Asking for a Friend

Published July 7, 2025 by helentastic67

Asking for a Friend

I wonder what people would recommend for someone with ADHD (hope it’s OK to refer to it as such? We all know it’s one of the many in the spectrum now just referred to as ASD?)

What would people recommend for the big projects that consume all your time, the playing with your Meds, drinking more or less coffee to get through the day and the tasks, then the smoking pot to come down at the end of the day?

Asking for a friend.

Think we have all been around people on the spectrum and seen how some cope or don’t cope. We have been on the cold face of receiving or cleaning up after them.

ASD in disability circles I’m finding has been the latest disability to be in the spotlight and the newbies or the young people now more women as its better understood the symptoms in women are different.

I don’t have a lived experience of ASD, just so you know, but I see people who do it well, I’ve seen the new young ones being all “You don’t know what! Bitch please!” I was diagnosed at 34 with my AVM and received all kinds of bullshit ever since.

It’s the low expectation of (Quote by Graeme Innes) “So people with disabilities keep having to deal with the soft bigotry of low expectations.” Now as well as swimming against the tide of negative attitudes.

Someone related to me suggested I might have ADHD too, I know I’ve seen comedians who joke about being recently diagnosed, by a friend and that its some kind of pyramid scheme.

So, too said family member. “Bitch please!”……No, I said “I’m a High Functioning ABI. Have I not suffered enough?”

Expectations From Others

Published June 30, 2025 by helentastic67

Expectations From Others

Sometimes, there are little things about having a disability that you would never imagine or believe.

People will always imagine everyone treats me as a human being that deserves respect, love and support and that might feel fair and truthful for some of the time. However, on occasion someone you least expect will throw their emotional baggage at you they refuse to deal with themselves, I gather.

When I’m depressed, I hibernate to minimise fallout on others. I’ve found biting and hissing at others just makes them less likely to sign up for more.

It’s not for everyone. It’s not even good for a long-term solution for anyone with mental health issues. But I like to consider I’m taking responsibility for my issues and not projecting my shit on others. But other times, when someone wants to pick a fight with me, they will throw it in my face that I’m uneducated.

I’m sorry! Did you hear me?

About ten-years-ago I had an OT ask me “How far I made it in school?” I was offended. I finished secondary school. Then completed three years of Tertiary, Arts, sure, however, I’ve since completed a leadership course of which this blog was my project. I also did part of a Certificate IV in assessment and training but don’t even start me on that.

I never had to do a four-thousand-word essay until my first year of tertiary. My art history lecturer thought my presentation on Pop Art and the artists Andy Warhol and Roy Lichtenstein was brilliant. I know it may sound like I’m justifying but!

One thing I would never do is kick anybody when I’m struggling so I feel better about myself. So, you may be able to tell I’m having a hard time.

Sometimes, being one-handed, having half one’s eyesight, not being able to see. Work catches up on me. And as per I’ve some blogging to catch up on. I really don’t like blogging as a reactionary measure because I like to let the dust settle but maybe I need to rant.

Then I foresee many posts to context the ranting. Alas, it is 12.30am, and while this is early, I feel I should call it a day. Unpacking this shit always feels like unpacking dirty laundry.

Angry

Published June 15, 2025 by helentastic67

Angry

I have recently self-diagnosed well, myself with a new medical condition. It’s called being ANGRY. I suggested this via text to my GP who replied, “Not so recent!” and a recommendation to “Chill” never have words had the desired effect rather than a red flag to a bull. However, I gave him a “Hahaha!”

Every now and again I reach a level of intolerance to people just wasting my time. Not my GP, he’s always part of the solution. Not part of the problem. But then there’s everyone else.

For example, my tram route in Melbourne still does not have accessible platforms throughout. I think my route is only one of two. Ours is the longest tram route in Melbourne. There is no excuse! I mentioned it should be an agenda item at a local council meeting and was informed by someone new that it had been discussed at a previous meeting back in 1924. I just made up that date to be fair and its pre-dates the meeting it was discussed at.

