writing

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New Hellonwheels

Published September 1, 2025 by helentastic67

New Hellonwheels

Have I mentioned I’m getting a new Hellonwheels this year? I know I haven’t. I’ve been too busy sorting the permanent housing or garaging and powering location for it in a communal garage. 

To be fair, I had asked my support coordinator before I moved back in November 2024 if she could help sort these things before I moved so I would not be without the use of my scooter. The best time of year to be out and about on my scooter is summer. I literally had to pester my support coordinator to assist me with this task. In the end she did neither of those things. Support or coordinate. 

I received a text with a company name who helped with this issue and the comment that they were expensive. I have never been angrier. Or so I thought.

At my previous address and all previous addresses over the last 15 years, I had been storing my scooter in a shed that had been funded for me by my first OT and over time it was a method of great importance and security to maintaining some independence for allowing me to get to local appointments without the assistance of carers or doing some hunter/gathering solo, to get ahead of when I did have carers for limited times. 

When I moved, I concentrated on the things inside my new home. I don’t know if you have ever moved one-handed, but I’m limited by weight and size. For something without ADHD when I move homes I find I am always moving around, moving things from one location to another until everything settles to where I can best store, access or use it one-handed. Somethings only I can put away as I need to be able to get it out again if nobody else is around. Somethings that worked in my previous home may not work here. 

I lagged in storing my belongings in my storage cage because I had to wait for my handyman to bring bolt cutters. I wanted to have him cover the inside with black plastic. to keep prying eyes from my belongings, my gardening supplies and my boxes of bits. Don’t need to explain that I hope. I was not allowed to erect my shed in my car space because its height got in the way of the sprinkler system and storing my scooter there was redundant as there was no power supply I could access and all the other fucking things.

I had been so busy sorting inside my home, I had implemented the theory of Schrodingers Cat to the belongings in my car space. 

My neighbour who has the car-space beside me informed me my belongings had been rummaged through. When I checked I found a transformer for my scooter had been stolen. What the actual F. Do I need to finish this sentence? 

At least this meant I poked my handyman to sort out the things by stopping ‘Mr get these things away’ And then…

Dear Channel 10

Published August 18, 2025 by helentastic67

Dear Channel 10 

You fucked up! Not here to make friends just influence people.

A few months ago, people started reporting my favourite news program to be shit-canned. I thought there was time, not that I imagined I could influence some kind of reprieve. But only as a week later a deadline was announced and it was a foregone conclusion. 

My favourite news program would include actual news, comedians and even musicians. So much wrapped up into an hour six days a week. I found if I was ill informed on a particular topic or just oblivious or naive it was explained in bite sized pieces so I could understand. I understood why there was a stampede at the Wall of Mecca back in 1015.

I know, what? There was a stampede where people were crushed and it wasn’t at some music concert or festival. But interesting and questionable how these happen in today’s modern times? 

The most informed and completely unlike me individual host being Waleed Ali, someone I quote daily. He was often given the tough job to report like why there is another mass shooting in America. (he will start with how much he hates it) Because mass shootings generally don’t occur in Australia, we just can’t get our heads around why and how this can happen again and again and over again. Just how the fuck it keeps happening?

Have I mentioned we don’t have guns in Australia? Well, not like other countries at least.  We have had some machete and knife incidents we are not well pleased with. You can search for Waleed Ali’s social media presence, but I don’t believe he has one. I didn’t check because it is well mentioned on the show he has zero interest in an online persona. 

I believe he is part of a podcast which is something I don’t do. But in short, He is from Melbourne, Australia with Egyptian heritage. He was raised on Vegemite and the locally produced music program “Countdown” as I was. 

He is actually younger than I am, by six years. I didn’t stalk; I just asked Google. Oh, he’s Muslim, which I am not. But in short, he’s a TV personality, Lawyer and sometime lecturer. I’ve met students he has taught.  He’s married and has children. He’s a disability advocate and most importantly is credited by me daily for the line – “Bandaid on a bullet wound!” Because it’s often the best way to describe life with disabilities and how others try to shorthand a fix for a problem I must then revisit over and over again. 

Anyway, way, back to how royally Channel 10 fucked up! Should I have premised this post with a swear warning? Or set myself a swear limit? As if!

