that way inclined. Don’t know if anybody here is bothered? But Hellonwheels don’t do sport. Not really interested.

When I was young, I was dragged to Little Aths, short for Little Athletics in my hometown to run sprints and other sporty things. I was pretty good at running and even high jump. I had my own technique of running hell for leather at the matt and at the last second throwing myself headfirst over the bar landing on the back of my neck in a roll. Alas, at some point my interest or skill waned. Not sure which but being dragged to this torture ceased.

Meanwhile, I’ve stated before my interest in the AFL is rather low. The grand final was this Saturday just gone. My team who shall remain nameless has not won a grand final since the mid-90’s. Shame! Shame! Just disappointing.

Alas, my interest to sit through a game even on TV is zero and the end of the season I want my team to not be on the bottom. Collingwood not to be on the top and the cup to stay in Victoria. Because I’m old school and am loyal to a time when all the teams existed in Victoria from the days of it being called the VFL.

You can get some history here…….https://en.wikipedia.org/wiki/Victorian_Football_League

A few years ago, a new favourite carer started on my usual Friday shift. It was halfway through the day, we realised our teams were to face-off that night. Causing me to state “That’s it! We can’t be friends no more” and we have roasted each other about it ever since.

So, repeating.

1) Carlton cannot be on the bottom.

2) Collingwood cannot be on the top.

3) And the Cup stays in Victoria with the exception of rule Number 1.

And for the last two years the Cup has ended up out of state.

Since having a new Pies friend Pies is the team mascot for Collingwood. I’ve occasionally sent the text to previously mentioned carer now friend. “Go Pies!” And have been rewarded with a row of these “🖕🖕🖕🖕🖕🖕” Followed by an equally succinct row of these.”😭😭😭😭😭😭”

You can do your own research. It’s a serious game the only safety gear being a mouthguard.

One of my carers reports there’s a bar on Chapel Street that won’t serve a particular drink on account of a certain football team that frequent that location and those boys don’t mix well fuelled by Long Island Iced Tea.

What? You get everything here at hellonwheels.

I also revisited a childhood favourite which I haven’t revisited for about 10 years as it was not as good as I remember and that was a lunch of what my older sister fondly called “Little Boy’s!” being the classic footy franks or saveloys. Very inappropriate nickname but amusing. Good in little bread rolls with sauce, I guess it’s the same as hotdogs.

What can I say? In Australia this is how we do it. You’re welcome.

New Hellonwheels

Published September 1, 2025 by helentastic67

New Hellonwheels

Have I mentioned I’m getting a new Hellonwheels this year? I know I haven’t. I’ve been too busy sorting the permanent housing or garaging and powering location for it in a communal garage.

To be fair, I had asked my support coordinator before I moved back in November 2024 if she could help sort these things before I moved so I would not be without the use of my scooter. The best time of year to be out and about on my scooter is summer. I literally had to pester my support coordinator to assist me with this task. In the end she did neither of those things. Support or coordinate.

I received a text with a company name who helped with this issue and the comment that they were expensive. I have never been angrier. Or so I thought.

At my previous address and all previous addresses over the last 15 years, I had been storing my scooter in a shed that had been funded for me by my first OT and over time it was a method of great importance and security to maintaining some independence for allowing me to get to local appointments without the assistance of carers or doing some hunter/gathering solo, to get ahead of when I did have carers for limited times.

When I moved, I concentrated on the things inside my new home. I don’t know if you have ever moved one-handed, but I’m limited by weight and size. For something without ADHD when I move homes I find I am always moving around, moving things from one location to another until everything settles to where I can best store, access or use it one-handed. Somethings only I can put away as I need to be able to get it out again if nobody else is around. Somethings that worked in my previous home may not work here.

I lagged in storing my belongings in my storage cage because I had to wait for my handyman to bring bolt cutters. I wanted to have him cover the inside with black plastic. to keep prying eyes from my belongings, my gardening supplies and my boxes of bits. Don’t need to explain that I hope. I was not allowed to erect my shed in my car space because its height got in the way of the sprinkler system and storing my scooter there was redundant as there was no power supply I could access and all the other fucking things.

I had been so busy sorting inside my home, I had implemented the theory of Schrodingers Cat to the belongings in my car space.

My neighbour who has the car-space beside me informed me my belongings had been rummaged through. When I checked I found a transformer for my scooter had been stolen. What the actual F. Do I need to finish this sentence?