Hell on Wheels

All posts tagged Hell on Wheels

When Disability Becomes Embarrassing – Part 4

Published September 28, 2018 by helentastic67

When disability becomes embarrassing 4

When Disability Becomes Embarrassing – Part 4

Fred Gets Taught a Lesson

The final day of the conference everyone was tired, but content they had gone, conquered and achieved what they had gone there to do.

End of conference

I came across Fred and in a casual setting he approached me to apologise for the previous night at the dinner and throwing me under the bus in front of everyone.

Fred apologizes

I told him “It’s OK, because I had been about to tell him to go outside and call all his friends and family and loved ones and tell them how much he loved them!” because I was going to kill him.

Im going to kill you

He seemed to sober immediately and to confirm he wouldn’t do it again. I told him it would be OK because I could always claim brain injury to “get off”.

Blame brain injury

I left him with a friendly pat on the side of his arm, but I think he also knew not to do it again. It should be a warning to others.

Dont mess with me

DO NOT MESS WITH HELEN.

Yet to kill anybody, but there’s always the first.

Always a first time

Today’s Lunch – 26th September 2018

Published September 26, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day!

Life has been way too chaotic lately. What is going on? Is it just me?

Chaotic

Last Thursday, my young carer and I went over to the west. My artist friend Larissa had organised a huge Fringe event called Disability Pride. Here is a little taste. You can see photos of the event on my Facebook page. https://www.facebook.com/helen.caligiuri

Disability Pride 1

Disability Pride 2

 

 

 

 

 

 

 

 

 

And if you can share the posts already on fb for this event. I’m still struggling to share to that page. I’m doing it wrong, obviously. https://www.facebook.com/larissa.macfarlane

Disability Pride

And like my sleep isn’t challenged enough? Enter this scenario. Late Monday night far, far away in the country. My mum chases in Two cats (One likes to stay out later than the other prompting me to tie them together.) I can’t believe she bothered to tell me why she couldn’t do that. Then she drove to Melbourne (3.5 hours) to arrive at 2.10am, I was in bed around 3am and my younger sister was returning from her first overseas trip. I woke at 7.30am, to wonder where they both were? I had expected to wake to an extra body snuggled down asleep in my bed. Did I need to give her intensive border control training? Doubtful. Getting luggage took for ever apparently. So overall, four hours sleep. Not good at all.

Sleep

My one appointment Tuesday was cancelled without anyone bothering to tell me so after my family departed I had a kip and I finished the day with a friend coming for dinner and a film. I had managed to convince my friend Susanne (her real name) to watch Deadpool with me.

Forgive the irony, I told her she could hit me if it was too violent. I forget, I find the violence so highly stylised and the humour for me wiped my memory of the violence. I gotta hand d it to her, the moments she closed her eyes and blocked her ears, I stroked her leg (more of a pat) and told her “butterfly kisses!” And reminding her of Ryan Reynolds rack, eighteen minutes from the end she waved the white flag, she had, had enough and I didn’t get my slap.

Deadpool

It’s now very early Wednesday morning as I tap out this blog and another crazy day is ahead.

Crazy day

So, today’s lunch, Spanakopita with a side-salad and medicine. Nom! Nom!

Spanakopita

Latte

 

 

 

 

 

 

 

 

 

Cheers

H

Happy Wednesday

When Disability Becomes Embarrassing – Part 3

Published September 24, 2018 by helentastic67

When Disability become Embarrassing 3

When Disability Becomes Embarrassing – Part 3

Stacey

The following day, I went looking for a particular speaker and topic at the conference, that others in my group were looking for.

It was something about “sex after ABI” for example. I find the right room and joined some fellow guys I already knew. This won’t be awkward right? Since he had given me his business card, the night before.

Sex after ABI

The guys I knew and I looked around thinking we were in the wrong place because it seemed everybody else in there were “industry-types” service providers, whatever.

Industry Types

Then in came the presenter.

That’s right, Stacey!

She started by recognising there were more industry-types there than she expected. I suspect she had wanted to empower people with ABI’s that sex could still be a natural part of life post ABI.

Sex is natural

Here’s an example:

Stacey2 (not related to Stacey) had, had a stroke. She had her stroke while having sex (a little rumpy, humpy) with her husband.

