To Whom it May Concern

Published March 9, 2026 by helentastic67

To whom it may concern?

Once a week on a Sunday I have a lovely carer that is the sweetest lady. To be fair, most days my carers will ask how my week went/how my forthcoming week will be? And all my carers are lovely but specifically on Sundays. I tell her I can’t even remember. It’s this process, it comes flooding back. Monday, I had Botox for FREE. Because I had it in my leg, which doesn’t look younger. I had an inspection of the waterproofing on my balcony.

Tuesday, I saw the vampire, officially a phlebotomist for an upcoming appointment. I saw Young John twice to get me there and home again. I once would have just fanged it there on my scooter. But I digress, I went home, inhaled brunch, then out again for a massage.

Home again, smashed out a pasta bake one-handed. Managed to get it in the oven one-handed and sent an S.O.S. in the community chat to help me get it out again. Win! Sent some to a neighbours.

Wednesday, standard midday appointment, was not late. Coffees from favourite café, lunch to go, visit to bank to order new handy card, FFS!

A zoom that I missed with my car team, I received notes later. I have a new Support Coordinator she’s a gun. She’s already got help from her lawyer friends quoting the disability discrimination Act on the whole scooter and storage cage issue.

Thursday, had meeting in my car space with my overqualified handyman and my new OT, asked the most taped in community board member on the OC board to discuss the storage solution for a new scooter. This is actually starting to get some traction.

Apparently, apart from all the safety concerns of a mobility scooter catching fire in the communal space that is the garage. The who’s paying for the power on my scooter topic? Which has been discussed to death in a million ways. Apparently, the committee is largely concerned about the cage being UGLY – UM, can we go with secure and practical to give me back some independence? Then we’ll sort the not ugly. Apparently, the board is much more motivated to assist now the disability discrimination has been mentioned. I will still need to get a plan of the proposed storage cage past the committee, then have my S.C. (Support Coordinator) to lodge a “Change of circumstances” review request to the NDIA including the police report the OT started in 2025 with that was paid to do a job she only half did, did not do.

Friday, standard hunter/gathering day. Robbed everywhere I went, came home, put everything away, smashed out two blonde entre pizza’s, blond being the term for no red sauce. Then walked the short distance with a neighbour to a local bar for a shoe gaze night. Had chips and gravy, delicious. Home by 10pm. Finish chores, admin, bed around 2am.

Friday also received feedback from one place I frequent on my Anzac cookies that are next levelled twice. He thought his “Mate Helen” had shared them with him. I don’t know him well enough to be considered “mate!” had I been in the game right I could have created the side-hustle, I really need to provide 300 cookies for an event. I dropped the ball. Boo.

Saturday, with an assist from my carer, smashed out the steak and salad I normally have every Friday night, ate it Saturday night for dinner. Anyone wonder why I like to go off grid on the weekend?

Some wins and loses this week. To be sure, I now still need to do more waterproofing on my balcony. Also, I need to take my previous water proofers to VCAT since they did not solve the issue yet charged me $$$$$!

Right now, it’s Sunday night of a long weekend. Is anyone imagining a calmer week for Hellonwheels?

Not to mention, I need to rebuild a social profile on a tiny social platform. You know the one? That is a post for another day.

I also managed to put a giant band aid this week on the bullet wound that was all the nights I had tickets for comedy shows, I did not have a plus one, also a separate upcoming post. P.S. Love my comedy/concert friend from Ringworm.

Unofficial Support

Published February 23, 2026 by helentastic67

Unofficial Support

In the world of disability there are many terms for things you don’t know until you need to and that generally means you learn the hard way out of necessity. Out of your will to achieve something or your need to survive. You learn who your friends are. You work out who you can rely on.

If you don’t have family or friends who can help you do the most mundane things you might find you have a carer who can feed your cat when you go to your dad’s funeral, or you spend a night in hospital.

I don’t know if I’ve mentioned but wait for it. Humble brag, Mika is not food orientated, but she still expects to be fed, every night.

Also, kind neighbours, even after I moved were lovely enough to drop into my new home to feed my fur baby and not expect to be paid to do so. That is officially an informal support.

When I moved late last year, yes, still so much trauma around that. The moving day left me with all my tech, TV, AMP, CD carousel, drying racks, lamps, mirrors, candlesticks. So much I valued and needed to be moved and every day I was reaching out to busy people to see what they could help me with.

Now, I’ve got friends, I love and respect their time, I have later discussed my need at that time and that they were not friends I felt should need to help me for things like that.