I think Channel 10 executives were so trying to get the Millennial audience they lost the Gen X and older audience. 

I mean, the Millennials as far as I can tell won’t take a job unless they get paid $100 grand a year and they holiday like retiree’s and spend their cash on smashed avo. But complain they can’t afford a mortgage or cover their HECS debt. They are not prioritising being sat home to watch the news at night they are out for dinner at expensive restaurants. 

Had not intended to throw all millennials under the bus however, I spent my youth working and studying in the only course that exists where I wouldn’t get a job because I was a woman, a straight woman, without a car or a driver’s license. Ah, I am studying Visual merchandising. Because I didn’t get into what I wanted to study but I needed life to start in Melbourne, so I jumped. Had to get the hell outta Dodge.

FYI, Window dressing jobs at the big department stores were only employing older gay men! or when management was away, they might employ a female. I couldn’t do freelance without an ability to get around. (no car or driver’s license) And my photos didn’t turn out so no folio to find work. 

I was also in my twenties in the 90’s when there was a recession. You grabbed any work you could find and you had to hustle. Hence, my commitment to Hospo and keeping myself busy. 

Side Bar. I only learnt a few years ago when I was working in the club scene in my twenties I was working in Hospo. Which is short for Hospitality. I will circle back to this another day indeed.

Also, from what I can tell the Millennial generation is getting all their news from social media the algorithm’s giving them all the things they are interested and only that. It must be nice to have a belief system not based on history and legacy. 

But going back to the stupidity of Channel 10 Exec’s? Yes, they bragged there would be a super awesome replacement. Paraphrasing somewhat. My bad, it wasn’t. I’ve watched it twice. It was dry. Bland and very boring. If I wanted that I could watch other channels. So, this now is to be replaced with a streamlined version of the 16+ year long program called the Project. When that will happen is anybody’s guess? 

It’s Still a Win Right?

Published July 21, 2025 by helentastic67

It’s Still a Win – Right

You know those days, this is literally how my Monday went. I couldn’t make this shit up if I tried.

Went to bed early, 12.30am, that’s early for me, trust me. Still awake until 5am, but I had an early start plus a full morning planned. First mission, fucking disaster.

Carer arrives at 8am, even my cat is listed off and confused. She knows when I should write off the day and go back to bed, but I had a specialist appointment that is every three months. On a Monday, at 11.30am, because it’s the last appointment for this clinic on the day.

This is often a Team Helen mission. Mondays I have a carer called Helen; she’s a Heavy Hitter! (I’ll circle back to that later!) We taxi to save parking dramas or me going in without her. Her agency also hits me hard for kilometres in my carer’s car. (ie. they hit me for it instead of my funding.) and the carer always is worse off. I digress, taxi to appointment, I inhaled my entirety of pills before I left and pack something to eat on the way. Learnt from the driver that burnt toast smell I always catch on the way is a coffee roaster. No, I’m not having a stroke. (Apparently, that smells like burning car tyres?)


Arrive safely and early. Hear a Code Grey while we wait this triggers a Google search of the different codes that are used in a hospital. My carer is on my left and that is my worst blind spot. I regal her it’s a story of a visit to hospital over ten years ago when a code was called for me when I’d tried to get a sleeping pill at 1am when they kept putting me off. “Just close your eyes and you will go to sleep!” I was told, like I’m a four-year-old child not a forty-year-old woman who never slept at the correct time. Anyway, started to feel a little seedy while we waited. Helen asking if I was OK, did I want a drink?
You know when you just want to power down and not be present? Started to feel sick. Suggested Helen should move to my right side. We had discussed it, but we went with it anyway. So, I threw up. (Just saliva! Not my breakfast even but worth noting!) and peed my pants. Honestly! This has never happened before in public.

I used the bathroom and when I returned Helen mentioned the Doctor had asked if I was still OK for my appointment? Like, I didn’t come all this way to throw up in the waiting room and not get Botox in my leg? It’s also usually these times my carer comments on how pale I look and after throwing up how much “better” I look. I am generally sun-averse anyway, but “pale” is normally fine by me.