Stroke during sex

There was a moment of sadness in the room when we heard this. Apparently, the married couple had a very healthy sex life before the stroke.

Healthy Sex Life

So, when in hospital, when she was able to get up and move around, they attempted to have sex in the hospital.

Sex in the hospital

Must put this one on the bucket list.

Bucket List

We were made to understand it was perfectly normal and for them vitally important to be able to continue and maintain a normal sex life for them as part of her rehab and existence.

Sex in Rehab

You might ask how they did this?

Stacey informed us they did it standing in the bathroom with her holding onto the handrails. And success apparently.

Sex in the Bathroom

Now, Stacey 1, asked us a question. She asked us, what happens when we reach climax? (or orgasm). The room was dead silent.

What happens when you orgasm

I piped up,

“What? Your muscles tighten?”

Stacey was impressed and said I was correct. The industry-type people checked me out wondering how I knew.

How do you know

Exactly!

So, I struggled a little and said,

“It’s been a while, but……”

It's been a while

The following day, at the end I walked Stacey out because I had enjoyed spending time with someone ‘normal’ as you do surrounded by numpties all the time. She thanked me for being her “Conference Friend” Sad face…

Sad face

Stay tuned for the lesson I gave Fred.

When Disability Becomes Embarrassing – Part 2

Published September 21, 2018 by helentastic67

When Disability Becomes Embarrassing Part 2

When Disability Becomes Embarrassing – Part 2

WTF!

And he thrust a microphone into my face and had sweet Jesus! What just happened?

I looked at Stacey and pointed a finger at her saying “I’ll kill you later!”

I'm gonna kill you

I think she already realised her error. Fred would learn later the following day. Sometimes I’m very grateful I think quickly on my feet, quite literally and despite my ABI I have not been slowed down too much.

Quick Wit

Oh, Fred had or myself, I can’t recall, had suggested all those single guys looking for love to stand up.

Looking for love

Are you feeling my pain right now?

I started to speak and address the room. I asked for all the guys with an ABI or anyone not with-in a stones throw of Melbourne to have a seat. I explained I have an ABI and I couldn’t for see two people with brain injuries residing under the same roof successfully as I have proven on more than one occasion and as I would eventually like to see a relationship, I am in the future to be.

Dating

I confess to say; many seats were taken and the room got rather still and quiet again. I finished my ‘forced’ situation by saying “being single and dating with an ABI/disability is not easy.”

Dating isn't easu

I think I thanked everyone for participating in the brief experiment. I handed back the microphone to Fred who looked a little deflated.

Deflated

He announced again, that there were single ladies at our table if anyone wanted to come and introduce themselves. Some did.

Introduce yourselves

And that someone was someone I knew from the ABI GROUP I WENT TO IN Melbourne. Now, he doesn’t live in Melbourne, he walked around the table and delivered all the hot chicks (OK that’s exaggerating) a business card.

Business cards

I looked up at him and growled ‘What are you doing?’ and while a bit older than I, I would not want him dating my mother.

Worst date

So, you might wonder about Stacey? Yeah, she wasn’t single, but the next day.

Stacey

Today’s Lunch – 19th September 2018

Published September 19, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Another busy week, a whole lotta crazy! What’s new, right? Monday, I did 5,000 steps. Yeah, I’m a step-counter, at 45 and steps are still important. Oh and today is International talk like a pirate day! Ah, yah! Yes, me hearties.

Pirate talk

Very happily was down at my regular cafe yesterday and got to have one of my favourites, the almond croissant and medicine!

Almond Crossaint

Got to see my GP, who gave me a print out of my latest blood tests. He confirmed my liver is ok (I wasn’t thinking I had pickled it I was previously told I had a fatty liver!) that can’t be good right? But now it’s all good! I’m happy to even donate my liver!

Liver

One of my friends mentioned to me this week when you are sliding into the Pause, your weight fluctuates. I smartly asked, “when does it go down?”

Menopause

I confess I got lazy today and had a kip before leaving home to do “person”. I stayed local closer to home. And my two appointments. Getting stabbed and tortured by my beautician.