You would be surprised when you really need help how few of the people you know are not free and I would not have expected people to drop anything to assist me, so I started asking carers who I had no funding to book them and bit by bit over the last week I had friends come from two hours away who helped when they had barely slept going through a shitty break up. Who came and helped for literally me buying them lunch. Fuel to get them through.

A carer who literally treats me like family assisted me with a few car trips and when I tried to sneak some cash into her hand, she vehemently told me that “Anybody that took money from me, shouldn’t!”

OK, fuck it. It’s now almost 1am, better go to bed.

My Egg Dealer

Published January 26, 2026 by helentastic67

My Egg Dealer

Some days life is full of surprises and the good kind which is rare. I think we can all agree. A few weeks ago, after deciding to make room in my fridge and my freezer it was necessary to go visit my Egg Dealer. I stash things in my freezer to build up a care package for George. When my Tetris skills are pushed beyond their limits an obviously to the market is critical. On this particular Friday, my carer and I headed in the direction of the space George inhibits. As I walked up to his counter a younger woman stood between us. As I walked up to her, she stated, “I love you!” Aw. So, I replied “I love you!” I mean, what else do you do? She repeated herself and I obliged. And she asked, “Can I give you a hug?” So, I gave her a hug. I later shared this scenario with my Sunday carer who looked at me quizzically, I stated, “intellectual disability?”

Back to my hugger, the hug came to a natural conclusion and like the character Alf from the self-titled TV show she ran off. She had left a shopping bag on the counter and I picked it up and offered it to the woman on my right. I confirmed she was with her. She informed me she was her carer, I pointed to my carer to indicted we understood.

So, George, what are you having for dinner tonight? He told me he was being taken out for dinner. It was his birthday on the Saturday. Such good timing, I told him he had eggplant parmigiana for his lunch the next day. I don’t normally deliver people savoury, but I told him I liked him to know I had range. He then gifted me my standard order of thirty eggs. He would not let me pay him, he said it was his good deed for the day.

My Thoughts

Published January 19, 2026 by helentastic67

My Thoughts

Despite the fifteen or so blog posts I’ve written in my Drafts folder in my email account mostly in some stages of just ideas I started with when I was too busy to sit & complete the train of thought, a few including up to 10 blog posts I wanted to finish the train of thought before edits completed by a carer and sending, so don’t be surprised when you can’t keep track of my thought process? Keep reading it will all make sense in the end.

2025 has been hectic and as it draws to a close, I’ll give you this.

Sometimes, the littlest, weird thing I may do the right person is curious enough to ask. And they are usually my carers who are here. I have a system of folding my tea towels in a particular way so the edges are all facing out, you can see the different colours and patterns of each and the edges are at the back of the pile, so the messy edges are hidden. I picked up this habit working in a homewares store back in my twenties. I bought a good selection back then and only about ten years ago started to restock after retiring those old tea towels. I would go into the city monthly about ten years ago to see my shrink and if I was early, I’d stop at a particular well-placed linen retailer on my way to the Royal Arcade and buy a few and eventually I had to stop. That is how you successfully build a collection.

Sometimes, the right carer goes to put the freshly washed and folded tea towels away and after noticing the pile is not to our standards, she will offer to take them out and neaten them. Stating, she now does hers the same way.

I’m Still Here and Making Pudding

Published January 11, 2026 by helentastic67

I’m Still Here and Making Pudding

Feeling really flat right now. You know those days it’s all too much and people that should love you don’t pick up what you’re putting down. It’s normally these days I don’t blog because I feel it’s a little too raw. So, I can’t make any good humour about things. Just appreciate I’m still here. I’m doing what I can, putting one foot in front of another planning to die healthy one day, a long time from now.

I’ll likely have more friends and beautifully kind people around me than those related to me. It’s weird at 53, the things I ended up being good at, even one-handed.

Last week I made two puddings the same day. Baked one that day, baked the other the next. Despite not all of Said-Puddings being out of my home, I made another this week. Some of the pudding after trying to deliver to its intended target, twice landed at the post office with the lovely ladies that always are kind and sweet to me. That’s not actually part of their job but I like to reward people with treats I make with love. Just for being who they are.

A friend took the time to visit yesterday while in Melbourne, was in my home while family dropped in for ten whole minutes. Five of which was spent criticizing me for my life choices, etc. She took me for dinner and while she then used public transport to get the two hours home, she kindly took some pudding and muled some to a friend that lives out near her.

Got feedback online late today from family about the expired used by dates on foodie treats, ungrateful the lot of them. No thanks for the delicious lemon tart I considered to get for them from my favourite cafe, costing me more than $10, I got myself one also and shared it with my friend.