My recent visits for Laser hair removal start with the question “Have you had any sun?” And my witty response. “Not if I can help it?” Anyway, asked for something to put on my seat on the way home. This was granted and off we departed for home. She asked me if I was OK, and I reminded her if I wasn’t I’d come to the right place. It was a hospital after all. Mission to get home, half showered and into clean clothes and back to bed my only goal for the rest of the day.

My lovely carer departs and I manage to sleep for two hours. Wake in time for an appointment with someone that thinks my appointment is on Thursday. Don’t know why this keeps happening, but it’s about the only thing I can read in my diary. Lazy standard rest of the day. Prepare the next week of pills, while standing in the kitchen. Feed Mika, eat standing up to better utilise time. Hope the Botox doesn’t kick in while I’m moving around my home. My leg will give out mid-step. Botox in my leg doesn’t make it look younger, just work better.

Botox puts over worked muscles to sleep for a few months, so other lazy muscles have a chance to build and take an even balance when the Botox wears off. This is to manage my drop foot and hyper extending knee so, I don’t need a knee replacement one day and I move and walk better. Who knew right? So, that was my Monday. Am I done yet?

Expectations From Others

Published June 30, 2025 by helentastic67

Expectations From Others

Sometimes, there are little things about having a disability that you would never imagine or believe.

People will always imagine everyone treats me as a human being that deserves respect, love and support and that might feel fair and truthful for some of the time.  However, on occasion someone you least expect will throw their emotional baggage at you they refuse to deal with themselves, I gather.

When I’m depressed, I hibernate to minimise fallout on others. I’ve found biting and hissing at others just makes them less likely to sign up for more.

It’s not for everyone. It’s not even good for a long-term solution for anyone with mental health issues. But I like to consider I’m taking responsibility for my issues and not projecting my shit on others. But other times, when someone wants to pick a fight with me, they will throw it in my face that I’m uneducated. 

I’m sorry! Did you hear me?

About ten-years-ago I had an OT ask me “How far I made it in school?” I was offended. I finished secondary school. Then completed three years of Tertiary, Arts, sure, however, I’ve since completed a leadership course of which this blog was my project. I also did part of a Certificate IV in assessment and training but don’t even start me on that.

I never had to do a four-thousand-word essay until my first year of tertiary. My art history lecturer thought my presentation on Pop Art and the artists Andy Warhol and Roy Lichtenstein was brilliant. I know it may sound like I’m justifying but! 

One thing I would never do is kick anybody when I’m struggling so I feel better about myself. So, you may be able to tell I’m having a hard time.

Sometimes, being one-handed, having half one’s eyesight, not being able to see. Work catches up on me. And as per I’ve some blogging to catch up on. I really don’t like blogging as a reactionary measure because I like to let the dust settle but maybe I need to rant.

Then I foresee many posts to context the ranting. Alas, it is 12.30am, and while this is early, I feel I should call it a day. Unpacking this shit always feels like unpacking dirty laundry.

Angry

Published June 15, 2025 by helentastic67

Angry

I have recently self-diagnosed well, myself with a new medical condition. It’s called being ANGRY. I suggested this via text to my GP who replied, “Not so recent!” and a recommendation to “Chill” never have words had the desired effect rather than a red flag to a bull. However, I gave him a “Hahaha!” 

Every now and again I reach a level of intolerance to people just wasting my time. Not my GP, he’s always part of the solution. Not part of the problem. But then there’s everyone else.

For example, my tram route in Melbourne still does not have accessible platforms throughout. I think my route is only one of two. Ours is the longest tram route in Melbourne. There is no excuse! I mentioned it should be an agenda item at a local council meeting and was informed by someone new that it had been discussed at a previous meeting back in 1924. I just made up that date to be fair and its pre-dates the meeting it was discussed at. 

And you know unlike that new council member I both attended that meeting and can look out my balcony to tell you there are still No accessible tram stops throughout, nor even the area they had promised to be achieved by late 2024. (That date is accurate! FYI!) The proof is in the pudding that it’s still not done. 

I think this is part of the problem of why I hate email so very much. They just go back and forth not making me feel like much is achieved. Just people pushing responsibilities onto someone else, because people don’t want to do their job, or don’t know how to do something that’s been asked of them, so deflecting and avoiding a learning experience. 