Doing person

Today’s offering, a Mediterranean focaccia. (Mina cut it up for me, she’s so sweet!) Medicine and this little pecan tart.

Med FoccaciaLatte

 

 

 

 

 

 

 

 

And lastly, I think I should mention Mika my companion cat might be getting a name change to include Houdini, maybe a middle name? We will build on it.

Mika 2

Last Friday, I let my carer out via the car park and returned upstairs, when I went back inside and locked the door Mika made her escape and I didn’t realise for several more hours! Eventually having looked everywhere inside including inside the pantry and the European laundry I checked out in the hallway. Saw my neighbour and as I’ve only met her once or twice she offered to come in and help me find her. She is a nurse who works night-shift. Hence why I never see her.  Now you know I asked if she had eaten? I make my Nona proud every time!

Nona

As I had sent out my texts to my other neighbours to collect muffins there was a knock at my door and Will stood there and suggested they had something in their apartment that might belong to me? I’m sorry, I blurted out “Do you have my fucking cat?” His partner wanted to keep Mika and Mika wasn’t much interested in me or returning home. She had to be caught and carried and not by me.  Now don’t hate me, however, my new fur-child is not food-orientated. So, when I had been banging around in my kitchen she had not surfaced and she had not noticed me putting out her food.

Mika 1
Mika has not had a collar but she’s getting one this week and it’s going to look like a charm bracelet, with those things. So, she if found roaming the halls, please return to, “xyz!”

Cat bling

I’m also imagining her out in the hallway thinking all the doors look exactly the same! Feeling like a bad fur-parent!

Bad Fur parent

Cheers,
H

Hump Day

When Disability Becomes Embarrassing – Part 1

Published September 17, 2018 by helentastic67

When Disability Becomes Embarrassing

When Disability Becomes Embarrassing – Part 1

There are many times my disability has been embarrassing or humiliating. However, this is one of those occasions where I was standing in front of a large room of people with a microphone shoved into my hand and all I could think was – “FARRRRKKKK” (you will forgive me for that shortly)

Microphone in hand

Then I was thinking, rather swiftly I might add. “What just happened? Who did that? Where did they go? Help! Now what? How do I get myself out of this situation?”

What just happened

Now, to back up a second, I will put this situation into perspective. I was in Bendigo a few years ago at the ABIAW (Again: Acquired Brain Injury Awareness) week event. I had travelled to Bendigo from Melbourne with my mum, who had driven three and half hours to get to Melbourne, so she could carpool others around also from the ABI Group in Melbourne, I was part of.

Carpooling

So, mum was there also and we shared a room in the hotel we all stayed at.

The first day was a long one, lack of sleep and we went to sessions and heard people speak, we mingled, we ate, we collectively drank bad coffee and the first night we gathered at a dinner to mingle and socialize.

Mingle and Socialize

Now, mum and I retired to our room, like many others for a break before we went to the location for the dinner. Needless to say, my mum and I are both on a different page when it comes to tiredness.

Stubborn

I like to be early to be on time. My mum is much more lenient and we are both very stubborn on this.

By the time we arrived, the people we knew there from our group in Melbourne were spread over two big tables and there were NO SPARE SEATS and no one had thought to save us any.

Crowded table

The guy upon entering, suggested we could join another table to make some friends or sit at another empty table on one side and that table would likely fill up soon enough.

Single Girls Table

I dubbed it the single ‘girls table’. Oh, hell why not?

Here’s where mum and I differ. I was completely okay sitting there out in the bitter lonely cold, but mum wanted to join another table. Soon enough a younger ‘normal’ woman joined us and I enquired if she was single or not.

Matchmaker

Sometimes, I can be such a Nona. Nona’s very prone to want to match you up with someone’s son/nephew, whoever.

She claimed to be single (turns out that was a lie), she soon decided to find secure and encourage us to abandon our single girls table and join another table with conveniently three empty seats. This table was front and centre.

Front Row Seats

I had already had a comment about the man facilitating and Master of Ceremonies. While it wasn’t bordering on sexual harassment, it might have been a bit wrong.