And you know unlike that new council member I both attended that meeting and can look out my balcony to tell you there are still No accessible tram stops throughout, nor even the area they had promised to be achieved by late 2024. (That date is accurate! FYI!) The proof is in the pudding that it’s still not done.

I think this is part of the problem of why I hate email so very much. They just go back and forth not making me feel like much is achieved. Just people pushing responsibilities onto someone else, because people don’t want to do their job, or don’t know how to do something that’s been asked of them, so deflecting and avoiding a learning experience.

Also, to my great annoyance is when I must educate people on what should be included on an invoice. What the actual fuck people.

I’ve been project managing a little something lately that has been doing my head in. To be continued…

Crisis

Published June 2, 2025 by helentastic67

Crisis

And here we are again, sitting with the intention to smash out my next batch of blog posts, to catch up on all the things. With the best of intentions I’ll see how this goes?

The best meme I’ve seen at the end of January 2025 stated, “This month was a long year!” and I whole heartedly agree.

That is to say by the end of 2024, it was a bit of a shitstorm. About a month and a half, ending in late November I was in absolute crisis. I’m relieved to say I rarely have had to resort to that particular word but it’s accurate.

You see, late last year, I moved my home. Well, just me and the contents. Not far at all as the crow flies, but packing up after seven comfortable years of more affordable rent the earth shifted and I relocated to my forever home.

The lead up to which, as much as I’d tried to have everything sorted and come together resulted in me not having the much needed funding, the extra carers and the so called promised help on the day. I’ve only just found the accurate word for how the big day moving was.

The following week after the trucks came, I had two Little Red Trucks (I only use them) and four people. They spent seven hours relocating me this one last time.

I have moved lots in my life. Plenty of times in my twenties, four times now since my disability and I’ve taken to making the statement, “I’M NEVER MOVING AGAIN! I’M GOING FROM HERE TO THE GRAVE! OK, I’M GOING FROM HERE TO THE FURNACE! WHAT! TOO MORBID? YES, I’M GOING TO BE CREMATED!”

When telling people about my new Forever Home, I’ve hinted at several things until I’m asked, “How much is the rent?” I smile just a little and shake my head in the negative. I’m never paying rent again. Quickly followed by “Don’t hate me because my father loved me!” Next.

Keys Can Have Layers and So Forth

Published May 19, 2025 by helentastic67

Keys can Have Layers and So Forth

Today! The D.B. finally went to its home in the storage cage in my carpark along with some laundry tubs a friend had bought to help me move but, just ended up needing to be moved then stored in my new home because said friend yet to return to see my new home and collect them. It is to say it’s another good example of why I stand by the decision to have bought a small dolly trolley years ago.

My carer today, standing the D.B. Upright and weirdly the plastic tubs perched on top, little adventures like this take time, planning and all the other chores caught up on so time can be put to tasks such as the D.B. going to its storage place.

Being one-handed I manage the keys, the doors, the buttons in the lift and the navigational prowess. Down to the ground floor, where outside the lift is a small area with a sensor light and another door to the garage. As we got out of the lift the architecturally flawed items fell and as I opened the door to the garage a man appeared. He had gotten out of the car someone was parking right next to the door. He was an older man, some salt and pepper in his hair and beard I couldn’t help myself, I told him “Thats not a dead body!” I think he appreciated my comment as he informed me, he didn’t believe me.

Times like these I appreciate despite my A.B.I. I’m quick witted. People probably wouldn’t even be aware of my A.B.I. That I’ve had longer than my fifty-two years, but I gave him a quick retort “It’s OK, because I may not know where you live but I don’t know where you park?” and from that he got in the lift and was gone. From knowing his carpark can work out his address.

So, inside the storage cage bits is protected from prying eyes, should anybody think to break into my storage cage, if the sight of what could be a dead body doesn’t scare them? Discovering rolls of off cuts of carpet will be to their greater disappointment.