Also, to my great annoyance is when I must educate people on what should be included on an invoice. What the actual fuck people.

I’ve been project managing a little something lately that has been doing my head in. To be continued…

Crisis

Published June 2, 2025 by helentastic67

Crisis

And here we are again, sitting with the intention to smash out my next batch of blog posts, to catch up on all the things. With the best of intentions I’ll see how this goes?


The best meme I’ve seen at the end of January 2025 stated, “This month was a long year!” and I whole heartedly agree.


That is to say by the end of 2024, it was a bit of a shitstorm. About a month and a half, ending in late November I was in absolute crisis. I’m relieved to say I rarely have had to resort to that particular word but it’s accurate.


You see, late last year, I moved my home. Well, just me and the contents. Not far at all as the crow flies, but packing up after seven comfortable years of more affordable rent the earth shifted and I relocated to my forever home.


The lead up to which, as much as I’d tried to have everything sorted and come together resulted in me not having the much needed funding, the extra carers and the so called promised help on the day. I’ve only just found the accurate word for how the big day moving was.


The following week after the trucks came, I had two Little Red Trucks (I only use them) and four people. They spent seven hours relocating me this one last time.


I have moved lots in my life. Plenty of times in my twenties, four times now since my disability and I’ve taken to making the statement, “I’M NEVER MOVING AGAIN! I’M GOING FROM HERE TO THE GRAVE! OK, I’M GOING FROM HERE TO THE FURNACE! WHAT! TOO MORBID? YES, I’M GOING TO BE CREMATED!”


When telling people about my new Forever Home, I’ve hinted at several things until I’m asked, “How much is the rent?” I smile just a little and shake my head in the negative. I’m never paying rent again. Quickly followed by “Don’t hate me because my father loved me!” Next.

Keys Can Have Layers and So Forth

Published May 19, 2025 by helentastic67

Keys can Have Layers and So Forth

Today! The D.B. finally went to its home in the storage cage in my carpark along with some laundry tubs a friend had bought to help me move but, just ended up needing to be moved then stored in my new home because said friend yet to return to see my new home and collect them. It is to say it’s another good example of why I stand by the decision to have bought a small dolly trolley years ago.


My carer today, standing the D.B. Upright and weirdly the plastic tubs perched on top, little adventures like this take time, planning and all the other chores caught up on so time can be put to tasks such as the D.B. going to its storage place.

Being one-handed I manage the keys, the doors, the buttons in the lift and the navigational prowess. Down to the ground floor, where outside the lift is a small area with a sensor light and another door to the garage. As we got out of the lift the architecturally flawed items fell and as I opened the door to the garage a man appeared. He had gotten out of the car someone was parking right next to the door. He was an older man, some salt and pepper in his hair and beard I couldn’t help myself, I told him “Thats not a dead body!” I think he appreciated my comment as he informed me, he didn’t believe me.

Times like these I appreciate despite my A.B.I. I’m quick witted. People probably wouldn’t even be aware of my A.B.I. That I’ve had longer than my fifty-two years, but I gave him a quick retort “It’s OK, because I may not know where you live but I don’t know where you park?” and from that he got in the lift and was gone. From knowing his carpark can work out his address.

So, inside the storage cage bits is protected from prying eyes, should anybody think to break into my storage cage, if the sight of what could be a dead body doesn’t scare them? Discovering rolls of off cuts of carpet will be to their greater disappointment.

Blacksmiths Were the Original Mixed Business

Published May 12, 2025 by helentastic67

Blacksmiths Were the Original Mixed Business

I know, my posts have been so cryptic lately, why’s that? There has just been so much happening and going on, it’s hard to keep things simple. Remember, simple can be boring.

I purchased some Billy’s at the Swedish Warehouse to store my DVDs in my new home.
Billy’s, a type of slim shelving units purpose built for CD’s or DVD’s, conveniently. Swedish Warehouse? IKEA. You are welcome.


Even getting a project like this to completion is a multi-faceted project. Who has the muscle, who has the appropriate method of transport? Also, who can put it together?

Eventually, it came together and a few extra hours over a few weeks for the right carer to unpack boxes and build. Four Billie’s leaning against my bookcases in my study. Looking weirdly like coffins in an old blacksmiths business. I will hope the Meme Queen can bring the image to us here.