I got a message from my friend tonight simply stating feedback on the bread-and-butter pudding. We had touched base earlier today about her arriving safely home and her car starting. For once I got to bed before she got home. Her feedback simply stating, “Your pudding was divine!”

If I could have everything else in life be as easy and productive as my pudding production, I would be a very happy woman. But none of that it seems in in my control.

About a month ago I arrived at my beauticians with a small container of my pudding and I put it in her hands at her front door. She works from home, she exclaimed immediately “It’s still warm!” I told her to take it to her kitchen and eat a spoonful. She came back a minute later with the washed container in her hands. She had inhaled it, then she stated she had half in one spoonful and she couldn’t leave the rest. Never is there a better compliment.

So, can I tell humans related to me if they can’t eat something with a lot of sugar in it, past its used by date to toughen up and eat some concrete. Asking for a friend?

Meet the Newest Member of the Household

Published January 5, 2026 by helentastic67

Meet the newest member of the household

So, meet the newest addition to the household, Freddie.

I could have changed his name. I wanted to but, in the end, I don’t know how he would take to me calling him Noire? I was not feeling the vibe to give him a new name. He had a sibling I met also called Jason. So, that was a whole Halloween thing I don’t subscribe too. Apparently, the females from several litters had all gone days earlier. I just think of that poor kitten Jason there with no Freddie for context. Jason had very cute white tips on his feet but was otherwise all black.

Years ago, when I adopted Mika, I asked if she answered to her name? The woman in the shop shared a look with me like she didn’t need to answer as it was indeed a stupid question. She did tell me if I wanted to change her name to do it immediately and consistently so she would get used to it. I stuck with Mika and she knows it’s her name. Sometimes, Mika’s favourite carer will make a kissing noise to get her attention and I will call her name and she will come to me.

After a few days of isolation, Freddie escaped the safety of the bedroom to be chased like a rodent around the couch, Mika was not well pleased. Freddie realised he wanted back into the room he felt the safest. Mika of course chased him under the bed and hissed and growled at him. A few extra days after giving him the reign of the apartment while Mika was in the study with the door closed, I introduced them together. A few days after that she was giving him a clean and it seems all will be OK in the world. Not even two weeks, here are some cute pictures of my kids.

All Things Current and the Sh*t Time of Year

Published December 22, 2025 by helentastic67

All Things Current and the Shit Time of Year

So, you may have noticed I don’t comment often on current news stories or politics on this forum. I generally ignore the news and media on weekends and so good to let the dust settle on horrific stories that are commented on around the world. I don’t appreciate the unnecessary commentary that feeds hate or any one person’s political agenda. It is to say the horrible shooting that marred Sydney’s Bondi Beach over a week ago was the worst terrorist event in Australia ever ending not only fifteen people’s lives but injuring many others. It was perpetrated by two individuals that subscribe to a version of their beliefs not shared by all that hold the same faith. The victims were being Jewish and the two perpetrators being of the Muslim faith that had been radicalized.

I have known and befriended people of both faiths in my time on this earth and while my beliefs are not the same as theirs, I just wish we could all put our differences aside and learn to get along without the need for bloodshed. There is never a need.

I can count one less than one hand how many times there has been a mass shooting in my lifetime. We don’t have gun violence in this country. We are not prepared for it to happen ever again.

Why can’t people agree to disagree and learn to get along? Don’t answer that. I know it’s a simplistic view on it, but it’s not rocket science.

It’s generally a shit time of year in my home as I don’t love Christmas. People often forget it’s not a super fun and exciting time for everybody. This year I’m preferring to spend the day home alone rather than take up the one offer I have received that was to join some friends who were participating in a gathering at their church. To which I answered, “You will do fucking anything to get me to your church!” Thankfully, she laughed as much as I appreciated the offer. I’m planning to go solo at home with the fur-kids. Make turkey or ham sandwiches and roast a few things in my oven. There will definitely be a special version of French toast for breakfast and a weird creation of trifle using no homemade ingredients and it will be shared to whoever is here to partake until all portions are gone. I even bought myself a bottle of Bailey’s even if I need to put a note in my diary once a month to have a nip to remind myself, I’d got to be had. I didn’t say I never drink I always say I barely drink. That’s what that looks like.

While most have holidays, catch up with family and friends and generally take it easy I will have a staycation at home and attempt to do things I never get to. I will finally sort my oven tray cupboard and get the last few off my bench. I don’t know when I last had a holiday. So, just remember this time of year is not as much fun for everybody as you might imagine or hope yours will be?