Another, I Don’t Know Who Needs to Hear This

Published May 5, 2025 by helentastic67

Another I Don’t Know Who Needs to Hear This

I don’t know who needs to hear this, but if it’s not you, maybe somebody you know does?

Back in my twenties when other people seemed to have a new boyfriend or girlfriend every few months, I was very single. Not sex and the city single just waiting for my soulmate kinda single. Still waiting but this prick is so lost it’s annoying. Meanwhile, I perfected my empathy at the newly heartbroken with lines like “I never liked him for you!” “You deserved better!” Both goodies I still use to this day. So good are they.

On occasion, someone looks at me and asks if I really mean it. Honestly, I liked them until they gave me a reason not to. Now, you are heartbroken, so I really don’t have to think about them anymore either. I used this method with a good friend recently and felt the need to explain in all sincerity, I had liked his now “recent ex” up until he decided to leave him. He knew exactly how I meant it.

Even people who get it together and find their soul mate can’t keep it together and grow old together and I heard the enviable line recently, “Just get to the part where you sit on the couch, binge watch TV and get fat together!”

This is probably part of the reason I avoid dating. I mean, I don’t wanna do the cull the idiots from the one soulmate out there who is the one for me. Someone I’m prepared to get in the car and listen to music we both agree on for the whole journey and be interested in the, I’m just saying we have similar tastes and preferences. Been there. Done that! Not doing it again!

My last boyfriend didn’t appreciate my taste in music and the only common ground was when he suggested I put on the “soulful black man!” He was of course referring to Nina Simone. Who I pointed out originated from the country of his birth. You know those moments when you just know you dodged a bullet. Exactly!

Analogies

Published April 21, 2025 by helentastic67

Analogies

My brain is very busy with analogy’s today, it’s either a good or a terrible day to blog. So, we will see how it goes. You probably want an analogy now? You can wait.

I present really well for someone who’s had a brain injury for fifty-two-years. My carers tell me this all the time, because we discuss that in person, people are oblivious to what’s going on behind the scenes. But, in reality what’s going on up “there” feels like a bag of rattlesnakes. Thats 1 (Analogy delivered!)

I wonder if people realise there are days up “there” is like having five people with ABI’s, five people with depression or anxiety and five people on the spectrum in a room. Shaken and stirred, rather like the rattle snakes in a bag, right? And I suggest, within a few hours the room above will look like some kind of mass casualty has occurred. Think blood, trauma. Mass casualties, I realise, for many this is going way too far. But I’m making a point.

Up “there!” in my brain, there is so much chaos. Just anarchy, and I know it’s happening.
I just can’t stop it. It’s so busy I just try to get through the tasks as best as possible leaving as few people scathed as possible.

This is why people like me spend a lot of time self-isolating. It’s why we coped (apparently) better during the quarantining during Covid. It’s also, why we noticed how other people didn’t cope well during Covid. When I isolate too much, then when I do go out my brain is like “Oh my God! Look at all the thongs, the food, the people.

There are a people. What do you do? What are you peopling? Can I people with you? Let’s people together. Yes, we can.

Now, that is clearly an example. But we saw it a lot during the plague. Walking past chemists where I’d see a person behind the counter getting peopling, full blast by a customer out being around people for the first time in days. The staff members eyes flick out to notice if anybody out there that could save them. Is this even really happening? Am I the only one seeing this right now? Can somebody help me? And all of that is happening up there and on the outside, its Calm! Calm! Calm!

Everybody act calm and then, I think this is why I gift people treats a lot. It’s a reward, sure. But it’s my way of saying, you put up with my “Crazy!”

Later, I may stay away for a bit, so you miss me. Because you nipped at me and hurt my feelings. I try to bring a little funny, a little sass to everyone every day. But sometimes, others have too much owing on and it falls short. But this is why when I hand over a little love, I mean it.

I Don’t Know Who Needs to Hear This

Published January 27, 2025 by helentastic67

I don’t know who needs to hear this?

From my series, I don’t know who, but somebody needs to hear this and if it’s not you please forward this to the person you know that does. I live in an apartment these days like many people that cannot afford to live in a free-standing house.