One of my older carers, I explained my intention for storing two pieces of carpet off cuts so I could store them elsewhere, and she opened the last box, everyone pitching in to the best of their abilities and physical capacities. Sometimes, I explain my plan for world domination and over time they see said “Plan” coming together they understand how I work and if they can do anything to get the plan to come together, they will help. I came from my bathroom after my shower to see this.

Bloody nearly died. I hadn’t expected her to make it happen, I only told her what I planned to try and achieve, so she just pitched in and got it done. I told her it looked like a Dead Body. She didn’t disagree. I should totally put it in my storage cage in the undercover car park and if anyone wants to imagine it’s a D.B. and it sends the message not to mess with me. This could work to my advantage. Maybe this post should have been called “D.B.?”

Another, I Don’t Know Who Needs to Hear This

Published May 5, 2025 by helentastic67

Another I Don’t Know Who Needs to Hear This

I don’t know who needs to hear this, but if it’s not you, maybe somebody you know does?

Back in my twenties when other people seemed to have a new boyfriend or girlfriend every few months, I was very single. Not sex and the city single just waiting for my soulmate kinda single. Still waiting but this prick is so lost it’s annoying. Meanwhile, I perfected my empathy at the newly heartbroken with lines like “I never liked him for you!” “You deserved better!” Both goodies I still use to this day. So good are they.


On occasion, someone looks at me and asks if I really mean it. Honestly, I liked them until they gave me a reason not to. Now, you are heartbroken, so I really don’t have to think about them anymore either. I used this method with a good friend recently and felt the need to explain in all sincerity, I had liked his now “recent ex” up until he decided to leave him. He knew exactly how I meant it.

Even people who get it together and find their soul mate can’t keep it together and grow old together and I heard the enviable line recently, “Just get to the part where you sit on the couch, binge watch TV and get fat together!”


This is probably part of the reason I avoid dating. I mean, I don’t wanna do the cull the idiots from the one soulmate out there who is the one for me. Someone I’m prepared to get in the car and listen to music we both agree on for the whole journey and be interested in the, I’m just saying we have similar tastes and preferences. Been there. Done that! Not doing it again!

My last boyfriend didn’t appreciate my taste in music and the only common ground was when he suggested I put on the “soulful black man!” He was of course referring to Nina Simone. Who I pointed out originated from the country of his birth. You know those moments when you just know you dodged a bullet. Exactly!

And Next

Published April 28, 2025 by helentastic67

And Next

So, people are getting the understanding, I’m now a homeowner. A rate payer. Seemingly, when some acknowledge as a fifty-two-year-old single barren spinster, I’m a respectful member of society.


It’s a weird space to be in, because I always hoped and imagined owning my home one day just assumed I’d have a husband that would pay the mortgage and my income would go towards the beautiful tiles to renovate a bathroom.

When my father died, I was able to contemplate having a forever home and weirdly conversations with friends about buying started to feel weird but normal. The basic understanding was shock, because I didn’t work and who was going to give me a mortgage. Trust me, I did all the research and was in all the groups and organisations that build AFFORDABLE AND SUSTAINABLE HOMES FOR LOW INCOME, etc.


I even had to fight to have myself put back on the public house in lists. That right there is a Bag of Farts. You don’t want it. But maybe not in a bag, but you need it and if you get offered it you definitely don’t want it. See the bag of fart analogy works out in the end.


After reaching out to both Local MP’s and Local Federal Members, the first time not much help, the second time never even replied to my call. I changed tactics and just got to house hunting. To be clear I didn’t have house money. I had Apartment Money, I’ve just wanted to make my dad proud.


The research I did leading up to buying, I learnt what you can get for how much. I saved fifty K, okay not having a second bathroom, but also spend an extra fifty K on not having a building with a car stacker. I’m still serious car stackers are a travesty. I hear nothing but horror stories.


Admittedly, the buildings that had those, the apartments felt much more like student digs. International students with lots of food deliveries. I really wanted a much more owner/occupier vibe with friendly neighbours who cook and give a crap about the environment and not having food arrive that they leave at the entrance to only get refunded and they do it all again.