It’s also with great sadness I must report the recent passing of another friend who I’d known since primary school. She had a rare condition called F.O.P. Which does not stand for Fairly Odd Parents as your first google search might yield? But here’s one I’ve prepared for you earlier.

https://en.wikipedia.org/wiki/Fibrodysplasia_ossificans_progressiva

Try saying that five times fast. Try just saying it once. So, it is with great sadness we will no longer see Lyn Smiths brightly dyed hair in my media feed or her posts about her beloved cat her snuggly sleeping companion, but her regular visits to hospitals she reminded us she was still here. Still doing her best but here. Now, I have to start 2026 with a funeral. Thought she would outlive us all.

Just remember, I often write the right thing at the wrong time or the wrong thing at the right time.

Everybody, enjoy the holiday season, just as long as you eat lots drink liberally, and try to do a little less damage to those who don’t deserve it.

And to finish on a lighter note.

With the passing of the great cartoonist Leunig late last year, I’ve been asking what calendar would grace my bathroom door considering a Hot firemen calendar so I could tease my carers each month. You are aware I’ve met a few firemen needing to evacuate the apartment complex I’ve lived in in recent years and having been through the MFB training centre when I was still working and none of them looked like the men in the calendar. False advertising much.

Just learnt there is a Leunig calendar for 2026. It’s sold out, Hot firemen then? Pity the zoo sent me a calendar.

Stay safe!

Problem Solving

Published November 10, 2025 by helentastic67

Problem Solving

I’ve been trying to solve a problem in my new home since moving in last November. It’s such a mess.

There are so many moving parts and potential solutions but more people to ask permission from before implementing solutions to the problem. So, the work around feels like a real fuck around.

Sometimes, I wish a clairvoyant or divine entity would just point you in a direction and narrow the field for you.

Here’s a real estate example which has been the perfect example whenever I’ve been on the hunt for a new home. I gave this example to a friend earlier:

If you wanted to only live in Ivanhoe and you had a set budget, and you wanted a certain number of bedrooms, bathrooms, car spaces, etc, etc. And if you couldn’t budge on any of those parameters. Maybe money wasn’t a limiting factor and you absolutely had to live in Ivanhoe; you would spend what you needed to spend.

If budget was important you would start to compromise on different things depending on what you could live with. Maybe less bedrooms, or whatever, but eventually you didn’t even live in Ivanhoe.

Maybe a clairvoyant could point you in the right direction and suggest Ivanhoe. Yes! But start looking for something a little smaller, or …..xyz. Then you wouldn’t waste your time trying to find all these other solutions.

Just an FYI, I didn’t have Ivanhoe money so I’m just giving that as an example. People that live in Ivanhoe have Ivanhoe money. You can’t hate them. You just appreciate them.

This is one of the major things on my list I’ve been chipping away at and made all the worse by a “friend?” suggesting I needed to get on my issues, like I was being lazy? Who needs enemies when you have friends like this?

So, the problem? I feel a part two coming on

I’ve had my mobility scooter AKA Hellonwheels for the last 15+ years and every time I’ve moved, I’ve had varying degrees of storage and weather proofing, security, etc in storing my Hellonwheels.

Some places I’ve lived at were easier than others for scooter storage alone. One house I rented didn’t have room to put my shed up for the scooter, so I ended up putting a BBQ cover over the scooter in the backyard close to a power supply and using locker straps around the cover to secure the cover and waterproof my scooter. It was a fuck around solution.

At my last rented home, an apartment, my car space didn’t have power so I was able to swap with a neighbour so I could erect my shed, park my scooter inside and charge it. I also stored my gardening supplies, and at one point my oversupply of pasta and tinned tomatoes, and my panettone.

I am such a Nonna!

My landlord queried what I was storing in my shed and I suggest Owner Corp and landlords do not have a sense of humour. Don’t say what I did? I responded to their original query that I wasn’t cooking meth or anything. My shed wasn’t big enough for that and I ended up using the lights on the front of my scooter to illuminate the inside of the shed to show them the contents. Seriously!

And while I was living there, I could go in and out of the only entrance to the garage on my scooter, I could go straight into my shed or go up on my scooter in the lift without causing damage. Parking near my apartment door and transferring items gathered into my apartment one item at a time before returning my scooter down to the shed to store and recharge. When I had more to take up and less time, I’d unpack items into a market trolley I stored in my shed and take that up.

Every pedestrian entrance to that complex had zero access for a scooter, and therefore no access for a wheelchair, except the B1 level or the carpark, just to give you a bigger picture.

Good thing I only have used my scooter for solo shopping missions locally as well as prompt local appointments where I get to maintain a level of independence.