I give people my address so, For example: 123/456 Blah Blah Road, Suburb. Now, obviously Blah Blah is not a real name. I am not in a creative mood, clearly.

Next the first digits, in this case “123” is the apartment number. NOT THE STREET ADDRESS. The other number. “456” IS THE STREET ADDRESS. So, most importantly, if you don’t know this, don’t suggest I gave you the wrong details. If you didn’t know you could have asked? I won’t agree with you calling yourself an idiot, just admit you got it wrong.

I don’t understand people making it someone else’s fault rather than admit they got something wrong, don’t do that.

Rant over.

It’s been a tough day/week/month/year and people’ing is getting on my one last nerve.

Like the Good Old Days

Published June 10, 2024 by helentastic67

Like the Good Old Days

Sometimes, I think I should revisit the earlier days of HellOnWheels when life was full, as if it’s not now and I used to do a Hot Off the press post.

So, I guess this is reminiscent of those days. Monday, usually a quiet day at home but not always. Had a video chat with a new carer agency. Proof that every now and again the stuff set in concrete moves and you need to ride the waves of change to keep the boat upright. Is that a good analogy or what. Note, not a question.

Dropped off an old doona, its cover and some pants to an op shop on HellOnWheels, local adventure and went to a business to break a note and drop off some takeaway coffee cups that my carers keep insisting on bringing into my home. Then for the weirdest drug deal ever. You know I don’t do drugs and even in my club days didn’t. So, I think this topic deserves its own post. Went to physio after running into said Physio at the local business in question. Gave him some smack talk suggesting to lessen the imminent pain he was about to cause his patients, to have a nice chamomile tea. He didn’t.

Tuesday had an extra four-hour shift with one of my favourite carers. I know like parents with their kids, you don’t have favourites you just love them differently. When the two Helens get together, we get stuff done. We even did a little local adventure. A regular lady I am friendly with in my travels noticed a different face out with me and asked if she was my sister? Sure, why not?

Admin Day, things were started, booked and we did a little real estate searching. Because, why not? I don’t want to kill myself enough already. Don’t ever look at properties you’ve lived in years earlier and look at the sale history, you will want to kill yourself.

Wednesday, standard chiro. Gave her what’s the term for the – I moved my practice to its new home gift. Was going to go with flowers but they die. Settled on orange Toblerone. The really huge box, I got one for me too and it’s already promised as orange Toblerone mousse in mid-February when some friends come for dinner. They are bringing moussaka, I made lasagna last time and they brought a delicious selection of tiny cakes. Crowd pleaser. It’s a good way to do a dinner party these days. Delivered a bag of my old well-loved Adidas Gazelles I used to wear prior to life with an AFO, those were the days. Gotta run fast to catch the other Helen.

They will find new homes with young refugees who want to play sport. Likely connecting that carer with that locomotion to donate food that is normally disposed of in the bin. I love connecting my people with my other people. Then went to the toy shop I mentioned previously. This brings us to the end of Wednesday, basically.

January has become the time of year I do spring cleaning, carers, businesses I deal with, services I use, take time off. People with children have lives dictated by school holidays, etc. So, I do stuff. Onward

Tomorrow is a new day. Maybe I’ll catch up on some data entry, that alone is a never-ending battle.

Gaslighting

Published April 22, 2024 by helentastic67

Gaslighting

Before recent years I never even knew what gaslighting was, I never saw the film, I did a few years ago go to see the Julia Roberts miniseries Gaslit. That was awful. But that’s the point.

So, it’s sometimes subtle, my appointments are moved or rescheduled without telling me or negotiations, emails sent very late in the day so the sender can put off my response and therefore their action or even how they contact me knowing perfectly well I have both a mobile number and a landline and when it’s best to use either and on a rare occasion I might be on email during the day and I can tell they are surprised when I respond in a timely manner.

I’m often doing my emails around midnight because that’s when I get all my other chores done and can sit with my iPad and give emails the time they require. So, a time lag is pretty common.