Master of Ceremonies

“Let’s give single girl a name, Stacey and let’s call him Fred. Again, Fred gets such a bashing, doesn’t he? So, Stacey spoke to Fred and as she returned to her seat Fred came up to me and…

Deep Breath 2

Wait… Deep breathe,

Deep Breath

He announced to the room there were single ladies at the front table and were there any men looking?

To be continued

To Be Continued

Roadkill

Published September 14, 2018 by helentastic67

roadkill

Roadkill

OK! While I’m writing this straight after I’ve written my “why I blog post” where I mentioned “Roadkill”. That post jumped the queue and now we have resumed our normal programming.

Back to normal program

To all the single ladies, past, present and future. Roadkill is that term I have for when being single gets monotonous and in order to not being alone or ‘so-alone’ we drop our perceived standards of who is acceptable to date.

Single ladies

I’m not at all suggesting, we only want to date millionaires with boats (sorry yachts) or a castle (it’s never too late) however.

Millionaire

No job, no car, no home, no furniture? (ok that’s a work-around) however.

Our mentality is, we see them by the side of the road with a broken leg or completely flattened and smeared all over the road (Just got ‘dark’ didn’t it?) and the nurturing part of us thinks.

Roadkill 1

“It’s OK, with a little TLC (tender loving care) and a little work, he will scrub up OK.”

TLC

You can help them get a job, get a care, etc…

Eventually, they are fixed enough to take them home to meet your mum. You follow? Yeah No!

Helen does not do Roadkill anymore!

No More Roadkill

Today’s Lunch – 12th September 2018

Published September 12, 2018 by helentastic67

Todays Lunch

Today’s Lunch

Good Mental Health Day

Well, this week has been very different from normal, I even left the house (apartment) on Sunday. I went to what I like to call the crazy cat lady festival. It was the cat show on at the exhibition buildings in Carlton.

Exhibition Building

CCF 1CCF 2CCF 3CCF 4CCF 5

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

And my friend, her son and the son’s girlfriend that were nice enough to take me, great day! Just great!

Even when pulling out of the underground carport, after getting lost looking for the exit. “Look toward the light! Go to the light!” And my friend’s son replying to me “I’ve had just about enough of you!” Totally felt like part of the family…….

Go to the light

Tuesday I was at the committee meeting I go to for the self-advocacy brain injury group I’m a member of, coming home with the standard side serve of migraine.

Committee Meeting

Super!

Wednesday, now today! No Chiro or acupuncture to help with the migraine.  I definitely had to get out to my favourite location for some normal. That said! Today’s offering? The brain grain salad, with the standard medicine and carrot cake, does it count for one of my veggie servings for the day? Just asking!

Brain Grain Salad

Latte

 

 

 

 

 

 

 

 

 

Cheers,
H

Midweek 1

Census

Published September 10, 2018 by helentastic67

Census

Census

Sometimes with depression it’s good to appreciate the little things to help us get through life, because we can’t all climb mountains, or save the world or have beautiful children to make us feel like we have achieved greatness.

Achieve Greatness

For me it’s all the little things and that I have a decent memory and can use Hellonwheels to share those stories.

Here’s todays example…..

So, before my diagnosis, I worked in admin, you know that generic term for the wench in the office who does all the stuff no one else wants to do etc.

Office wench

 

At the time of one particular Census I was an admin wench doing the work of a TPO (Training Placement Office) and living with my fun housemate. B!

Housemate

 

We decided to sit on the couch to do the Census together, to make it easier.

Here’s the thing, the Census asks lots of repetitive, ridiculous questions and most were harder for me to answer than B.

Census questiions

Job Description. Sure but…..

Describe tasks you do every day? Bam. There you go. That last one, I was very perplexed. My answer went something like this….

Job Description 1

“Answer calls, deal with clients, negotiate and liaise between government agencies, hosts, sponsors, management, email etc.

Job description

B and I looked at each other and we discussed what he should write. We settled on these three words.

“Lifts heavy things.”

Lifts heavy things

Done…

Done

 

Chronic Pain

Published September 7, 2018 by helentastic67

Chronic Pain

Chronic Pain

Remember when this

Webstercare Pack

Remember when our grandparents had these and we thought it was a sign of being old?

Grandparents

OK, I’m going to be blunt

WTF happened?

WTF Happened

Since when was 40 old?

40 Years old