So, when I moved to my forever home, the real estate agent showed me the apartment. My car space, the lift, the direction of the closest power supply to my car space and basically gave advice on both my disability and access to things he had no working knowledge on and directed everything to be sorted by the owner Corp when the time came.

I don’t know if anyone else has had to deal with an owner Corp, or had to solve problems of access for someone with a disability? And under the NDIS I have people for that right?

I prompted my support co-ordinator if she could get on that and sort things so when I moved, I wouldn’t lose my independence around needing my mobility scooter. After multiple prompts I was provided with a company name and the comment that they were expensive.

You might imagine the title of that person, being a Support Co-ordinator would mean they um, Support and Coordinate?

But it often means THEY DO NEITHER OF THOSE TWO THINGS!

So…

New Hellonwheels

Published September 1, 2025 by helentastic67

New Hellonwheels

Have I mentioned I’m getting a new Hellonwheels this year? I know I haven’t. I’ve been too busy sorting the permanent housing or garaging and powering location for it in a communal garage.

To be fair, I had asked my support coordinator before I moved back in November 2024 if she could help sort these things before I moved so I would not be without the use of my scooter. The best time of year to be out and about on my scooter is summer. I literally had to pester my support coordinator to assist me with this task. In the end she did neither of those things. Support or coordinate.

I received a text with a company name who helped with this issue and the comment that they were expensive. I have never been angrier. Or so I thought.

At my previous address and all previous addresses over the last 15 years, I had been storing my scooter in a shed that had been funded for me by my first OT and over time it was a method of great importance and security to maintaining some independence for allowing me to get to local appointments without the assistance of carers or doing some hunter/gathering solo, to get ahead of when I did have carers for limited times.

When I moved, I concentrated on the things inside my new home. I don’t know if you have ever moved one-handed, but I’m limited by weight and size. For something without ADHD when I move homes I find I am always moving around, moving things from one location to another until everything settles to where I can best store, access or use it one-handed. Somethings only I can put away as I need to be able to get it out again if nobody else is around. Somethings that worked in my previous home may not work here.

I lagged in storing my belongings in my storage cage because I had to wait for my handyman to bring bolt cutters. I wanted to have him cover the inside with black plastic. to keep prying eyes from my belongings, my gardening supplies and my boxes of bits. Don’t need to explain that I hope. I was not allowed to erect my shed in my car space because its height got in the way of the sprinkler system and storing my scooter there was redundant as there was no power supply I could access and all the other fucking things.

I had been so busy sorting inside my home, I had implemented the theory of Schrodingers Cat to the belongings in my car space.

My neighbour who has the car-space beside me informed me my belongings had been rummaged through. When I checked I found a transformer for my scooter had been stolen. What the actual F. Do I need to finish this sentence?

At least this meant I poked my handyman to sort out the things by stopping ‘Mr get these things away’ And then…

Spitting Chips

Published August 11, 2025 by helentastic67

Spitting Chips

Now, this post should come with a warning, there will be swearing or alluding to words I normally will not so much as utter, but I feel you will allow considering the circumstances.

There was one particular Monday, I went down to fang it to a 12.30pm appointment. I had another appointment at the same practice, so Hellonwheels comes in handy. Even allowing me to scoop up take-away on my way home and maybe some items from a supermarket. Fresh milk anyone?

I went into the garage and had two sets of keys in my hand as well as my walking stick and the flag for my scooter. I keep the flag inside as it’s not my first flag. If it’s a selfish person or a low hanging branch they seem to walk.

I walked in the direction of my scooter and looked up, my step slowed when I realised it was not where I expected it to be. The transformer cords dangling loose out of the EV cabinet. Eyes wild, I couldn’t decide if I leave the flag where I expected to find my scooter.

But time was short, I only had 20 minutes until my first appointment, I couldn’t afford to reschedule. I had to get to both that day.

Mother trucker!

What kind of LOW LIFE Scumbag steals a Mobility Scooter? I’m still months later yet to cry. What’s the point? Too angry! One-handed without pockets I was juggling two sets of keys, my walking stick and the flag. Don’t even know why I was still holding on to that.

All while calling my lovely Young John. No time to talk. Was he free? Could he help me get to my appointment? Use the key to get from the carpark into the foyer and then the lift.

Next call to who Young John would refer to as my Indian boyfriend. Basically, any other taxi driver I call to be my transport.

I had to problem solve getting to my appointments. Unlock my front door after going up in the lift. Put flag and scooter keys inside. Back downstairs and out to the street. Get in taxi. Call Owner Corp regarding CCTV Footage. That process alone should have been easier. Made it to my appointment only fifteen minutes late. So grumpy, I did not manage to sleep at my physio appointment. So angry I was.